Today is my first day without taking Ibrutinib since April 2, 2017. Last November my company made the decision to change insurance providers. Meanwhile, in late November when I received my December supply of IB I noticed the pharmacy had slipped a yellow piece of paper with a note reminding people with insurance changes to call asap to get insurance information updated so there wouldn't be any interruption in the distribution of IB.
After open enrollment was completed we received our new insurance cards. The day after receiving my card (December 20th) I called the pharmacy and provided all of the required insurance information. And, I assumed that I'd done my part.
On January 16th I received a call from the pharmacy and scheduled a day for my next 30 day supply of IB to be delivered on Friday. However, the next day I received another call from the pharmacy reporting that my insurance company had not approved this prescription. They told me they'd contact my insurance company and get the situation resolved.
On January 23rd I received another call from the pharmacy to schedule my delivery for Friday the 28th. On Thursday the pharmacy called to tell me that my insurance company still hadn't approved my subscription.
My next step was to call the insurance company to figure what was going on. The pharmacy services support person reported to me that they hadn't received any notification/request from my doctor. So, I asked her if anybody had taken the time to contact my doctor? She said no, that hadn't happened yet. She then put me on hold and contacted my doctor's assistant.
Later in the evening my doctor called me to let me know all the required paperwork had been completed and submitted to the insurance company. He also told me that I would have to go several days without IB.
My experience with CLL is that I have no control over how this disease is going to behave. This experience reminded me that while I thought I'd done everything necessary that I have no control over whether or not people on the other end are going to perform their jobs.