Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for July 2022

Never mind the ********, where's the bebtelovimab?

A recent lab study https://www.nejm.org/doi/full/10.1056/NEJMc2207519?query=TOC examined the ability of a number of FDA-authorised monoclonal antibodies to...

A recent lab study https://www.nejm.org/doi/full/10.1056/NEJMc2207519?query=TOC ...

bennevisplace

•2 years ago

7 Replies

Units of measurement for the expression of anti-SARS-CoV 2 IgG quantitative

Dear fellow forum members, reading various posts and answers in our forum, I noticed that there are different numbers and different dimensions. Therefore,...

Dear fellow forum members, reading various posts and answers in our forum, I not...

Yalokin

•2 years ago

3 Replies

AARP Article | bebtelovimab for Covid exposure

Did anyone hear of this treatment? Safe/effective for CLL W&W? Contra indicated for use with other meds? … Like Paxlovid is …

Did anyone hear of this treatment? Safe/effective for CLL W&W? Contra indicate...

KLW4025

•2 years ago

2 Replies

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Hurray, Three Cheers for Venclexta & Rituxan

After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, including 8 rounds of chemo/immunotherapy, I have been found to have no residual cancer...

After 10 years, 5 months and 24 days since a Stage IV diagnosis of CLL, includin...

KevinCLLITP

•2 years ago

40 Replies

Had a wonderful 70th birthday

I am being boastful now. However, because I count you all amongst ny friends, even though most of you are virtual, it makes no difference. My wonderful...

I am being boastful now. However, because I count you all amongst ny friends, ...

kitchengardener2

•2 years ago

73 Replies

Any advice what should I do if I gey Covid on holiday in Uk.

Next week I am going on holiday to Scotland and have read levels of infection are high there .l have CLL not on active treatment and as yet have not had...

Next week I am going on holiday to Scotland and have read levels of infec...

Fiona1122

•2 years ago

11 Replies

BTK Interruption & Disease Flare

I was diagnosed with stage IV accelerated SLL in January 2021 and started treatment with BTK inhibitors in March 2021, so 16 months on BTK inhibitors so far....

I was diagnosed with stage IV accelerated SLL in January 2021 and started treatm...

Amberesque

•2 years ago

36 Replies

Adding Umbralisib and Ublituximab (U2) to Ibrutinib in Patients with CLL: A Phase 2 Study of an MRD-driven Approach

Purpose: Ibrutinib has transformed the management of CLL, though its use is limited by toxicity and resistance. In this study, we utilized an...

Purpose: Ibrutinib has transformed the management of CLL, though its use is limi...

AussieNeil

Administrator•2 years ago

2 Replies

Still testing positive after 10 weeks

Hello everyone. I need some help. My mum has CLL and had been on venetoclax + rituximab since November 2021 (rituximab suspended early due to lowered...

Hello everyone. I need some help. My mum has CLL and had been on venetoclax + ...

Marymary19

•2 years ago

28 Replies

Early Intervention for CLL

I won't qualify having been diagnosed 3 year ago, but if you've been diagnosed within 12 months and are asymptomatic this looks promising. Testing Early...

I won't qualify having been diagnosed 3 year ago, but if you've been diagnosed...

CLLnewbie

•2 years ago

8 Replies

Question for those with enlarged spleens…

Hi all, I was diagnosed with CLL (type B) about 15 months ago from routine blood work. WBC was 21 then and is in the 90s currently. I am on Wait and Watch. My...

Hi all, I was diagnosed with CLL (type B) about 15 months ago from routine bloo...

TurnerBurner

•2 years ago

21 Replies

MRI or CT Scan

I'm in the process of qualify for a clinical trial, the schedule says CT scan or MRI. My oncologist told me MRIs are only used if a CT scan is...

I'm in the process of qualify for a clinical trial, the schedule says CT scan o...

CLLnewbie

•2 years ago

28 Replies

Camp Lejeune NC CLL

Any one with CLL contacted at Camp Lejeune NC, are you considering filing a law suit with the new water contamination law which will be enacted shortly. I...

