11 months Post SCT

[Billarina]

I’ve been wanting to update my Stem Cell Transplant journey with good news and today I was going to post that, instead I’ve been told that a lot of my lymph nodes are enlarged again. It’s so disappointing to say the least, not what I was expecting as I feel quite well and most of the GVHD issues have subsided. I honestly thought I had a good 5-10 years remission ahead of me at least.

I feel so deflated it’s been 10 years of on and off treatment. So now to find something else and some how gather up the mental energy to go again 🤞

Thank you all for your support to date.

[Jm954 Administrator]

This is devastating news and I’m so sorry that this is happening to you.

I completely understand how you feel - it’s a never ending cycle of exhausting ups and downs and after 10 years you’ve had enough. There’s no option but to keep going but it gets harder and it’s easy to feel very pessimistic. You still have a young family and everything to look forward to and there are other treatments available.

Please let us know how you are and what the plan is. Sending best wishes

Jackie

[Tangolover]

I am so sorry this is happening--hang in there and hopefully things will get better soon!

[Cindi73]

This is not good news. My heart goes out to you. I will keep you in my prayers. God bless.

[whitewsu]

I'm sorry for the disappointing news! I don't know what you are going through, but I do wish for better things for you. Would it be okay if I pray for you?

[Billarina in reply to whitewsu]

I’m not religious but I do appreciate prayers- I just pray to the universe, I looked up at the moon and stars early this morning and just prayed thankfulness for being here as long as I have. 🙏

[whitewsu in reply to Billarina]

Will pray for you, then.

[studebaker]

This is so disappointing situation to be in. My heart goes to you and I pray 🙏🏻 and hope there is treatment for you to give you a chance to heal and get through it all and get back to your best days ahead.

YOU DEFINITELY DESERVE THE BREAK 🤗🙌

Dana