I keep reading of different survival times for CLL patients depending on genetic factors,response to treatment etc. What I don't understand s where they start from- diagnosis? Starting treatment.? IT can't be form when you first developed it since we don't know and I suspect I may have had it a long time.
Also supplementary to this I am puzzling over the genetic factors. I did ask my specialist but didn't really understand the answer.
I am still on W & W feeling mostly well apart from recurring indigestion...my white blood count however is increasing and am told that if it has doubled in a year treatment (FCR) would normally be recommended. So remain in state of uncertainty like so many.
I am presuming in fact that the survival time is from treatment thus prefer to put it off as long as possible. ...