VITAMINS SUPPLEMENT SUGGESTION: Can anyone... - Ataxia UK

Ataxia UK
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VITAMINS SUPPLEMENT SUGGESTION

Richardwgf
Richardwgf

Can anyone suggest any supplements vitamins

21 Replies
oldestnewest

hi, Richard,

I take b1 and b12 jabs once a week, they seem help.

Thanks we're do you get the injections? GP or Hospital.

I take CO Q10 (Co-Enzyme Q10) capsules. The body ready form - Ubiquinol. Gives energy to each cell. Take a look on line.

B vitamins (especially B12) are good too.

I try various supplements such as Q10 and HTP for energy levels but cant say I have found any great difference. I always take vit C and multi vit and mineral plus a multi B vit,

I take vitamin b12. It can be taken orally or injected. I take it orally.

I get it from my GP

Is the GP stronger doze?

I think so.

Thanks

I have B12 injections privately because unable to get them on the NHS, although my neurologist agrees that they help.

Richardwgf
Richardwgf
in reply to cocoa

How much are the😃

Frequency is weekly

Is it just B12

cocoa
cocoa
in reply to Richardwgf

I pay £25 but don't go every week. This is just for a B12 injection.

Richardwgf
Richardwgf
in reply to cocoa

Great how often?

cocoa
cocoa
in reply to Richardwgf

There is a lot of information on B12 deficiency on healthunlocked.com/pasoc

Frequency seems to vary from person to person

Richardwgf
Richardwgf
in reply to cocoa

Great noted I'm reading

Marz
Marz
in reply to Richardwgf

I have a B12 issue due to surgery - no Terminal Ileum ...

You can buy Jarrow B12 Methylcobalamin Lozenges to dissolve under the tongue from Amazon. 5000mcg and 1000mcg. I would advise having a test first to check your level - if it is below 500 then take the 5000mcg. If it is VERY low in the range - or even below - then you should have B12 injections on the NHS. There are Guidelines that should be followed by your GP ...

CLICK ON SUNVOX ON THIS SITE. HE HAS STOPPED HIS SYMPTOMS, SCA1, WITH A REGIMEN OF SUPPLEMENTS, EXERCISE AND INTERMITTENT FASTING. HE IS A CHEMIST AND LINKS ALL OF WHAT HE IS TAKING TO EVIDENCE-BASED STUDIES.

Richardwgf
Richardwgf
in reply to swtb

Hi do you have the address please!

swtb
swtb
in reply to Richardwgf

THIS SITE IS POSTED FOR PTSD AND ATAXIA. FIND POSTS FOR ATAXIA BY SUNVOX ON THIS SITE, CLICK ON THIS USER NAME.

sunvox
sunvox
in reply to Richardwgf

Hi Richard -

Just click on these two links:

healthunlocked.com/ataxia-u...

healthunlocked.com/user/sunvox

Of all the vitamins and supplements I take I believe the 3 most important are:

1) trehalose - I take 2 heaping tablespoons in coffee every morning. Trehalose is a type of sugar substitute. One can buy it in the U.K. through this website:

trehalose.co.uk

2) Niagen - This is an expensive form of vitamin B3. One MUST understand that Niagen is NOT like other older forms of vitamin B3. It has some VERY different chemical properties. Niagen is currently in clinical trials being studied as an aide for Parkinson's. I take 4 pills in the morning and 4 pills at night for a total of 1200 mg per day. This is very expensive.

3) thiamine - also known as vitamin B1. This vitamin is heavily discussed over on the Parkinson's discussion here on Health Unlocked. Many people with Parkinson's report improvement in their symptoms after taking 2,3, or 4 g per day. I take 2.5 g. That is 5 pills of vitamin B1 every morning. Thiamine is very cheap.

BUT . . .

I also believe the single best treatment for people with ataxia is to walk on a treadmill, holding on to the rails if needed, as fast as you can for 30 minutes every day.

Richardwgf
Richardwgf
in reply to sunvox

Wow Thanks I'll digest the information

kuchee
kuchee
in reply to sunvox

Hi Joe,

Since Niagen/TRU is very expensive, is it happened to find any less expensive substitute?

Already on your regimen a few selection, and shell revert with results after a passing a span. Trust, it would be too early to say anything.

Thanks a lot for being at forum for expert guide :):):)

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