Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for February 2020

Newly diagnosed

First post! My son 15 years old has been diagnosed with spinocerebellar ataxia SCA6 which seems very young according to the information I’ve been given. Is...

First post! My son 15 years old has been diagnosed with spinocerebellar ataxia S...

Princesspoppy

•4 years ago

4 Replies

VITAMINS SUPPLEMENT SUGGESTION

Can anyone suggest any supplements vitamins

Richardwgf

•4 years ago

21 Replies

Interviewees wanted - especially from Scotland. Ataxia UK research on the financial circumstances of people affected by ataxia in the UK.

As you may have seen in the Ataxia Magazine and e-news, we have commissioned independent research into the financial circumstances of people with ataxia across...

As you may have seen in the Ataxia Magazine and e-news, we have commissioned ind...

SueMillman

Partner•4 years ago

1 Reply

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Mobility Scooter

Morning, I am looking for your recommendations for a mobility scooter the one I have recently broke down the engineer said the engine is corroded (probably...

Morning, I am looking for your recommendations for a mobility scooter the one I ...

Leona89

•4 years ago

13 Replies

What do YOU think?

Hi all, firstly, I was diagnosed by Prof H, in Sheffield, back in 2014 I have SCA7. My GP when I lived near Harrogate (North Yorks) seemed keen enough, and I...

Hi all, firstly, I was diagnosed by Prof H, in Sheffield, back in 2014 I have S...

peterallison

•4 years ago

6 Replies

Feeling fed up

So yesterday my husband tells me that I need to walk more!! This is because I had a bone density scan recently and my hips aren't as solid as they should be,...

So yesterday my husband tells me that I need to walk more!! This is because I ha...

ww-wibblywobbly

•4 years ago

22 Replies

Troriluzole study

Has anyone tried this new research drug or know anything about it for treatment of SCA 6? Thanks Tina

Has anyone tried this new research drug or know anything about it for treatment ...

Mneutz

•4 years ago

2 Replies

FA

Hi everyone. I have late onset of Freidreichs Ataxia. Has anyone else got it and do you take anything that you think might help.?

Hi everyone. I have late onset of Freidreichs Ataxia. Has anyone else got it and...

turner47

•4 years ago

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So many visits😳

Never seen so many people since I moved into this bungalow in 2014. District Nurses, Dr’s, Occupational Therapist’s.... “I’m gonna need a bigger teapot”😂😂😂...

Never seen so many people since I moved into this bungalow in 2014. District Nur...

Hidden

•4 years ago

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Helpful technology

In my ataxia support meeting, we had an inconclusive discussion about computer technology to help overcome the following problems - of using a keyboard when...

In my ataxia support meeting, we had an inconclusive discussion about computer t...

timk

Volunteer•4 years ago

5 Replies

Depressive episodes and Ataxia

Hello All, Does anyone have experience of this?I have been diagnosed with depression and depressive episodes that lead me into dangerous situations. I've been...

Hello All, Does anyone have experience of this?I have been diagnosed with depre...

planetzed

•4 years ago

21 Replies

Tumeric

My wife & I have been talking about ‘Tumeric’ tablets and their benefit. Has anyone on here had any experience?

My wife & I have been talking about ‘Tumeric’ tablets and their benefit. Has any...

Vert

•4 years ago

5 Replies

Brain Fuzz

Was in bed trying to sleep but woke up convinced I was in hospital being zapped😳 people all round me, bright lights, then nothing, just my bedroom. Weird or...

Was in bed trying to sleep but woke up convinced I was in hospital being zapped�...

Hidden

•4 years ago

3 Replies

I have no questions atm - My Rap

I have no questions atm I want to rap but my voice has detorioted over the years but I can still write o want you guys to listen and tell me what you think....

I have no questions atm I want to rap but my voice has detorioted over the years...

illerpath

•4 years ago

14 Replies

Interview

I am looking for a new career following redundancy. I have Cerebellar Ataxia and wondered if you would disclose to any potential employers at interview stage

I am looking for a new career following redundancy. I have Cerebellar Ataxia and...

Mitch9667

•4 years ago

16 Replies

Couch to 5K.

I was inundated with postings on the Couch to 5K group after being co-opted on to their group because long ago I identified Health & Fitness as being an...

I was inundated with postings on the Couch to 5K group after being co-opted on t...

woody1404

•4 years ago

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for February 2020

Newly diagnosed

VITAMINS SUPPLEMENT SUGGESTION

Interviewees wanted - especially from Scotland. Ataxia UK research on the financial circumstances of people affected by ataxia in the UK.

Mobility Scooter

What do YOU think?

Feeling fed up

Troriluzole study

FA

So many visits😳

Helpful technology

Depressive episodes and Ataxia

Tumeric

Brain Fuzz

I have no questions atm - My Rap

Interview

Couch to 5K.

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive