Posts - CLL Support | HealthUnlocked

CLL Support

22,609 members • 38,830 posts

All posts for July 2022

Issues starting with Zanubrutinib.

ok so today is day 3 of starting Zanubrutinib. My BP has been high 170/100 most of the time although it wavers slightly. Doesn't really seem to bother me....

ok so today is day 3 of starting Zanubrutinib. My BP has been high 170/100 most ...

JerrysGirl3

•2 years ago

10 Replies

Platelets normal but red marks appearing on skin

When I was tested 5 days ago, my platelets had returned to normal (147). I noticed a red mark in my arm about 3/4” long. I thought I must have scratched it or...

When I was tested 5 days ago, my platelets had returned to normal (147). I notic...

CycleWonder

•2 years ago

13 Replies

Тhe first study to provide a comprehensive description of the epidemiology and global burden of CLL worldwide

Yalokin

•2 years ago

25 Replies

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Leukemia Lymphoma Society Study

Wondering what ever happened to the LLS Covid Vaccine T Cell Response Study results. I contacted them several weeks ago, and was told not ready for release...

Wondering what ever happened to the LLS Covid Vaccine T Cell Response Study res...

Davidcara

•2 years ago

12 Replies

FOUR MONTHLY BLOOD TEST WORRYING RESULTS

Hi everyone. I have just had my four monthly blood test results back and were I was expecting just a possible small change as I still feel really good in...

Hi everyone. I have just had my four monthly blood test results back and were I ...

Strech51

•2 years ago

45 Replies

very low ferritin with high iron saturation

I’m CLL , on Imbruvica since December 2022. Just received new labs. ferritin 13.00 ng/ml (normal range 24-336) Iron saturation 41% (normal range It...

I’m CLL , on Imbruvica since December 2022. Just received new labs. ferritin 13...

mr1971

•2 years ago

8 Replies

SLL and Acalabrutinib

Hi , I have SLL and started on Acalabrutinib in January 2022, unfortunately got Covid at end of Feb so off treatment for 6 weeks at that time. Pre treatment...

Hi , I have SLL and started on Acalabrutinib in January 2022, unfortunately got...

uide3095

•2 years ago

14 Replies

is this site playing up?

I was repeatedly interrupted by a message while trying to read a post attached to the daily email. It said oops looks like that post can't be found. Every few...

I was repeatedly interrupted by a message while trying to read a post attached ...

dougstalbans

•2 years ago

1 Reply

Starting Calquence

Met onc today who talked about my case with my old onc at MDA, they both recommended it’s time for Calquence because of the CLL being SLL now and the flareups...

Met onc today who talked about my case with my old onc at MDA, they both recomme...

schmooth97

•2 years ago

20 Replies

Evusheld Now

Wondering if anyone has any current information/guideline from a reliable U.S. organization, encouraging immune compromised to get a second full dose of...

Wondering if anyone has any current information/guideline from a reliable U.S. o...

Davidcara

•2 years ago

8 Replies

New study indicates the value of booster vaccinations and monoclonal antibody (Evusheld) protection to blood cancer patients

This study https://acsjournals.onlinelibrary.wiley.com/doi/10.1002/cncr.34354 covers a range of haematological malignancies and includes only 48 subjects with...

This study https://acsjournals.onlinelibrary.wiley.com/doi/10.1002/cncr.34354 co...

bennevisplace

•2 years ago

9 Replies

Covid - Paxlovid and Ibrutinib

I tested positive for CoVid yesterday. My oncologist told me to treat symptoms and contact family doctor Family doctor prescribed Paxlovid which is an...

I tested positive for CoVid yesterday. My oncologist told me to treat symptoms a...

210savannah

•2 years ago

49 Replies

blood test update

recently had bloods done. WBC from 15 to 20 leukocytes 9 to 13. All others bloods really good. Obviously this has set my gremlins off again into panic mode. I...

recently had bloods done. WBC from 15 to 20 leukocytes 9 to 13. All others blood...