Any one with CLL contacted at Camp Lejeune NC, are you considering filing a law ...

laldoroty

•2 years ago

19 Replies

Bebtelovimab vs Paxlovid

Wondering if anyone has experience with Bebtelovimab? Son has been isolating in his room with covid for last 8 days. He is feeling better but, still positive...

Wondering if anyone has experience with Bebtelovimab? Son has been isolating in...

Davidcara

•2 years ago

18 Replies

starting acalabrutinib while waiting for pirtobrutinib to be FDA approved

Venetoclax stopped working after 3 years and my husband has been on idealisib for several months. It isn’t working. His labs yesterday were terrible....

Venetoclax stopped working after 3 years and my husband has been on idealisib f...

KLWC

•2 years ago

7 Replies

My father has Peripheral t cell lymphoma

My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?

My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of...

NikhilSantosh

•2 years ago

1 Reply

Role of RITUXIMAB in CLL treatment in combination with Venetoclax

Hello to all fellows in the CLL journey! Has anyone found a clear answer as to what exactly is the necessity and / or contribution of Rituximab when used...

Hello to all fellows in the CLL journey! Has anyone found a clear answer as to ...

RamsesII

•2 years ago

17 Replies

Enlarged lymph nodes

I have my oncologist appointment next week and I have been mildly concerned about finding more enlarged lymph nodes on my neck area. Today while putting lotion...

I have my oncologist appointment next week and I have been mildly concerned abou...

Wendy328

•2 years ago

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Paxlovid and Calquence

Im a 62 yo male - Ive been on Calquence for 3 months - going well I just got COVID and my Gp prescribed Paxlovid I did some research and there is an issue...

Im a 62 yo male - Ive been on Calquence for 3 months - going well I just got C...

Brucex100

•2 years ago

4 Replies

acalabrutinib

I have taken acalabrutinib almost a year and labs and lymph nodes are close to normal. Has anyone taken acalabrutinib longer with good results?

I have taken acalabrutinib almost a year and labs and lymph nodes are close to n...

200185

•2 years ago

10 Replies

ibrutinib effect on blood levels after 1 month use 540mg

hello everyone, hope you're well, how did your blood results look after 1 month taking ibrutinib? AST levels LDH levels? although my blood levels...

hello everyone, hope you're well, how did your blood results look after 1 mon...

Dextar66

•2 years ago

4 Replies

A treatment’s effect on atherosclerosis

Greetings! A question on the topic in the title was asked by maresba14. One important response from Identiy addressed how atherosclerosis is a common...

Greetings! A question on the topic in the title was asked by maresba14. One i...

Yuck

•2 years ago

3 Replies

Advanced blood tests at 3 months after diagnosis.

Since the rush at the hematologists at the clinic where I will possibly be treated is sometimes big and now is the vacation season, I could not make an...

Since the rush at the hematologists at the clinic where I will possibly be treat...

Yalokin

•2 years ago

5 Replies

Newly diagnosed with CLL and wondering what tests to request.

Hi all, I didn't feel well after partial thyroidectomy. Had some teats and was told I have cll. Was told just to watch and be retested every three months. I...

Hi all, I didn't feel well after partial thyroidectomy. Had some teats and was t...

montieth

•2 years ago

32 Replies

SKIN WELTS!

Hello all. I'm posting about what I think is a CLL/SLL related skin condition. Two years prior to my SLL diagnosis, I started getting what felt like hives...

Hello all. I'm posting about what I think is a CLL/SLL related skin condition. ...

Amberesque

•2 years ago

16 Replies

Fishing

Hello everyone, I’m a first time poster, newly diagnosed Cll having 36 year old man in the US. I’ve been reading all the pinned posts for last few weeks and...

Hello everyone, I’m a first time poster, newly diagnosed Cll having 36 year old...

Snakejaw

•2 years ago

22 Replies

Vaccination by Hannah Fry.

Hannah Fry is a professor of mathematics and statistician. Previously she had a program about her health matters, where she looked into why doctors...

Hannah Fry is a professor of mathematics and statistician. Previously she had...

Kwenda

•2 years ago

6 Replies

Update 4 months after completing Venetoclax

All good news!! Had latest blood tests a few days ago to check on neutrophils as we were planning to go to West Coast of Argyll for 3 weeks and I needed to...

