Unused CalQuence and Brukinsa scripts - CLL Support

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Unused CalQuence and Brukinsa scripts

Cdub32 profile image
11 Replies

I am looking to find a meaningful way for these drugs to benefit someone in need. I cannot tolerate either one due to serious side effects. I do not want tp have them disposed of due to their crazy costs. At full dosage there is 14 days of Brukinsa and 45 days of CalQuence....

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Cdub32 profile image
Cdub32
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11 Replies
Vizilo profile image
Vizilo

Can you reach out to a local cancer support group. They may know of someone who is having a hard time paying for these meds. Worth a try!!

AussieNeil profile image
AussieNeilPartnerAdministrator

That's good of you to help others by donating what you sadly can't tolerate. Check out sirum.org/ ($10 fee) and safenetrx.org as covered in this article:

aarp.org/health/drugs-suppl...

Also check out the following charity organisations, which work in a similar fashion. Both have guidelines for safety and dispensing, including eligibility requirements for patients in need of medication:

- RemediChain donatemymeds.org based in Tennessee, but serving patients across the USA (they will email a pre-paid shipping label if the drug is acceptable).

- MediCircle medicirclerx.com

I hope that you can find something you can tolerate.

Neil

Cdub32 profile image
Cdub32 in reply toAussieNeil

Thank you for the kind thoughts...we're going to do OBI and Ven next up..I need to recover from the leg hematoma with Brukinsa.

Cdub32 profile image
Cdub32 in reply toAussieNeil

Done..heading to Wyoming tomorrow am..thanks for the help..at $20k and $15K a month..I hope individuals can be helped physically and financially.

Scotrn profile image
Scotrn in reply toCdub32

How do most people end up paying for these in the US. Many commercial insurance plans don't cover the newer drugs.

Skyshark profile image
Skyshark in reply toScotrn

There are foundations that for those with low income will pay co-pay for insured and even whole cost for uninsured.

The affordable drugs act has reduced the cost of Ibrutinib by 38%. The annual cost is still higher than the do-nut hole, patient co-pay 5%, so this is mainly of benefit to Medicare as they pay 15% above the do-nut hole.

Bobby9toes profile image
Bobby9toes in reply toSkyshark

I’m 77 and on Medicare with an advantage insurance plan. Even with that, I was paying well over $1,000 a month for Acalabrutinib. My last two months were free and will be until the end of the year. I will start over in January paying until I have paid $2,000, then free again. I believe this is a new benefit which I’m grateful for.

mcp4y2k profile image
mcp4y2k

you do know that its illegal to give away perscription meds in the usa

CaptRon1976 profile image
CaptRon1976 in reply tomcp4y2k

Best then to not to give them to a policeman or a prosecutor!

AussieNeil profile image
AussieNeilPartnerAdministrator in reply tomcp4y2k

You are correct about it being illegal to give away prescription meds - and not only in the USA but many other places. However there are legal means of doing so through charities. That's why I provided information to poster Cdub32 about those charities.

Neil

22011 profile image
22011

I couldn't tolerate the full strength ibuternib so when I immediately went down to the 140 I gave the first kit to my hematologist. They can use it for samples to see whether new patients can tolerate the drug, or give it to someone they know is having trouble paying for it. He assured me they wouldn't be selling it, they don't sell drugs out of the office anyway. What you pay in the US is totally dependent on your health insurance. My drug plan which is part of my United Health Care retiree Medicare Supplement plan charged me "only" $150 a month.

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