As Ibrutinib and Idelalisib become more widely used among non CLL Specialists I have some concerns that side effects from both drugs may not be covered effectively by general oncologists. Both drugs are quite effective in putting the CLL Bear to sleep and both carry unique side effects. The most serious are rare for the majority of users but in the spirit of a belief that proactive patients will avoid some dangerous pitfalls it behooves us all to be alert and knowledgeable to keep our treating physicians honest. The following video is pretty good at defining what to be aware of.
It is hoped that someday medical science can accurately assess what side effects can be matched to any given patient. Until then it is wise to know what to look for while acknowledging that most of the serious side effects are often very rare. Identification early on in side effect development most times will result in management with good outcomes while ignoring some side effects can get you killed.
A tip for those patients participating in Clinical Trials. Pay attention to the questions asked regarding symptoms. Often in early Trials if one or more patients comes in with a suspicious symptom the staff and Docs conducting the Trial will want to know if others might have experienced the same thing which could be Trial drug related.