Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for April 2019

eyesight

I too suffer from eyesight problems,optitions says my oil glands are not working as they should be under the eyelids. have got eye drops (CLINITAS GEL).

I too suffer from eyesight problems,optitions says my oil glands are not working...

jasminemarigold

•5 years ago

4 Replies

Really, why????

Its what I said on the first visit to my new GP, as I have moved 100 miles south of Harrogate where I lived. It was in response to a question I asked, about...

Its what I said on the first visit to my new GP, as I have moved 100 miles south...

peterallison

•5 years ago

18 Replies

Breathing problems

Hi I find on some days my breathing is not good when I am standing and trying to move about. It’s like my asthma is playing up but I don’t think it’s my...

Hi I find on some days my breathing is not good when I am standing and trying t...

KiwiBob

•5 years ago

20 Replies

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Stoma

Have any of you got gastrointestinal issues and had it suggested that you would find it easier with a colostomy bag. If you have or have done the op I would...

Have any of you got gastrointestinal issues and had it suggested that you would ...

hab29

•5 years ago

2 Replies

Tremors in one arm

I am waiting for further genetic results as SCA 3 which is within the family proved negative. I am finding I have developed tremors in my right arm, which as I...

I am waiting for further genetic results as SCA 3 which is within the family pro...

Pussycat1

•5 years ago

3 Replies

Another Blanket

Hi all, I am busy and well a greatfull for being able to do things. Here is another blanket. This time for my grandson. I am busy with one for my...

Hi all, I am busy and well a greatfull for being able to do things. Here is anot...

isabelalfaiate

•5 years ago

12 Replies

Holiday for the Disabled

Hi all. A Branch member has recently spent a week in a disabled-friendly flat in Bridlington and recommends it. The website is: https://pride-n-joy.co.uk/ GOOD...

Hi all. A Branch member has recently spent a week in a disabled-friendly flat in...

Capricorn9157

•5 years ago

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Survey into Treatment for ataxia

Ataxia UK are working with researchers from University Colege London and the European Brain Council in a survey about all aspects of ataxia patients healthcare...

Ataxia UK are working with researchers from University Colege London and the Eur...

Capricorn9157

•5 years ago

2 Replies

Pain

Hi all, I see from some people's posts that some of us have no pain. I actually have pain somewhere or other most of the time. This is cos I have a fair...

Hi all, I see from some people's posts that some of us have no pain. I actuall...

ww-wibblywobbly

•5 years ago

9 Replies

Sheffield Ataxia Centre waiting time

Hi, Does any one know what the waiting time is to be seen at the Sheffield Ataxia Centre.

Hi, Does any one know what the waiting time is to be seen at the Sheffield Ataxi...

KiwiBob

•5 years ago

16 Replies

New tests

Hi all,-- Me again , I have just sent a message, but I think I have put it into the wrong place,----- I am feeling stressed at the thought of going for my MRI...

Hi all,-- Me again , I have just sent a message, but I think I have put it into ...

lottiejemma

•5 years ago

6 Replies

What Next?

I have been trying to catch up on everything that has been said and it is remiss of me to not follow all of you. I am the strange one that put the post out A...

I have been trying to catch up on everything that has been said and it is remiss...

DeniseLB

•5 years ago

6 Replies

Experimental Tongue Therapy Helps Restore Brain Function

Is anyone following Helius Medical and the introduction of the PoNS device? I am looking forward to trying. It is available in Canada, and it is pending FDA...

Is anyone following Helius Medical and the introduction of the PoNS device? I am...

mpagganwala

•5 years ago

6 Replies

Numbness

Hi I keep getting like a numbness to nose area as though I have been hit in face with football sometimes lips and top front teeth also feel numb. On odd...

Hi I keep getting like a numbness to nose area as though I have been hit in face...

DizzyTMc

•5 years ago

3 Replies

Ataxia Conference

Hi! There was the Annual Ataxia Conference a few days ago in Las Vegas organized by National Ataxia Foundation. Below are videos from the conference and if...

Hi! There was the Annual Ataxia Conference a few days ago in Las Vegas organize...

_ada

•5 years ago

4 Replies

standing, then can't move

why can't I move after I stand against a wall for a few minutes, with my seat walker, I have to struggle to sit for a few minutes, then, I can get going, but...

why can't I move after I stand against a wall for a few minutes, with my seat w...

lottiejemma

•5 years ago

3 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2019

eyesight

Really, why????

Breathing problems

Stoma

Tremors in one arm

Another Blanket

Holiday for the Disabled

Survey into Treatment for ataxia

Pain

Sheffield Ataxia Centre waiting time

New tests

What Next?

Experimental Tongue Therapy Helps Restore Brain Function

Numbness

Ataxia Conference

standing, then can't move

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive