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CLL Support Association
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Hard(ish) bulky lymph nodes - anything to worry about?

Hello! I've mentioned before that my lymph nodes tend to wax and wane a bit in size - Over the past few days, I've had an inguinal (groin area) lymph node that seems to have gotten bigger and is a bit hard to the touch...this is all quite sudden. Is this something I should be (immediately) worried about? I feel fine and am experiencing no discomfort. I'm still new to my diagnosis and never sure when I need to call my doctor!

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Clearly if the node is a concern you should see your CLL doctor, for an assessment.

~chris

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Yes, I realize that, once again, I'm hoping to hear from other people's experiences. I'm asking because I'm not sure *if it's a concern*.

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Do you have mutations? My hubby is 17p deleted. We just saw the doc for a regular 3 month visit. And we were told to call if nodes pop up. But they consider 17p- the worst of all mutations. Doesn’t exactly answer your question but my 2 cent worth.

Spacee

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Nope, I'm not 17p. I have 13q14 and trisomy 12, IGVH mutated.

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Do you have a consult due with your haematologist soon jijic? Sounds like you have generalised lymphadenopathy anyway but this one is slightly different. I’d give them a ring and just ask if you can check it out for peace of mind. Could even be infection related.

I’ve been in a stew the last week with the sudden emergence of swollen lymph nodes under my jaw which have subsided greatly with antibiotics but I also had a precautionary ultrasound. It’s too easy to start imagining the worst and reading extensive experiences on here of all kinds of swollen nodes, it’s clear some wax and wane, some are very bulky and a constant feature and they vary in terms of how hard or soft they are and whether they’re painful or painless. It would be easy to drive ourselves mad trying to find answers because only diagnostic techniques can.

For your own peace of mind, give the haematologist or specialist nurse (if you have one) a ring and mention it.

It may go down as quickly as it appeared. You need to know it’s not impeding anything or pressing on nerves however which are added considerations.

Best wishes,

Newdawn

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Such a good question. My lymph nodes were enlarged a few days ago so I called the Dr and was told come in to be seen. Of course two days later way better but I am going anyway.

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