All good news!! Had latest blood tests a few days ago to check on neutrophils as...

prbs2707

•2 years ago

25 Replies

Starting Acalabrutinib from today.

Hi, Saturday we had appointment with doc. Biggiest lymp node is around in 13.5cm in abdomen, so doctor told to start Acalabrutinib. He is TP53 positive and...

Hi, Saturday we had appointment with doc. Biggiest lymp node is around in 13.5c...

pbaddi

•2 years ago

13 Replies

very good LLS podcast with Dr. John Leonard from Weill Cornell medicine and i have very.Low platelets any advice ????

Hi everyone , i just listened to a podcast from LLS featuring Dr. John Leonard . it was VERY informative and gives all of us great hope for current and...

Hi everyone , i just listened to a podcast from LLS featuring Dr. John Leonard ....

craterlake

•2 years ago

24 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2022

Never mind the ********, where's the bebtelovimab?

Units of measurement for the expression of anti-SARS-CoV 2 IgG quantitative

AARP Article | bebtelovimab for Covid exposure

Hurray, Three Cheers for Venclexta & Rituxan

Had a wonderful 70th birthday

Any advice what should I do if I gey Covid on holiday in Uk.

BTK Interruption & Disease Flare

Adding Umbralisib and Ublituximab (U2) to Ibrutinib in Patients with CLL: A Phase 2 Study of an MRD-driven Approach

Still testing positive after 10 weeks

Early Intervention for CLL

Question for those with enlarged spleens…

MRI or CT Scan

Camp Lejeune NC CLL

Bebtelovimab vs Paxlovid

starting acalabrutinib while waiting for pirtobrutinib to be FDA approved

My father has Peripheral t cell lymphoma

Role of RITUXIMAB in CLL treatment in combination with Venetoclax

Enlarged lymph nodes

Paxlovid and Calquence

acalabrutinib

ibrutinib effect on blood levels after 1 month use 540mg

A treatment’s effect on atherosclerosis

Advanced blood tests at 3 months after diagnosis.

Newly diagnosed with CLL and wondering what tests to request.

SKIN WELTS!

Fishing

Vaccination by Hannah Fry.

Update 4 months after completing Venetoclax

Starting Acalabrutinib from today.

very good LLS podcast with Dr. John Leonard from Weill Cornell medicine and i have very.Low platelets any advice ????

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2022

Never mind the ********, where's the bebtelovimab?

Units of measurement for the expression of anti-SARS-CoV 2 IgG quantitative

AARP Article | bebtelovimab for Covid exposure

Hurray, Three Cheers for Venclexta & Rituxan

﻿Had a wonderful 70th birthday

Any advice what should I do if I gey Covid on holiday in Uk.

BTK Interruption & Disease Flare

Adding Umbralisib and Ublituximab (U2) to Ibrutinib in Patients with CLL: A Phase 2 Study of an MRD-driven Approach

Still testing positive after 10 weeks

﻿Early Intervention for CLL

Question for those with enlarged spleens…

﻿MRI or CT Scan

Camp Lejeune NC CLL

Bebtelovimab vs Paxlovid

starting acalabrutinib while waiting for pirtobrutinib to be FDA approved

﻿My father has Peripheral t cell lymphoma

Role of RITUXIMAB in CLL treatment in combination with Venetoclax

Enlarged lymph nodes

Paxlovid and Calquence

acalabrutinib

﻿ibrutinib effect on blood levels after 1 month use 540mg

A treatment’s effect on atherosclerosis

Advanced blood tests at 3 months after diagnosis.

Newly diagnosed with CLL and wondering what tests to request.

﻿SKIN WELTS!

Fishing

Vaccination by Hannah Fry.

﻿Update 4 months after completing Venetoclax

Starting Acalabrutinib from today.

very good LLS podcast with Dr. John Leonard from Weill Cornell medicine and i have very.Low platelets any advice ????

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Had a wonderful 70th birthday

Early Intervention for CLL

MRI or CT Scan

My father has Peripheral t cell lymphoma

ibrutinib effect on blood levels after 1 month use 540mg

SKIN WELTS!

Update 4 months after completing Venetoclax