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CLL Support

22,529 members • 38,699 posts

All posts for December 2016

After Ibrutinib failure, lymphocytes up again. Maybe another trial with Idealisib

Now 8 months since I had to stop the FLAIR trial of Ibrutinib and Rituximab due to side effects (severe and debilitating muscle and joint pain) I have been...

Now 8 months since I had to stop the FLAIR trial of Ibrutinib and Rituximab due ...

romarin

•7 years ago

9 Replies

For life-saving blood purification, magnets may trump antibiotics

'Although over half of all cases of blood poisoning prove fatal, the condition can be cured if caught early. That's why doctors typically start...

'Although over half of all cases of blood poisoning prove fatal, the condition c...

AussieNeil

Administrator•7 years ago

3 Replies

Virus DNA in sewers may keep people from getting sick

'When a virus such as the flu is going around, the earlier it's detected, the better prepared that health agencies can be. It's with this in mind that...

'When a virus such as the flu is going around, the earlier it's detected, the be...

AussieNeil

Administrator•7 years ago

1 Reply

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11q CLL FCR hope

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5111525/

Hidden

•7 years ago

20 Replies

Are UTI's more common while on Imbruvica?

I'm experiencing some UTI symptoms and wonder if this happens more often with CLL patients, or more specific, those taking Imbruvica?

I'm experiencing some UTI symptoms and wonder if this happens more often with CL...

tthomp436

•7 years ago

13 Replies

? Need to start treatment

I was diagnosed with CLL in May 2016, at age 57, at the time my WBC's were 17. I too was placed on wait and watch and given the impression treatment would be...

I was diagnosed with CLL in May 2016, at age 57, at the time my WBC's were 17. I...

cahrmlo1

•7 years ago

8 Replies

11q hope

11q (16%) unmutated young and fit started FCR

Hidden

•7 years ago

3 Replies

Back on the Road

Hi All I shall be back on the road next year cycling Daventry to Paris we will arrive in Paris in time to see the Tour de France finish on the Sunday....

Hi All I shall be back on the road next year cycling Daventry to Paris we will ...

TheFlyer

•7 years ago

6 Replies

Zero neutrophils.

Dad now seems to be needing blood transfusions every couple of weeks. Low red cells. Progression of his cll. In hospital today getting a transfusion, last...

Dad now seems to be needing blood transfusions every couple of weeks. Low red ce...

Fightingwithdad

•7 years ago

10 Replies

Very Delayed Cycle 7 OSU Trial Update

I am back safe and sound from another uneventful trip to OSU. Just one more cycle of obinutuzumab (the IV-based treatment) to go. Then, I return for mid-trial...

I am back safe and sound from another uneventful trip to OSU. Just one more cycl...

thompsonellen

•7 years ago

15 Replies

Sudden appearance of swollen lymph node in neck. Advise/info requested

Greetings Friends,l I am a 56 yo male who has been on watch and wait since diagnosis about 2.5 years ago. All OK so far except fatigue and cramps. Tonight...

Greetings Friends,l I am a 56 yo male who has been on watch and wait since diag...

OzzieNick

•7 years ago

18 Replies

Treating the Patient, Not the Disease - Humanism and Professionalism in the Era of the Electronic Medical Record

I know this ASH interview with Fred Schiffman, MD will resonate with many, in particular those whose specialists have more time for their computer monitor than...

I know this ASH interview with Fred Schiffman, MD will resonate with many, in pa...

AussieNeil

Administrator•7 years ago

Be the first to reply

Do I need a new Job?

I currently run a lab in a pediatricians office and am always in contact with these kids with mutant strong germs! I draw their blood and am frequently in...

I currently run a lab in a pediatricians office and am always in contact with t...

CLLkid

•7 years ago

2 Replies

Diagnosed with CLL in August 2016

I was diagnosed with CLL in August with W&W. thank goodness I found this wonderful, informative site. I have learnt so much which makes me far less stressed....

I was diagnosed with CLL in August with W&W. thank goodness I found this wonder...

Yelverton

•7 years ago

9 Replies

Sciatica

Has any one had bilateral sciatica from enlarged lymph nodes

Turtlephi

•7 years ago

5 Replies

Thanks For The Welcome!

Thanks for the welcome, guys. I was diagnosed with CLL early this year. Recently noticed I seem to catch every bug that goes by. We have 2 small...

Thanks for the welcome, guys. I was diagnosed with CLL early this year. Recent...

Ed_Ward

•7 years ago

8 Replies

CLL early diagnosis

My CLL is in its early stages. Diagnosed in early 2016 because of repeated high white blood cell counts. So far few if any symptoms and no treatment.

