FCR round 1: Just an update on my first... - CLL Support

CLL Support

22,474 members38,607 posts

FCR round 1

Kenn123 profile image
8 Replies

Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have an appointment with my haematologist to sort out medication before round 2.

Written by
Kenn123 profile image
Kenn123
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Bethan49 profile image
Bethan49

That is brilliant. I was the same..A new set of anti sickness will do the job God willing . Well done!

London_Girl profile image
London_Girl

Thank you for the update. My husband starts treatment soon although we are still waiting to hear if it is FCR or Ibrutinib. it is always good to hear some positives.

Wishing you all the best for your future rounds. Keep us posted

Maria

Newdawn profile image
NewdawnAdministrator

Good to hear Kenn, hope all goes well from now on.

Regards,

Newdawn

devonrr profile image
devonrr

You will feel so good when all is finished. I was surprised how lively I felt and how my body must have for years slowly got less active as I accepted tiredness as the norm of the ageing process not the unknown CLL. Yes, get the anti sickness drugs correct and then you will find treatment can be OK and perfectly livable. Alot of members on this site report tiredness and feelings of nausia on day 3 of each cycle and then two days later normal lifestyle activities. I thought the first cycle was the worst because I expected to be ill and wasn't really!

Fowey2009 profile image
Fowey2009

In my husband's experience they can underestimate the nausea. Once they get the anti-nausea regime right the FCR seemed much better

seoul profile image
seoul

After round 6 you will be MRD- and forget the CLL for a vary long time completely. Hopefully forever!!

thompsonellen profile image
thompsonellen

Glad you are doing well now. 1 down, 5 to go.

Peggy4 profile image
Peggy4

Thanks for sharing your positive news.😀

Peggy

You may also like...

Round 4 FCR complete

I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but...

Molecular remission after 6 rounds of FCR

Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow...

Round 2 FCR complete

I have completed round 2 of FCR and am past the lowest point (10 days post) so am starting to...

Blood transfusion after first round of FCR

Am I just unlucky? The start of the FCR went so well, though I was breathless from the first dose of

Have Relapsed From FCR and looking for best choice for Round Two

back to Doctor for 4 yrs didn't want to take any non natural treatments. Finally heart pounding in...