Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for October 2017

Nortriptyline. The SLOW pace of medicine.

Here is yet another therapeutic that holds some promise for neurodegenerative disorders, but the pace of research is astoundingly slow....

Here is yet another therapeutic that holds some promise for neurodegenerative di...

sunvox

•7 years ago

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Reversal of Cognitive Decline. Food for thought.

This is a study done in 2014 of patients with Alzheimers. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4221920/pdf/aging-06-707.pdf In this study patients...

This is a study done in 2014 of patients with Alzheimers. https://www.ncbi.nlm....

sunvox

•7 years ago

9 Replies

Sudden vertigo

Does anyone have or had sudden vertigo? The is not the constant swaying of ataxia rather a sudden spinning sensation brought on (I think) by looking downward...

Does anyone have or had sudden vertigo? The is not the constant swaying of ataxi...

neta

•7 years ago

17 Replies

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Acquired Ataxai

I was told two month ago by a neurologist that I have acquired Ataxai following an accident affecting the frontal lobe two years ago. Anyone able to tell me...

I was told two month ago by a neurologist that I have acquired Ataxai following ...

theronwinn

•7 years ago

2 Replies

Revitive

My wife suffers from Cerebellum Axatia of the Cerebellum (cause unknown) and has been confined totally to a wheelchair since 2014. She constantly has swollen...

My wife suffers from Cerebellum Axatia of the Cerebellum (cause unknown) and ha...

210coetfemme

•7 years ago

4 Replies

Please ignore meet up in Reading post

Post in wrong community.

Kiwi2

•7 years ago

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Meet up in Reading

Just wondering whether anyone would be interested in meeting up in Reading. The group is invaluable and it would be good to meet up if there is anyone local to...

Just wondering whether anyone would be interested in meeting up in Reading. The ...

Kiwi2

•7 years ago

3 Replies

Exenatide for Parkinson and Alzheimers. Another bit of hope for ataxia?

http://www.mlive.com/news/grand-rapids/index.ssf/2017/09/parkinsons_specialists_gather.html...

http://www.mlive.com/news/grand-rapids/index.ssf/2017/09/parkinsons_specialists_...

sunvox

•7 years ago

6 Replies

Research trial for SCA3 patients

Dear all, An ongoing research trial is urgently calling for patients with SCA3 to participate. This trial is being conducted across Europe and the UK to...

Dear all, An ongoing research trial is urgently calling for patients with SCA3 ...

SMarley

•7 years ago

1 Reply

PIP

Oh no the dreaded PIP form has arrived been dreading this for the last 2 yrs, here we go and ihate change since my stroke / ataxia

Oh no the dreaded PIP form has arrived been dreading this for the last 2 yrs, he...

xray25

•7 years ago

2 Replies

HELP needed please.

Not sure if this is the right platform for this, but I have HSP No7 and ATAXIA (which is not the best) my wife is going to jump from a perfectly serviceable...

Not sure if this is the right platform for this, but I have HSP No7 and ATAXIA (...

Vert

•7 years ago

1 Reply

Hi

My family has a history of SCA6 late onset Ataxia. Am 51 and no obvious symptoms yet. Am keen to prepare and help others in early stages. Have seen it affect...

My family has a history of SCA6 late onset Ataxia. Am 51 and no obvious symptoms...

Andyfriedo

•7 years ago

7 Replies

New to this

I have just seen a consultant a the Neurology Hospital in London. He thinks I have late-onset Cerebellar Ataxia. I'm 69 and active. What should I expect?

I have just seen a consultant a the Neurology Hospital in London. He thinks I ha...

peakerhome

•7 years ago

15 Replies

Ataxia UK Annual Conference 2017 and HealthUnlocked breakout session.

Dear all Myself and Sue Millman (CEO of Ataxia UK) will be hosting a breakout session in the afternoon of this year's annual conference in Stansted about...

Dear all Myself and Sue Millman (CEO of Ataxia UK) will be hosting a breakout se...

HarryB

Administrator•7 years ago

8 Replies

PIP

I won my appeal 😝😝😝😝

bevvick1964

•7 years ago

13 Replies

Recently found out I have it

Hi I'm new got cellar Bella ataxia type 14 .My brother found out he has it and asked me to get tested cause it's hereditary I have it .I'm still working but...

Hi I'm new got cellar Bella ataxia type 14 .My brother found out he has it and a...

June_bubba

•7 years ago

2 Replies

Vitamins...and walking!

A couple of questions. Due to the stress of the breakdown of a long-term relationship I have put on weight and need to shift it. Many ideas I look at include...

A couple of questions. Due to the stress of the breakdown of a long-term relati...

JillJ

•7 years ago

15 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for October 2017

Nortriptyline. The SLOW pace of medicine.

Reversal of Cognitive Decline. Food for thought.

Sudden vertigo

Acquired Ataxai

Revitive

Please ignore meet up in Reading post

Meet up in Reading

Exenatide for Parkinson and Alzheimers. Another bit of hope for ataxia?

Research trial for SCA3 patients

PIP

HELP needed please.

Hi

New to this

Ataxia UK Annual Conference 2017 and HealthUnlocked breakout session.

PIP

Recently found out I have it

Vitamins...and walking!

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive