Pregnancy and cll/sll

My daughter was diagnosed in May 2015 at 29 years old. She is currently on watch and wait,being seen NYC every 4 mos and her numbers are steady and the first important year has passed with no real movement in numbers since diagnosis. Her markers are good as well. She is married now for 2 years and starting to think about having a family. Her hematologist and even the second opinion told her to go live her life even saying wait a year and if all is ok having a pregnancy while having cll/ sll would be ok. Her next appointment she plans on bringing up the specifics of what the doctor means regarding a pregnancy. Does anyone know of a young cll/sll patient who has successfully gone through a pregnancy? As her mom I am worried the cll may change. Thanks for any insight.

4 Replies

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  • Hi DPhillips

    Its rare for someone so young to be diagnosed, so folks able to respond will be few.

    I can only hope with you that a someone able to give their view be forthcoming, but I am inclined to take on board the opinion of the doctor who she sees and who has all her medical information. Locking your post may encourage better response.

    Best wishes

    Bubnjay1

  • I was diagnosed after having my child, but I just am sorry your daughter was diagnosed at such a young age. Like bubnjay1 says, do what the doctors advise. If they said it's fine to have a baby, it were me, I wouldn't take more than that year to start trying. Also keep in mind that there are a lot of advances. I believe there will be a cure in her lifetime.

  • I just got some info from a lady on a CLL facebook page. She went through two pregnancies after her CLL diagnosis and had no complications other than slightly low platelets after delivery (which can happen to anyone).

    Of course everyone is different and your daughter should discuss everything with her doctors.

    I see Dr. Byrd at OSU and he acted like if I wanted to have another child that it wouldn't be an issue; however, I'm 39 now and that's a whole different issue!

    I wish the best for your daughter and family!

  • I was recently diagnosed with CLL at age 41 at 5 months pregnant through routine pregnancy bloodwork. I am still trying to get out of my shock at the diagnosis but everything (besides my WBC counts being slightly elevated) had been normal with the pregnancy. My doctor has told me not to worry and stress over the diagnosis so that is what I am trying to do. I also have to see a high risk doctor at my hospital to consult during the delivery since this is an unusual diagnosis for my age. I understand the fear though since CLL seems so unpredictable - but I guess then so is life (at least that is how I am feeling at the moment). If her doctors give the go ahead, and it is something she wants, I think she should do it. I don't think she'll ever regret having a child but she may regret not having one.

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