I rang that bell loud and clear ... Then breat... - CLL Support

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I rang that bell loud and clear ... Then breathed. FCR over!

Bethan49 profile image
28 Replies

A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr.

The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last round... even the cleaner who then gave me the biggest hug! The infusion was slow and I watched it drip in ...knowing it had had good effect.

At about 2.00pm my eldest son turned up to support me and hubby... and celebrate the last round. This set the water works away! 45 mins later I was finished... ready to leave... To step back into life. As I left the nursing team escorted me to THE BELL..Where I stood and rang it as loudly as I could. chemo complete !

What a 6 months. ... I am pulling round nicely after those disgusting chemo tablet's. I am going to take things easy.. recover from this round and take care knowing I will be neutropenic for a good part of the month.

My consultant is delighted with the results... Having had a scan after round 4 . so much so he is not repeating the scan as the results couldn't have been better! I have lots of questions but for now I am breathing in and slowly breathing out... thankful and grateful for so much... x

BCpsych

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Bethan49 profile image
Bethan49
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28 Replies
Newdawn profile image
NewdawnAdministrator

I'm absolutely elated and relieved for you Bethan! May the remission last so long you barely remember the experience! (Some chance but you know what I mean!

My smile assured now for Friday :-)

Newdawn

PaulaS profile image
PaulaSVolunteer

GREAT news, Bethan! I love the way you describe it - I can feel your elation and wonderful sense of achievement! :-)

I love the bell and inscription too!

Wishing you all the best for this new stage in your life... Onwards and upwards... :-)

Paula

Loves2walk profile image
Loves2walk

What a wonderful post! I had a moment of "water works" myself reading it.

Wishing you a long long long remission!

(And what an amazing family you have!)

Justasheet1 profile image
Justasheet1

❤️❤️😎😎😎🍷🍷🍷🍻🍻🍻🎉🎉🎉💃💃💃💃💃💃🍾🍾🍾🍾👏🏻👏🏻👏🏻👏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻😃😃😃😃😃😃

Jeff

Foggymind profile image
Foggymind

Congratulations and best wishes to you Bethan, hoping you have a long and healthy remission to look forward to.

Kevin - Essex, UK

BellaBee10 profile image
BellaBee10

So grateful to have gone through treatment with you Bethan.

The best side of social media.

Congratulations you.

Xxxx

serendipity1 profile image
serendipity1

Very happy and pleased for you Bethan49 . Fabulous news.

Merry Christmas and hope you all have a great one and have an extra celebration and raise a toast.

:-)

MF79 profile image
MF79

Well done, you made it through the course. Here's to a long remission and have a great Christmas.

London_Girl profile image
London_Girl

Yay !...Fantastic

That bell is brilliant, I want one at our hospital! How lovely that your son turned up!

I've smudged my mascara reading your post 😊. By way of celebration I will have a glass of wine!..or 3 😉

Cheers 🍸🍸🍸

Maria xx

Peggy4 profile image
Peggy4

Ding Dong!!!!! What better christmas present?! We share your joy 😀

Peggy

prosecco1 profile image
prosecco1

Congratulations on finishing your treatment, you must be ecstatic 😀

Enjoy the festive season

All my best wishes

Elle xx

ap64 profile image
ap64

Great news. Love the bell.

Bubnojay profile image
Bubnojay

YIPPEE can't tell you how pleased I am for you, off to go skipping around mentally cheering loudly for you.

Well done 👍🏿 🔅🔔🔔🔔🔔🔔🔔🔔

Bubnjay1

sue2412 profile image
sue2412

Congratulations, fabulous news. Have a wonderful Christmas 🎄🎁🎉🍷🍸❤️🍰

Newcastle1962 profile image
Newcastle1962

Thats great news. I hope you can enjoy chrisrmas with renewed vigour. I am newly diagnosed and your posts have really inspired and helped me. You mention you have children. Can i ask how did you tell them about Cll. I also have children but havent tole them yet. Any tips?

Bethan49 profile image
Bethan49 in reply toNewcastle1962

Bless you.. its crap . The hardest thing to do...BUT...It is not terminal . ..

I used words like blood disorder... leukaemia . . treatable . .. chronic which means I will have to live with it...

My kids are adults but it was horrible however the more honest you are the better. I hate the word cancer di use leukaemia instead.

Don't be scared to cry let them cry too . .. crying now and feeling your pain . Here for you xxx

I'm in Sunderland . :) let's not talk footy !

Newcastle1962 profile image
Newcastle1962 in reply toBethan49

Ha ha thanks. im a geordie born and bred but now live in leicestershire. My goal is to return to the north east im originally from the blaydon area. thanks for that my -children are 12 / 16/ 21. im also a single parent so worry if anything happens. i feel its unfair to tell my oldest who is a student as it may overburden her. the one who is 16 has gcses this summer. never a good time.

Bethan49 profile image
Bethan49 in reply toNewcastle1962

No but you need support. One of my son's in Leicester . Do it ... In your own time x

Newcastle1962 profile image
Newcastle1962 in reply toBethan49

Thanks. hope he is enjoying his time here. ive been here for 30years. leicester is up and coming the city has improved a lot and has a nice feeling, lots near. i do miss the coast though amble to bamburghx

scarletnoir profile image
scarletnoir

Excellent news - congratulations!

I like the idea of the bell - I wonder if any other centres do this?

I wonder what our 'resident experts' think about having 6 rounds, when apparently all was well after 4 - do centres always give the 'full treatment', or can they stop it if they feel the response is already good enough? I have no idea how these decisions are taken.

Bethan49 profile image
Bethan49 in reply toscarletnoir

I know exactly what you mean..I questioned the rounds but was persuaded ... deeper remission

scarletnoir profile image
scarletnoir in reply toBethan49

I'm sure the experts know what they're doing. I was only offered - and had - 4 rounds of BR, but maybe that's different to FCR for some reason... in any case I'm 4 years into a complete remission - hope you have excellent results too!

pkpayne profile image
pkpayne

Great news Bethan! Every hospital in our area has a 'bell' for cancer patients. I was with my neighbor in for treatment the other day and we heard the bell ring. The whole place broke into applause. We all knew what that meant! Merry Christmas to you all.

Tanta44 profile image
Tanta44

Congratulations for having completed the course and having rung the bell!

HAIRBEAR_UK profile image
HAIRBEAR_UKFounder Admin

Congratulations and jingle bells , what a great way to start the new year, best wishes for a strong and long remission, hope you can put it behind you and all counts soon rally ,you have inspired me as I start out, thanks for sharing with us all , Merry Christmas

Ruhi9 profile image
Ruhi9

Wonderful news! And I love the bell! Stay well and enjoy the Festive Season x

L_MP8 profile image
L_MP8

Big Congratulations to you Bethan!

I am just coming out of the fog of those disgusting chemo tablets and the reality that I'm all done is starting to sink in. It a great feeling!

Best wishes

Lucy xx

starsafta profile image
starsafta

Big beautiful loud round of the Hallelujah Chorus to you!

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