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CLL Support

22,612 members • 38,833 posts

All posts for December 2016

Imbruvica

Starting it next month.can u get this through the pharmacy or is it a special delivery?

Starting it next month.can u get this through the pharmacy or is it a special de...

tsl9381

•7 years ago

8 Replies

Rheumatoid arthritis steroid injections impact on cll

I have recently had steroid injections for my back pain and was told it impacts my blood counts, anyone familiar with this? How long does the impact last?

I have recently had steroid injections for my back pain and was told it impacts ...

Hidden

•7 years ago

8 Replies

From bombs to bananas: A dose of radiation reality

'It's easy to be worried about radiation in a way that we aren't about other environmental hazards. Radiation is tasteless, odorless, and, except in the...

'It's easy to be worried about radiation in a way that we aren't about other env...

AussieNeil

Founder Admin•7 years ago

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Why artificial intelligence has not revolutionised healthcare… yet

'Artificial intelligence and machine learning are predicted to be part of the next industrial revolution and could help business and industry save billions...

'Artificial intelligence and machine learning are predicted to be part of the ne...

AussieNeil

Founder Admin•7 years ago

5 Replies

4 month check-up!!!

Had my 4 month check-in and my WBCs down to 10.7! I am so excited!!! Let's all pray that this Imbruvica keeps on whipping the bad cells. Still having fatigue...

Had my 4 month check-in and my WBCs down to 10.7! I am so excited!!! Let's all ...

PThomas

•7 years ago

9 Replies

Why iron is such an important part of your diet

Anaemia can often develop with CLL, both during Watch and Wait (haemoglobin falling under 10/100 is one of the triggers for starting treatment), and during...

Anaemia can often develop with CLL, both during Watch and Wait (haemoglobin fall...

AussieNeil

Founder Admin•7 years ago

27 Replies

Fighting the fight.

Hello, fellow travelers. I live in NM/USA and have just found my way to this site. I was diagnosed in June, 2012, W&W since June of that year. Have not yet...

Hello, fellow travelers. I live in NM/USA and have just found my way to this si...

Hidden

•7 years ago

14 Replies

New Practical Approaches to Chemotherapy-Induced Neuropathic Pain: Prevention, Assessment, and Treatment

'Chemotherapy-induced peripheral neuropathy (CIPN) is one of the most disabling and demoralizing problems that arise for cancer survivors. When...

'Chemotherapy-induced peripheral neuropathy (CIPN) is one of the most disabling ...

AussieNeil

Founder Admin•7 years ago

5 Replies

FCR/UNmutated IGVH

Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in...

Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask pleas...

YjbCLL

•7 years ago

41 Replies

Jeff Sharman - ASH 2016 with Patient Power

'Just back from ASH 2016. Plenty of interesting things to discuss. I did a sit down visit with Andrew Schorr of PatientPower where we filmed this 45...

'Just back from ASH 2016. Plenty of interesting things to discuss. I did a si...

AussieNeil

Founder Admin•7 years ago

6 Replies

Hemoglobin

Self test for hemoglobin levels

Navigator52158

•7 years ago

7 Replies

Holiday Parties and low IGs

My IGs are low enough that I've started IVIG infusions. Do others like me avoid kissy huggy holiday parties. (Finally an excuse to be antisocial) john

My IGs are low enough that I've started IVIG infusions. Do others like me avoid ...

johnl

•7 years ago

13 Replies

Help

Hi ive got allergic rhinitis which ive had now for most of the year am on fexofenadine n nose spray which not not seem to work dose anyone know what else i can...

Hi ive got allergic rhinitis which ive had now for most of the year am on fexofe...

vince666

•7 years ago

9 Replies

Health Check: do home remedies for common warts really work?

Rodney Sinclair, Professor of Dermatology, University of Melbourne and William Cranwell, Doctor, Melbourne Health look at the evidence:...

Rodney Sinclair, Professor of Dermatology, University of Melbourne and William C...

AussieNeil

Founder Admin•7 years ago

9 Replies

Which sports are best for health and long life? We know exercise improves our quality of life, now research shows which exercise.

'To strengthen the evidence on health benefits of six common sport disciplines – aerobics, cycling, football, racquet sports, running and swimming – we...

'To strengthen the evidence on health benefits of six common sport disciplines –...

AussieNeil

Founder Admin•7 years ago

15 Replies

Acalabrutinib Safe, Effective in Ibrutinib-Intolerant CLL/SLL

“Based on these preliminary findings, we feel that acalabrutinib has promising activity in this group of patients, and safety, and it’s effective very quickly...

“Based on these preliminary findings, we feel that acalabrutinib has promising a...

Justasheet1

•7 years ago

3 Replies

Long term Ibrutinib data:This deserves mentioning again 😃

http://www.onclive.com/conference-coverage/ash-2016/after-5-years-of-followup-ibrutinib-continues-to-impress-in-cllsll Jeff

http://www.onclive.com/conference-coverage/ash-2016/after-5-years-of-followup-ib...