My CLL is in its early stages. Diagnosed in early 2016 because of repeated high...

Ed_Ward

•7 years ago

4 Replies

mmrv vaccination

My granddaughter (Eden) is due to have her mmrv vaccination soon, and my daughter was told to keep Eden away from people whose immune systems are weakened....

My granddaughter (Eden) is due to have her mmrv vaccination soon, and my daughte...

Safta

•7 years ago

4 Replies

CLL and vaccinations

I'm on w/w......it's been 1 year. I may never need treatment......but still stress on it....I read different opinions on whether or not to get...

I'm on w/w......it's been 1 year. I may never need treatment......but still str...

mamajama

•7 years ago

8 Replies

How remission is decided...

The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan...

The nutcase in me is rearing her ugly head again! I saw my consultant last week,...

Bethan49

•7 years ago

23 Replies

Biopsy results

Hi everyone This is my first post and I would like some help if possible please. I have been on wait and watch for the last 5 years and my blood test results...

Hi everyone This is my first post and I would like some help if possible please....

terrence

•7 years ago

5 Replies

Sudden nausia

Cll and et, on hydroxyurea for high platelets(Et)... Every once in a while I get sudden nausia, only lasts maybe 5 mins. I try to stay hydrated but wondered if...

Cll and et, on hydroxyurea for high platelets(Et)... Every once in a while I get...

kitcat49

•7 years ago

4 Replies

Immunoglobulin infusion

I'm going to have one of these soon. How will I be the next morning?

Corin850

•7 years ago

14 Replies

MRD Negative in the Bone Marrow - clinical trial update

Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory...

Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax...

Debinoz

•7 years ago

23 Replies

How HIV’s evasion tactics could help fight the flu

'There is now an intense effort to find unique antibodies that can overcome the evasion techniques of influenza, malaria, dengue and hepatitis C. To do...

'There is now an intense effort to find unique antibodies that can overcome the ...

AussieNeil

Administrator•7 years ago

Be the first to reply

CLL watch and wait, exposure to chicken pox

Hi, I'm in WW, diagnosed 5 years ago, my cell counts around 50, I'm 52, apart from a bout of pneumonia which led to the diagnosis I've not really had any...

Hi, I'm in WW, diagnosed 5 years ago, my cell counts around 50, I'm 52, apart f...

Keepskiing

•7 years ago

4 Replies

Open heart surgery since 2012 and cll

Hi I'm a 52 year old that had open heart surgery in 2013 for an aortic valve replacement. A year later I was diagnosed with CLL. There has recently been a...

Hi I'm a 52 year old that had open heart surgery in 2013 for an aortic valve rep...

BarbaraA2

•7 years ago

5 Replies

GOING THROUGH TREATMENT DURING WINTER/holidays

Approaching treatment and holidays at the same time poses different, additional issues. Some are medical, others social/ emotional. No doubt, facing any...

Approaching treatment and holidays at the same time poses different, additional ...

lapermone

•7 years ago

4 Replies

Molecular remission after 6 rounds of FCR

Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular...

Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to ha...

ucallihaul

•7 years ago

13 Replies

A USA fellow traveller

Kudos to you Brits for the insight to give to each other this marvelous care and concern! You have a much better sense that we are all one in the struggles of...

Kudos to you Brits for the insight to give to each other this marvelous care and...

Agiledog

•7 years ago

2 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for December 2016

After Ibrutinib failure, lymphocytes up again. Maybe another trial with Idealisib

For life-saving blood purification, magnets may trump antibiotics

Virus DNA in sewers may keep people from getting sick

11q CLL FCR hope

Are UTI's more common while on Imbruvica?

? Need to start treatment

11q hope

Back on the Road

Zero neutrophils.

Very Delayed Cycle 7 OSU Trial Update

Sudden appearance of swollen lymph node in neck. Advise/info requested

Treating the Patient, Not the Disease - Humanism and Professionalism in the Era of the Electronic Medical Record

Do I need a new Job?

Diagnosed with CLL in August 2016

Sciatica

Thanks For The Welcome!

CLL early diagnosis

mmrv vaccination

CLL and vaccinations

How remission is decided...

Biopsy results

Sudden nausia

Immunoglobulin infusion

MRD Negative in the Bone Marrow - clinical trial update

How HIV’s evasion tactics could help fight the flu

CLL watch and wait, exposure to chicken pox

Open heart surgery since 2012 and cll

GOING THROUGH TREATMENT DURING WINTER/holidays

Molecular remission after 6 rounds of FCR

A USA fellow traveller

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