Wilcop

•2 years ago

3 Replies

Abuse for wearing a mask…UK

I have received some verbal abuse of late for wearing a mask. Sometimes individuals have been quite frightening. I am thinking that perhaps it would be...

I have received some verbal abuse of late for wearing a mask. Sometimes individu...

Miu48

•2 years ago

44 Replies

CLL Fatigue?

I'm feeling fatigued, weak and dizzy but have no CLL markers. My last bloods, 2 months ago, were normal for CLL. No night sweats. No swellings or pain. What...

I'm feeling fatigued, weak and dizzy but have no CLL markers. My last bloods, 2 ...

shornoff

•2 years ago

4 Replies

Acalabrutinib (4 month update) + Obinutuzumab ?

For starters, a quick Acalabrutinib update. I started acalabrutinib ~ 4 months ago and my nodes and spleen are normal again (took only a few weeks) and my...

For starters, a quick Acalabrutinib update. I started acalabrutinib ~ 4 mont...

Flitzebogen

•2 years ago

22 Replies

CLL RELAPSE.. LATEST TREATMENTS AVAILABLE

Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- reached Rai stage 3.. FCR was given starting with immunotherapy 2019- relapse...

Hi all.. Patient was diagnosed with CLL in 2017 as he was at stage 0 2018- r...

theoptimistduo

•2 years ago

2 Replies

Hi everyone I have looked at this support group several times since my husband s diagnosis thankyou all

Has anyone been diagnosed with sleep apnoea that s been connected to SLL?My husband was diagnosed with SLL aged 3 5following a biopsy of a enlarged lymph...

Has anyone been diagnosed with sleep apnoea that s been connected to SLL?My hu...

tobyronnie

•2 years ago

5 Replies

what should hematologist prescribe?

So, after my excitement over getting the meds I realized that I had had a strange heart episode the night before (Monday night) and I had to take a high dose...

So, after my excitement over getting the meds I realized that I had had a strang...

JerrysGirl3

•2 years ago

36 Replies

Local Specialist Sacramento/Roseville

Looking for local hematologist/oncologist in Roseville or Sacramento area familiar with CLL. Currently receiving care from CLL specialist at the Mayo Clinic in...

Looking for local hematologist/oncologist in Roseville or Sacramento area famili...

motorcycle1

•2 years ago

10 Replies

Ibrutinib & nail problems. Anyone else had this problem.

I’ve been on Ibrutinib for over 3 years & my white count & lymphocytes have taken this long to slowly to reduce & now are 19.5 & 15.3 respectively. Since...

I’ve been on Ibrutinib for over 3 years & my white count & lymphocytes have take...

Benny12

•2 years ago

32 Replies

Not injecting IVIG due to low IGA

Hi, after 9 days of fever, two negative PCR tests, and taking oral antibiotics, I had to be admitted to the hospital because my fever did not stop, After...

Hi, after 9 days of fever, two negative PCR tests, and taking oral antibiotics, ...

ava1967ir

•2 years ago

30 Replies

Richter transformation of chronic lymphocytic leukaemia: a British Society for Haematology Good Practice Paper

Richter's - we all dread that word and try not to think about it but if the worst does happen then it's good to be well informed, preferably beforehand. This...

Richter's - we all dread that word and try not to think about it but if the wors...

Jm954

Administrator•2 years ago

6 Replies

Covid treatments in the UK - clinical guide

Some recent contributors e.g....

bennevisplace

•2 years ago

14 Replies

Uveitis after covid

As you may have read previously I had covid last very mild so didn't need treatment and I'm fine now .but on day 3 of covid I got blurry vision bin one eye...

As you may have read previously I had covid last very mild so didn't need treatm...

cartwheels

•2 years ago

12 Replies

ME/CFS or CLL Fatigue

I have ME/CFS and CLL. My fatigue from ME (had Me many years before CLL) was always up and down and sometimes disappeared altogether. Now my fatigue is...