Justasheet1

•7 years ago

2 Replies

TGR-1202/Ibrutinib Combo Feasible, Highly Active for CLL

"We report to our knowledge the first clinical data on a PI3 kinase plus BTK inhibitor doublet in B cell malignancies. The preliminary efficacy results...

"We report to our knowledge the first clinical data on a PI3 kinase plus BTK inh...

Justasheet1

•7 years ago

4 Replies

New to site looking for advice.

Hi new to this site. When does the doctor decide to treat you if you have cll/all with 13 q My husband tried to get in a clinical trial with acp196....

Hi new to this site. When does the doctor decide to treat you if you have cll/al...

120940

•7 years ago

8 Replies

UPDATE ON BODY CRAMS

Hello Everyone, Post eight months. Still in the yoga class, have learned the routine, enjoying it very much, body cramping is at a minimum. Believing since I...

Hello Everyone, Post eight months. Still in the yoga class, have learned the ro...

JayceeD

•7 years ago

8 Replies

The Importance of Genetic Testing before Treatment

Today a total stranger thanked me at ASH 2016 for saving his 44 year cousin's life because he had found on our website an interview with Dr. Byrd on the...

Today a total stranger thanked me at ASH 2016 for saving his 44 year cousin's li...

bkoffman

CLL CURE Hero•7 years ago

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Swelling by my collarbone

Hello CLL friends, I noticed yesterday swelling on both sides of my lower neck and just above my collarbone. It wasn't visible in the mirror yesterday, but...

Hello CLL friends, I noticed yesterday swelling on both sides of my lower neck a...

MichelleM61

•7 years ago

20 Replies

Low phosphate levels

just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far...

just completed round 1 of FCR ,and so far so good!! The only worry is low phosph...

Megellen

•7 years ago

2 Replies

Ibrutinib cost/private insurance

Anyone with US based private insurance paying for ibrutinib? Can you say anything about the cost?

Anyone with US based private insurance paying for ibrutinib? Can you say anythin...

YjbCLL

•7 years ago

17 Replies

Carry on CLLERS go dating...With Bethan and Nic!

Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load...

Hi everyone! This site has been an amazing resource for us this year; a place o...

Bethan49

•7 years ago

26 Replies

Marmalade and other citrus fruits

Those like me taking ibrutinib are advised to avoid grapefruit and Seville oranges. The patient information sheet is very clear on this point. But does anyone...

Those like me taking ibrutinib are advised to avoid grapefruit and Seville orang...

quizzical

•7 years ago

5 Replies

I rang that bell loud and clear ... Then breathed. FCR over!

A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of...

A week ago today I dressed up in my lovely blue dress and new polka dress shoes ...

Bethan49

•7 years ago

28 Replies

Painful scalp during chemo

I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However,...

I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunate...

Grannajan

•7 years ago

2 Replies

Facebook Live on Genetic Testing in CLL this Sunday, Dec. 4th at 10:30 AM Pacific Time at https://www.facebook.com/CLLsociety/

I am very grateful and a little nervous to not only be presenting our original research (Factors That Influence Patient Treatment Decision Making in the Era of...

I am very grateful and a little nervous to not only be presenting our original r...

bkoffman

CLL CURE Hero•7 years ago

Be the first to reply

Waldenstroms

I have waldenstroms and going to start imbruvica after two years of immunotherapy.A y thoughts or experiences?

I have waldenstroms and going to start imbruvica after two years of immunotherap...

tsl9381

•7 years ago

10 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2016

Imbruvica

Rheumatoid arthritis steroid injections impact on cll

From bombs to bananas: A dose of radiation reality

Why artificial intelligence has not revolutionised healthcare… yet

4 month check-up!!!

Why iron is such an important part of your diet

Fighting the fight.

New Practical Approaches to Chemotherapy-Induced Neuropathic Pain: Prevention, Assessment, and Treatment

FCR/UNmutated IGVH

Jeff Sharman - ASH 2016 with Patient Power

Hemoglobin

Holiday Parties and low IGs

Help

Health Check: do home remedies for common warts really work?

Which sports are best for health and long life? We know exercise improves our quality of life, now research shows which exercise.

Acalabrutinib Safe, Effective in Ibrutinib-Intolerant CLL/SLL

Long term Ibrutinib data:This deserves mentioning again 😃

TGR-1202/Ibrutinib Combo Feasible, Highly Active for CLL

New to site looking for advice.

UPDATE ON BODY CRAMS

The Importance of Genetic Testing before Treatment

Swelling by my collarbone

Low phosphate levels

Ibrutinib cost/private insurance

Carry on CLLERS go dating...With Bethan and Nic!

Marmalade and other citrus fruits

I rang that bell loud and clear ... Then breathed. FCR over!

Painful scalp during chemo

Facebook Live on Genetic Testing in CLL this Sunday, Dec. 4th at 10:30 AM Pacific Time at https://www.facebook.com/CLLsociety/

Waldenstroms

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