Muscular skeletal problems with acalabrutinib ? - CLL Support

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Muscular skeletal problems with acalabrutinib ?

DarrenTip profile image
7 Replies

Has anymore had problems since starting their rx?

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DarrenTip profile image
DarrenTip
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7 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi DarrenTip,

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Here is a list of 150 past postings that mention Muscular skeletal:

healthunlocked.com/cllsuppo...

You can scan them quickly, to find the ones that mention a BTKi

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The typical list of side effects usually mention Back, bone, joint, muscle, or neck pain. like one of these:

mskcc.org/cancer-care/patie...

medlineplus.gov/druginfo/me...

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Len

Eucalyptus22 profile image
Eucalyptus22

I had a lot more muscular and joint pain before I started Acalabrutinib 2 years ago.When i started Acal i also started taking 3500 ius of Vit D3 every day and I think my lack of pain is due to that.

I was told that I may notice aches but so far, no more than normal.

Nucleusman profile image
Nucleusman

I have had severe back pain for years but it has become more intense since starting this drug. Not sure if this connected but on pain killers every night. Due to have a back steroid injection some time

flipperj profile image
flipperj

Yes, absolutely and it was debilitating at times.

rafew profile image
rafew in reply to flipperj

good to know, thanks. Mine seems to be getting worse as I get further along

flipperj profile image
flipperj

My experience too.

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