CLL Support Association

Week 2 at OSU Trial

Hi everyone,

Today, I was back in Columbus for week 2, and the first full 1000 mg infusions of obinutuzumab. They only gave me 2 of the 5 "pre-medications" because I tolerated the drug so well the first week. The only side effect was the benadryl made me drowsy.

My counts were (before today's infusion):

White Blood Count 14 down from 92 last Tues (normal high 11)

Red Blood Count 3.31 down from 3.39 last Tues, but up from Wed (normal low 3.8)

Hemoglobin 9.8, slightly up from 9.7 last Tues, but up from Wed (normal low 11.7)

Platelets 165, down from 179 last Tues but up from last Wed (normal low 150)

Absolute Lymphocytes 10.92, down from 82.80 last Tues.

My liver continues to work overtime to get all these toxins out of my system, and while still high, the counts are way better than last week. It's harder than I thought it would be to stay hydrated.

My lymph nodes also continue to recede nicely. Needless to say, everyone is pretty happy so far, including Dr. Byrd who stopped by briefly.

Last week, I felt really good the first couple of days I was home, but was quite fatigued over the weekend. I'm hoping that it doesn't hit me that hard again.

Speaking of potentially tiring situations, I made it out today in record time only to find out my flight was cancelled, so I'm on a 5:40 am flight tomorrow. I'm not looking forward to waking up at 4.

That's all for now. Looks like these posts may get a little boring if they are filled with mostly good news, but in the hopes it helps someone, I'll keep posting.

And as always, let me know if you have any questions.

Ellen

17 Replies
oldestnewest

Great results, Ellen! Keep those "boring" good news stories coming!! ☺

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Boring is good Ellen. It's great news that you are doing so well. Stay strong. Sally

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Good news is never boring Ellen. Hope you caught the flight ok.

Sue

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Good results Ellen, we like to hear good news! Terry

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Happy for you hang in there

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So happy you have "boring" news! Sorry about the flight situation. I'm sure you are looking forward to getting home!

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Great News! Except for the weekend fatigue. I suspect you are in transit to your airplane at this time (4:38 right now). All the best!

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Yes. Just got on the plane!

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I'm proud of you. Safe travels too.

Jeff

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Please!!! Bore us with good news - we can take it!

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Great news for you!

All the best!

Kelly

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👍😅💃 yeah!

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Please keep posting the updates. I'm interested in your results. Thank you.

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Be well. Thank you for the updates. 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

Jeff

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Great news .Keep posting ,you can bore me anytime with news like that .👯👯👯

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Sounds good, nothing extreme!

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Always great to hear good news. Keep that positive attitude and keep posting.

Maureen

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