B and R Treatment: Anyone in the community... - CLL Support

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B and R Treatment

Whalexx profile image
16 Replies

Anyone in the community experiencing a tickling cough as a result of taking Bentamustine and Rituxin. I just started this protocol and would appreciate any feed back on this treatment, Thank you, Lee

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Whalexx
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16 Replies
64lusso profile image
64lusso

It’s been 4 years since I had B+R and I don’t recall anything like that. The only side effect that I recall was red wine tasting a little funky and as I neared the end of my 6 treatments I needed to knock off work early and come for a nap. I don’t have allergies normally but have had an occasional tickling cough recently, maybe tree pollen?

Whalexx profile image
Whalexx in reply to 64lusso

Thank you for your reply, really appreciate it,Lee

laldoroty profile image
laldoroty

I finished 6 treatments of B&R have any in June of 2020. During my first treatment I had a reaction ( a lot of shaking and extreme chills) they stopped the treatment for a couple of hours, gave some medication and then finished. It was a long 8 hour session. I then put on 11 pounds in 5 days (retained water) but then it went away in about a week. I also experienced some constipation and night sweats during the process. With each treatment it was easier. I also had to go to the emergency room twice because of high fever (104F). It wasn't as bad as it sounds, after my Oncologist said I was in remission. I am now on a 2 year program of just Rby injection every 12 weeks. Hoped this helped and If any other questions please ask. I kept

a diary during treatment, I thought it helped.

Leo

Whalexx profile image
Whalexx in reply to laldoroty

Thank you so much for your timely reply. It really helps knowing you're getting support from someone who has been through it. Lee

Whalexx profile image
Whalexx in reply to laldoroty

Thank you for the info, it really helped me,Lee

laldoroty profile image
laldoroty in reply to Whalexx

Good luck and best health on your journey

Justasheet1 profile image
Justasheet1

Lee,

My tickling cough turned into pneumonia. It began around the fourth infusion of BR and slowly got worse and put me in the hospital for 2 weeks following fifth infusion. Keep an eye on it.

Jeff

Whalexx profile image
Whalexx in reply to Justasheet1

Getting a ct scan today, thank you for getting back to me, Lee

Dancelu profile image
Dancelu

yes my partner who had 1 session of B & R and had to discontinue started having a dry cough also . It went on for about two months. His doctor and nurse said “ never heard of anyone getting that cough. “ All it took for me to know they were not telling the truth was a search on the internet. came up with many people describing their same cough after B & R treatment for different cancers.

Whalexx profile image
Whalexx in reply to Dancelu

Definitely one of the many side effects of BR, thank you for getting back to me, Lee

Big_Dee profile image
Big_Dee

Hello Whalexx

I don't recall having a tickling cough from B+R. Do you feel you are have greater sinus drainage?

Whalexx profile image
Whalexx in reply to Big_Dee

I'm in Florida and the pollen count is kicking, never had a cough...5 days after BR treatment started coughing...

napa profile image
napa

I have had two treatments of B and R, the third is set for in about 10 days, I would say after my first treatment I had a tickling cough, but minor, the cough is not much there now.

Whalexx profile image
Whalexx in reply to napa

My second treatment is 4-1-21, hopefully my cough will resolve itself, thank you for getting back to me, Lee

Jacksc06 profile image
Jacksc06

Hi Lee. I had four cycles of B + R in 2017. I don't recall having a cough. I posted weekly on this forum during that time, Please feel free to browse. Bear in mind that this was my personal experience and people have different experiences. Best wishes.

Whalexx profile image
Whalexx in reply to Jacksc06

Thank you for your help,Lee

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