How many CLL suffers are Cystic Fibrosis Carri... - CLL Support

CLL Support

23,299 members40,000 posts

How many CLL suffers are Cystic Fibrosis Carriers

4 Replies

Here is interesting read not routinely covered.

treato.com/CLL,Cystic+Fibro...

Read more about...
4 Replies
AussieNeil profile image
AussieNeilPartnerAdministrator

Your have only supplied a search link, that I can see, not a reference to a paper or discussion of the incidence of people with the two conditions. Sadly, with the average live expectancy of a cystic fibrosis sufferer being just 37 years* and the median age of diagnosis for CLL patients being around 71, there's unfortunately very little chance of someone with cystic fibrosis of living long enough to be diagnosed with CLL.

I appreciate you are struggling with an undiagnosed illness which I gather involves your lungs and you are concerned about your blood health, but until you can confirm you have a positive diagnosis of CLL via a simple flow cytometry blood test, I strongly recommend you do not concern yourself about living with an incurable blood cancer.

Neil

* Various sources state life expectancy of this genetic condition evident from birth to be from somewhere in the twenties to the early forties.

in reply toAussieNeil

Hi Aussie AM not talking about true CF suffer but carrier and that's what my question was about not about me but CLL and CF

To be CF suffer you need two faulty genes one from mother and other from father NOW this lots of carriers of CF and I just wanted to know if CLL suffers know if there carrier and what impact if any as on there condition compared to none cf carrier.

AussieNeil profile image
AussieNeilPartnerAdministrator in reply to

Of all the thousands of CLL patient stories I've read over the years, I don't recall a single incidence of someone with a faulty gene for CF mentioning the influence of that on their CLL. Perhaps I'll hear of my first incidence via a response to your post, but if the person has a one good gene, then they will still be able to make normal mucus and would only know about this combination if they had a child with CF and had CLL.

Neil

in reply toAussieNeil

Hi aussie defo agree all be surprised to BUT i think suffers will not know if carriers.

But i would of expected motgers or fathers to have known.

So much for screening THATs why i think cll suffers should ask the doctors given dna research and common themes when it comes to illness diseases.

Not what you're looking for?

You may also like...

How many of us with CLL still work full-time?

I know that we all have dramatically different symptoms and are at various stages. But my Occ...
DMF_online profile image

How to Fight CLL

A recent message from an oncology nurse was so brilliant, I decided to build upon her theme....
Davdow profile image

How are people coping with maintaining employment whilst having CLL?

Hello, I was just wondering what experiences people are having with maintaining a job whilst having...
Fishface profile image

Are all oncologists CLL specialists?

Hi all I was just recently diagnosed with stage 0 CLL. My oncologist has suggested watch and wait...

How many cancers can I get?

Hello!! I got diagnosed 6 months ago and doing wait and watch. I got refeared to an ENT because...
Lizlashley1 profile image

Moderation team

See all
Newdawn profile image
NewdawnAdministrator
CLLerinOz profile image
CLLerinOzAdministrator
Jm954 profile image
Jm954Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.