My haematologist has sent a letter to my GP that she will be asking me to meet with her in several weeks time "with a view to starting treatment given the evidence of cutaneous progression." I missed my last appointment with her because she was ill, so had a phone appointment with another of the consultants in the Haematology department --none of who are CLL specialists. The consultant who saw me then phoned me as well to say that they would discuss me in the Multidisciplinary team--but that it wasn't my blood results indicating treatment so much as the fact that the CLL cells had spread to my skin.
You may remember that my last post was about my dermatologist writing to me about a biopsy she had done on a very small mole on my back which showed "" The biopsy results have actually shown features consistent with your diagnosis of CLL." She sent these re=ts to my haematologist.
I am aware that I am probably getting near to treatment. Having said that, I have no enlarged nodes, nor spleen, am not losing weight, nor having night sweats. I had Covid 3 weeks again and was left with fatigue which is now much better, but generally I feel that I have less energy. The haematologist on the phone thought that although I was 'slightly anaemic' she thought it was probably Covid that was making me more tired.
In some other posts I have read, I think that I understand that there is a 'sweet spot' for beginning treatment and am not sure how I would know when I reach that? I am thinking that I will ask for a CLL specialist referral (or pay privately to see one), but in the meantime, I would welcome comments from others who may have some thoughts about where I am at present with my CLL. With thanks in advance, Eleanor
My last blood results on July 12th were
Neutrophil count: 8.53 10*9/L
Total white cell count: 208.10 10*9/L
Lymphocyte count: 192.70 10*9/L (A year ago my Lymphocyte count was 136.16 10*9/L)
Monocyte count: 5.83 10*9/L
Eosinophil count: 0.42 10*9/L
Basophil count: 0.62 10*9/L
Red blood cell (RBC) count: 3.64 10*12/L
Haemoglobin estimation: 104 g/L
Haematocrit: 0.33
Mean corpuscular volume (MCV): 90.8 fL