Ataxia Conference

[_ada]

Hi!

There was the Annual Ataxia Conference a few days ago in Las Vegas organized by National Ataxia Foundation. Below are videos from the conference and if you are interested I recommend you to watch them. I found a lot of interesting information and felt a little better. I love American attitude - it's so full of hope and determination that it's nice to watch

Here is the video from day 1: (2h30min)

facebook.com/ataxiafoundati...

Topics:

1.Keynote Address: Ataxia: A Treatable Disease

2.Pioneering in Discovery: Research Update

3.Coping with the New Normal

Video from day 2: (3h20min)

facebook.com/ataxiafoundati...

Topics:

1.SCA Global Conference Recap: Transforming Worldwide Research

2.25 questions about ataxia genes and gene testing

3.Management of Ataxia: Goals and Treatments

4.Physical Therapy: Staying Strong and Balanced

5.Hope and Promise for the Future

[wobblybee]

🙂 Yes, I logged on Friday and Saturday. It was uplifting to hear Dr Perlman say ‘ Within 5yrs there will be at least 1 approved modifying drug for SCA. And, she acknowledged more needs to be done for people diagnosed with non-genetic types.

[_ada in reply to wobblybee]

I agree. I think that I liked her speech the most ^^ My favorite new quote is: today is a good day to have a good day

[ConantheLibrarian]

Thanks for providing the links. I haven't looked at the videos yet but I'm sure they'll be interesting

[majajefferies]

Thank you so much!

This was so uplifting and positive, very informative and it gives us so many options and avenues to pursue!

Many, many thanks!