VITAMINS SUPPLEMENT SUGGESTION: Can anyone... - Ataxia UK

Ataxia UK

4,014 members4,548 posts

VITAMINS SUPPLEMENT SUGGESTION

Richardwgf profile image
21 Replies

Can anyone suggest any supplements vitamins

Written by
Richardwgf profile image
Richardwgf
To view profiles and participate in discussions please or .
Read more about...
21 Replies
Collinhucn profile image
Collinhucn

hi, Richard,

I take b1 and b12 jabs once a week, they seem help.

Richardwgf profile image
Richardwgf in reply to Collinhucn

Thanks we're do you get the injections? GP or Hospital.

Ginger12 profile image
Ginger12

I take CO Q10 (Co-Enzyme Q10) capsules. The body ready form - Ubiquinol. Gives energy to each cell. Take a look on line.

B vitamins (especially B12) are good too.

PatsyIpswich profile image
PatsyIpswich

I try various supplements such as Q10 and HTP for energy levels but cant say I have found any great difference. I always take vit C and multi vit and mineral plus a multi B vit,

ww-wibblywobbly profile image
ww-wibblywobbly

I take vitamin b12. It can be taken orally or injected. I take it orally.

I get it from my GP

Richardwgf profile image
Richardwgf in reply to ww-wibblywobbly

Is the GP stronger doze?

ww-wibblywobbly profile image
ww-wibblywobbly

I think so.

Richardwgf profile image
Richardwgf

Thanks

cocoa profile image
cocoa

I have B12 injections privately because unable to get them on the NHS, although my neurologist agrees that they help.

Richardwgf profile image
Richardwgf in reply to cocoa

How much are the😃

Frequency is weekly

Is it just B12

cocoa profile image
cocoa in reply to Richardwgf

I pay £25 but don't go every week. This is just for a B12 injection.

Richardwgf profile image
Richardwgf in reply to cocoa

Great how often?

cocoa profile image
cocoa in reply to Richardwgf

There is a lot of information on B12 deficiency on healthunlocked.com/pasoc

Frequency seems to vary from person to person

Richardwgf profile image
Richardwgf in reply to cocoa

Great noted I'm reading

Marz profile image
Marz in reply to Richardwgf

I have a B12 issue due to surgery - no Terminal Ileum ...

You can buy Jarrow B12 Methylcobalamin Lozenges to dissolve under the tongue from Amazon. 5000mcg and 1000mcg. I would advise having a test first to check your level - if it is below 500 then take the 5000mcg. If it is VERY low in the range - or even below - then you should have B12 injections on the NHS. There are Guidelines that should be followed by your GP ...

swtb profile image
swtb

CLICK ON SUNVOX ON THIS SITE. HE HAS STOPPED HIS SYMPTOMS, SCA1, WITH A REGIMEN OF SUPPLEMENTS, EXERCISE AND INTERMITTENT FASTING. HE IS A CHEMIST AND LINKS ALL OF WHAT HE IS TAKING TO EVIDENCE-BASED STUDIES.

Richardwgf profile image
Richardwgf in reply to swtb

Hi do you have the address please!

swtb profile image
swtb in reply to Richardwgf

THIS SITE IS POSTED FOR PTSD AND ATAXIA. FIND POSTS FOR ATAXIA BY SUNVOX ON THIS SITE, CLICK ON THIS USER NAME.

sunvox profile image
sunvox in reply to Richardwgf

Hi Richard -

Just click on these two links:

healthunlocked.com/ataxia-u...

healthunlocked.com/user/sunvox

Of all the vitamins and supplements I take I believe the 3 most important are:

1) trehalose - I take 2 heaping tablespoons in coffee every morning. Trehalose is a type of sugar substitute. One can buy it in the U.K. through this website:

trehalose.co.uk

2) Niagen - This is an expensive form of vitamin B3. One MUST understand that Niagen is NOT like other older forms of vitamin B3. It has some VERY different chemical properties. Niagen is currently in clinical trials being studied as an aide for Parkinson's. I take 4 pills in the morning and 4 pills at night for a total of 1200 mg per day. This is very expensive.

3) thiamine - also known as vitamin B1. This vitamin is heavily discussed over on the Parkinson's discussion here on Health Unlocked. Many people with Parkinson's report improvement in their symptoms after taking 2,3, or 4 g per day. I take 2.5 g. That is 5 pills of vitamin B1 every morning. Thiamine is very cheap.

BUT . . .

I also believe the single best treatment for people with ataxia is to walk on a treadmill, holding on to the rails if needed, as fast as you can for 30 minutes every day.

Richardwgf profile image
Richardwgf in reply to sunvox

Wow Thanks I'll digest the information

kuchee profile image
kuchee in reply to sunvox

Hi Joe,

Since Niagen/TRU is very expensive, is it happened to find any less expensive substitute?

Already on your regimen a few selection, and shell revert with results after a passing a span. Trust, it would be too early to say anything.

Thanks a lot for being at forum for expert guide :):):)

You may also like...

Vitamins...and walking!

do to lose weight? Secondly vitamins...is there any single vitamin to take to help or just a...

Vitamin B12 and Ataxia

U.S. (I think) which, based on real research, suggests that people suffering with it take as much as

Vitamins good or bad?

Hi my husband takes vitamin d but what about c and e anyone found these help? He doesn't like taking

Sca 2 Vitamins /suplements

sca 2. I would like to know if there are some vitamins could help me ? Thank you

Vitamin deficiencies? Reversible?

HU can be so informative providing desperate people with hope that is not provided by doctors,...