Neck node biopsy : 5 + yrs post diagnosis of CLl... - CLL Support

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Neck node biopsy

Huzzy profile image
10 Replies

5 + yrs post diagnosis of CLl and have lump on right side of neck. They thought it was CLL but during biopsy yesterday they seem to think it is “another” cancer. It is at the lab now. Anyone have anything similar?

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Huzzy profile image
Huzzy
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10 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

I hope this is not the case... you need to wait for pathology, and a firm diagnosis.

CLL can transform to diffuse large B cell Lymphoma or Hodgkin's or PLL, but it is fairly rare.

It happened to me ... and chemo and radiotherapy, cured it 5 years ago...

Please let us know the outcome of your biopsy...

~chris

Huzzy profile image
Huzzy in reply toCllcanada

Thanks Chris. Not sure how long a wait but stressful waiting!

Cllcanada profile image
CllcanadaTop Poster CURE Hero in reply toHuzzy

Boy..I know... it took about 5 days as I recall... if you don't hear anything in 7 days contact your doctor...

~chris

Huzzy profile image
Huzzy in reply toCllcanada

Thanks

wwward profile image
wwward in reply toHuzzy

Hang in there!

wwward profile image
wwward in reply towwward

Could there be anything worse? Very difficult etc khvhnothing.

claire2017 profile image
claire2017

Hi Huzzy - Did they remove the entire node for the biopsy? That's the best way to get an accurate diagnosis. Because of my nodes, mine is SLL instead of CLL. Hopefully that's all yours is too. Keep us posted.

Huzzy profile image
Huzzy in reply toclaire2017

They took part of it. Since then it seems “angry” and is bigger😩. Not sure why they choose not to take all. She said it didn’t look like CLL but “another” cancer. Very nervous

claire2017 profile image
claire2017

Huzzy - Any updates on the results of your biopsy? Hope you're doing well.

Huzzy profile image
Huzzy

Thanks. Squamous cell carcinoma. “Hiding” somewhere in neck/throat area. MRI and endoscopy with biopsies in the next two weeks. They were hoping it was the CLL. Not sure which is worse😵

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