Continued Journey : I still have some hurdles to... - CLL Support

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Continued Journey

FiArt12X profile image
8 Replies

I still have some hurdles to overcome but great news. On Monday of this week I had labs drawn, clinic (see the PA or Dr) to discuss. Then I also had a Bone Marrow draw ( biopsy). Wednesday more labs, clinic. Most numbers have been entering normal range except platelets and Red bloods cells ( normally lag). The great news shared at Friday’s clinic, Bone Marrow revealed NO CLL or Lymphoma and 100% donors cells.

I still was struggling Monday and Tuesday. Kidney function was bad and edema had increased up my legs. Monday they told be to hold the Tacrolimus, which helps to prevent GVHD ( graft vs host disease). Suspicion was it was Tacro was causing the side effects. As a result on Wed. They substituted Tacro with Sirolimus. Sirolimus is often used after kidney transplants. I’ve been feeling much better since the change. On Friday after labs, kidney function was better so they added a diuretic for the edema and a preventative med for pneumonia.

Overall things are progressing well. There are benchmarks to achieve but I'm looking forward to the future.

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FiArt12X profile image
FiArt12X
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8 Replies
Newdawn profile image
NewdawnAdministrator

This is such promising news I’m delighted to hear!

Newdawn

FiArt12X profile image
FiArt12X in reply to Newdawn

Thank you, it certainly is good news!

DoriZett profile image
DoriZett

Good news! Keep the faith and thanks for keeping us updated. We are rooting for you!

FiArt12X profile image
FiArt12X in reply to DoriZett

Thank you

Jm954 profile image
Jm954Administrator

Always little ongoing issues and drug side effects after transplant but it all sounds very manageable thank goodness.

Jackie

FiArt12X profile image
FiArt12X in reply to Jm954

Yes, the medical team is all over it.

CoachVera55 profile image
CoachVera55

🎉🎉🎉

Danie50 profile image
Danie50

awesome news! Yes small hurdles cleared are victories also! Keep winning!! And enjoying life!🤎🤗🧡

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