I have searched the site re the above and most concerns relate to cost and getting collagen from diet rather than paying large sums for a packaged preparation.
The main reason i want to take it is the hype regarding bloating, gut healing and digestive issues.
It contains collagen peptides, inulin and pea fibre .
The reason i want to take it is due to life long IBS and for the last ten years chronic and acute gastritis of stomach and duodenum. Diagnosed on regular scopes and unrelated to CLL.
Also i am virtually vegetarian with occasional fish. (yes i know the product goes against my eating habits ) I do believe the product is properly sourced.
I also have PEI, Pancreatic enzyme insufficiency. Plus nails that keep breaking.
When i have googled i have read a few articles above my level of understanding regarding collagen and cancer, and more especially effects on on blood cells.
I dont want to take something that is going to increase proliferation as my Alc has been and stayed low for five years.
Does anyone have any thoughts or knowledge in this area. I only intend to give it a two month trial but am apprehensive after having looked more into the product , to actually commence it.
Regards Paul
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paulgf54
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Hi Paul, I suspect that your diet (too much plant matter) has much to do with your IBS and gastritis. Indigestible fiber and plant matter exacerbates it. I recommend a book to read on this subject. Natasha Campbell McBride "Gut and Psychology Syndrome". It's all about gut healing. The method works a charm. The book is a page turner. Once you read it all will be clear. Good luck going forward!
Hi Leo, i have ordered a copy of the book and will read it. I did all the fodmaps with a dietician and nothing really positive eventuated except i went out shortly after to a buffet and ate large amounts cheese as they are fodmap free. That night was terrible lots bloating and trips to the toilet. Although i am on creon i still can only eat small amounts full fat cheese and oils or i suffer, including fatty floating stools . So even if i wanted to my body wouldnt be able to follow your diet. However i am interested in how it benefits you as time goes along.
My main concern was a few conflicting articles i read on the amino acids in collagens and their effects on cancers and in our case blood cells.
I'm glad you found the book. I'm sure it will help you in more than one way. How I eat is the end result of an adaptation process 🙂. You are right, most people would not be able to switch diets radically from one day to another without consequences. But if the motivation and knowledge is there, it can be done easily (not quickly). BTW I don't eat cheese. I'm convinced it facilitates prostate growth and the type of protein in it is responsible for triggering some autoimmune conditions. Not to mention it's a processed food with additives, colorants etc..Re. bloating - nobody gets bloated from eating meat. We are enzymatic meat digesters. By the time meat gets to the colon, it is brown water only. Everything is absorbed in the small intestine. The trick is to eat the fresh meat (meat products are a no,no) alone. Nothing else with it. Check out Dr. Anette Bosworth and her 3 days sardine (since you eat fish) fast vids on YT. If it doesn't fix your bloating I'll eat my hat. Good luck!
Paul, I take collagen peptides on a regular basis for my joints. The only additional ingredient in the formula I take is biotin. I have not experienced any GI issues with it…
Hi Paul - In addition to the allopathic specialists at the cancer hospital (blood-work every 3 months), I also see a FABNO certified ND (US cancer hospital trained for 5 years). She advised me that, due to the CLL, all collagen supplements are an "absolute no". She explained why but I can't accurately pass on her explanation.
For me (W&W since 2011 but with a current ALC of 131.8, oodles of enlarged lymph nodes and a slightly enlarged spleen), I wasn't willing to take the chance that supplementing with collagen might negatively impact the CLL.
Too many of the prebiotics, as well as probiotics, can cause bloating/GI upset. I find collagen doesn't upset my stomach, but too many prebiotics/inulin do. There's a difference between eating an artichoke to get some inulin, and downing the equivalent of 20 artichokes worth in a supplement. Your body may not like the latter. So IMO the collagen may not cause problems but the prebiotic might. I try to buy powders so I can start with small amounts.
What pancreatic enzymes are you taking to deal with that deficiency? If the bloating & GI upset are because you aren't making what to need to properly digest, address that issue. It's like me taking lactase, so I can have dairy products. I find the fermented ones (kefir, yoghurt) don't bother me as much. And I've switched to A2 dairy whenever possible.
Hi Sofia, my gastro specialist put me on Creon as he diagnosed me with pancreatic enzyme insufficiency after faecal elastase tests. Cat scans normal. However he did genetic testing and i am a carrier for cystic fibrosis. He believes people with one set of the genes i can suffer some mild effects of the disease which isnt widely known. My issue is fat digestion and i can only eat small amounts full fat products and oil.
I understand. Perhaps consider trying lactase if you want to ingest dairy like cheeses; it's very very common for adults to lose the ability to produce lactase as we age. So cheeses, containing fat as well as lactose, may be a double whammy.
I make a daily protein shake with whey, and put lactase in it, in addition to having some more before eating dairy rich foods. I think it comes in tablets/capsules for people wanting to carry some around.
FWIW, I once had an elderly (80+) patient with "gassy" problems, and after asking about his diet I suggested he try Beano. He got GI upset/bloating after eating bagels. While he wasn't a true celiac, he had lost the ability to break down the grains in the bagel. It worked for him. If you notice GI problems after eating complex carbs/legumes, that may be something to consider.
Hi Paul, I take collagen powder daily and it doesn't seem to have made any difference to my blood test results. As well as CLL I have ulcerative colitis and had my gallbladder removed and the powder has not caused a flare up. I also make my own yoghurt and kefir so I get the best gut bacteria.
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