Zanu treatment : Hey y’all, Almost 3 weeks of... - CLL Support

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Zanu treatment

Nana1961 profile image
9 Replies

Hey y’all,

Almost 3 weeks of Zanu. Bloodwork is “as expected “ for first line treatment, WBC 220 and Hemo 9. Feeling pretty good, most lymph node pain gone, more energy! Still have manageable side effects, diarrhea, nausea.

Feeling really good about this treatment!

Have a great day🤗

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Nana1961 profile image
Nana1961
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9 Replies
Phil4-13 profile image
Phil4-13

🥳 I'm glad it's under Your control. So good to hear your update. You're moving forward!😊Sandra

CycleWonder profile image
CycleWonder

That’s great news! It’s always a miracle to feel better. Drink plenty of fluids and try to rest while your body is working hard to expel lymphocytes

gardener58 profile image
gardener58

Been on zanu for 10 months and besides some nausea, nothing to complain about. Blood work is almost normal.

Nana1961 profile image
Nana1961 in reply to gardener58

That’s great to hear! Do you get headaches?

gardener58 profile image
gardener58 in reply to Nana1961

I have some fatigue but no headaches.

Grandadsboys profile image
Grandadsboys

hi I started on zanubrutinib in March,my white count was 600 & my haemoglobin was 60 .I started taking Sonrotoclax on a slow ramp up as well as zanubrutinib 6 weeks ago.I have no side effects & my whites are down to 14 (should be between 4 to 11)but getting there,my haemoglobin is now 125(should be130/175 ) so getting there

Nana1961 profile image
Nana1961 in reply to Grandadsboys

That’s great! Are you participating in a trial with the addition of Sonroclax?

I was supposed to do the trial but kept getting pushed back.

Where do you live?

Grandadsboys profile image
Grandadsboys in reply to Nana1961

HI I live in NZ ,if you do get on the trial you are well looked after, bloods done every week,every month a CT scan &ultrasound ,I even get payed travel allowance,I’m lucky the hospital is only 10k (6miles)away.Fingers crossed you get on it👍🏻

Nana1961 profile image
Nana1961 in reply to Grandadsboys

Unfortunately, I’m not eligible to participate any longer since I started the Zanu😞

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