I have ME/CFS and CLL. My fatigue from ME (had Me many years before CLL) was alw...

shornoff

•2 years ago

12 Replies

Access to Antivirals in UK- Update

Further to my post earlier today, I was contacted by duty triage doctor at local CMDU about 0900h this morning. As I was now Day 6 from symptoms onset and...

Further to my post earlier today, I was contacted by duty triage doctor at local...

Hulot

•2 years ago

5 Replies

Antivirals access in UK

I have CLL and been on W and W for 9 years. I live in North Yorkshire. After 2.5 years avoiding Covid, I finally tested positive last Friday around 1pm,...

I have CLL and been on W and W for 9 years. I live in North Yorkshire. After 2....

Hulot

•2 years ago

13 Replies

treating cll

I just found this at the national library of medicine, saying that beat-carrot juice intake can help treat cll. Has anybody heard of it or tried it?...

I just found this at the national library of medicine, saying that beat-carrot j...

jgon1

•2 years ago

14 Replies

Covid at last!

After avoiding covid for the last 27 months ( including a period at the beginning when we were marooned in the Maldives after lock down descended so quickly)...

After avoiding covid for the last 27 months ( including a period at the beginnin...

richardp

•2 years ago

27 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2022

Issues starting with Zanubrutinib.

Platelets normal but red marks appearing on skin

Тhe first study to provide a comprehensive description of the epidemiology and global burden of CLL worldwide

Leukemia Lymphoma Society Study

FOUR MONTHLY BLOOD TEST WORRYING RESULTS

very low ferritin with high iron saturation

SLL and Acalabrutinib

is this site playing up?

Starting Calquence

Evusheld Now

New study indicates the value of booster vaccinations and monoclonal antibody (Evusheld) protection to blood cancer patients

Covid - Paxlovid and Ibrutinib

blood test update

Abuse for wearing a mask…UK

CLL Fatigue?

Acalabrutinib (4 month update) + Obinutuzumab ?

CLL RELAPSE.. LATEST TREATMENTS AVAILABLE

Hi everyone I have looked at this support group several times since my husband s diagnosis thankyou all

what should hematologist prescribe?

Local Specialist Sacramento/Roseville

Ibrutinib & nail problems. Anyone else had this problem.

Not injecting IVIG due to low IGA

Richter transformation of chronic lymphocytic leukaemia: a British Society for Haematology Good Practice Paper

Covid treatments in the UK - clinical guide

Uveitis after covid

ME/CFS or CLL Fatigue

Access to Antivirals in UK- Update

Antivirals access in UK

treating cll

Covid at last!

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Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2022

Issues starting with Zanubrutinib.

Platelets normal but red marks appearing on skin

Тhe first study to provide a comprehensive description of the epidemiology and global burden of CLL worldwide

Leukemia Lymphoma Society Study

FOUR MONTHLY BLOOD TEST WORRYING RESULTS

very low ferritin with high iron saturation

SLL and Acalabrutinib

﻿is this site playing up?

Starting Calquence

Evusheld Now

New study indicates the value of booster vaccinations and monoclonal antibody (Evusheld) protection to blood cancer patients

Covid - Paxlovid and Ibrutinib

blood test update

Abuse for wearing a mask…UK

CLL Fatigue?

Acalabrutinib (4 month update) + Obinutuzumab ?

CLL RELAPSE.. LATEST TREATMENTS AVAILABLE

﻿Hi everyone I have looked at this support group several times since my husband s diagnosis thankyou all

what should hematologist prescribe?

Local Specialist Sacramento/Roseville

Ibrutinib & nail problems. Anyone else had this problem.

Not injecting IVIG due to low IGA

Richter transformation of chronic lymphocytic leukaemia: a British Society for Haematology Good Practice Paper

Covid treatments in the UK - clinical guide

Uveitis after covid

ME/CFS or CLL Fatigue

Access to Antivirals in UK- Update

Antivirals access in UK

treating cll

Covid at last!

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

is this site playing up?

Hi everyone I have looked at this support group several times since my husband s diagnosis thankyou all