Spoke with Dr Sidra my haematologist yesterday. My red cells are still being destroyed more rapidly than they are replenishing. He has reduced my Imber from 329mg daily to 280 mg. I am now reducing my Prednisolone dosage on a taper every 2 weeks. Still having issues with feeling very hot and quite fatigued. I have been off work for around 4 months now so my sick pay is getting close to running out for this year. I am musing about dropping from working 5 days to 3 days per week if it is financially viable. May have to make reductions in order to do so but needs must. I have Love and strength to all. been struggling with my working hours and really need to look at the bigger picture, Health before wealth.
Update. : Spoke with Dr Sidra my haematologist... - CLL Support
Update.
Oh nooooo Jack. I am so sorry to read this. I hope the cat in the picture is giving you lots of cuddles. Did you manage to move home yet. You have sooo much going on and hope you know we are all here for you. Keep in touch. Just wish I could do something.
Hi. Yes Siren my cat is my constant companion, he keeps me going when it's tough. Hoping to move early November, I just need my former partner to stop trying to slow things down and reducing the funds owed to me for my half of the equity. Yes it's pretty tough at present but we fight on and move forward.
I hope with the decrease in medication your labs improve. It is a constant battle to work or find work we can do isn’t it? We’re the same age and I’m ready for 65, Medicare and part-time work. Hoping you can find a way to work 3 days a week. Wishing you only the best.