Pleasure to be with all of you

[Deta1961]

Hello from Portugal... I've been diagnosed with CLL since 2000. I've been treated with different drugs for all these years, now, i'm since aug 2017 treated first with Ciclofosfamida and now, since November with IBRUTINIB.

It's a pleasure to be with all of you with the same disease and change experiences .

Thanks

[Newdawn Administrator]

A warm welcome to you Deta from beautiful Portugal. I’ve enjoyed visiting the Algarve area for holidays.

Good to hear you’ve managed to access Ibrutinib there and hope you’re not suffering any side effects.

It’s a pleasure to have you join us despite the circumstances.

Regards,

Newdawn

[Deta1961 in reply to Newdawn]

Yes aclot of effects.. Bone pain, a lot of it. I had to stop ibrutinib last week because of neutrophilis alteration, took filgrastim, injections, and yesterday everything was normal, start ibrutinib again today (waiting for aches, pain)

[Deta1961]

Forgot to tell you that I Have mutation PT53 anyone else with it? I bit scared about it

[MsChief]

Greetings from Connecticut, USA, in Ibrutinib 13 months. Patient of Dr. Syed Bilgrami, St. Francis Hospital, Hartfird and Dr. Jennifer Brown, Dana Farber in Boston. Stay the course. Best Wishes to you. 😊

[Deta1961 in reply to MsChief]

Effects? Do you still have them? Just like in the beginning? Thanks

[Firefly14]

Greetings from Ireland, I too am lucky to holiday on the Algarve every summer! Wishing you luck with ibrutinib, let us know how you get on.

Best wishes

Firefly