As you may have read previously I had covid last very mild so didn't need treatment and I'm fine now .but on day 3 of covid I got blurry vision bin one eye ,phoned GP and told to monitor blood pressure etc . Yesterday it was still blurry but after doing some exercise it got much worse like a thick fog so I went to AE where they were promt and sent me straight to the eye clinic were after X rays etc was told I had uveitis . Which may have been caused by covid or infection . I have read since it's linked to autoimmune disorders and cases involving ibrutinib treatment which I have been on for nearly 6 years . I have been given drops and told I should get my vision back in a few days and to return in 3 weeks . But they might want to investigate further if it comes back again . Has anyone else had this
Uveitis after covid : As you may have read... - CLL Support
Uveitis after covid
Bummer, I hope you feel better soon. Be well, Hoffy
I feel fine just can't see out of one eye lol 🤣 on the plus side my work asked for a doctor certificate as I will go past 7 days self certificate and my doctor signed me off until July 26 th
cartwheels -
I had shingles back in 2006. That was 5 years before my dx for CLL. It got into my left cornea. I've had it blossom into uveitis, but usually steroid eye drops knocked it back to keratitis. So I think you're on the right path.
I can judge my general inflammation from how cloudy my eye gets. It's often much blurrier on waking, and clears up some in the first half hour of being up. My cornea is scarred, so it never clears completely. I am prone to infection in that eye, and have had antibiotic ear drops prescribed from time to time. My opthalmologist judges infection based on redness and crustiness in the morning.
It's possible for you to have contracted COVID via that eye, so it is more affected. I suppose that it's also possible for infection to spread by self innoculation. I would not rule out a secondary bacterial infection. Even immuno-normal people get bacterial infections along with COVID.
I have a secondary bacterial infection that has been with me for 2 months since COVID. Both of my ears are blocked due to swelling that closes the eustachian tubes. I can hold my nose, and blow, and one or the other will open after some bubbling sounds. I've had 4 different antibiotics, and my ENT finally said he was worried I would get some resistant bacterial infection, so he stopped them. I then went to an infectious disease doctor, and had a procalcitonin test in case my odd monocytosis of the last few years was due to a systemic bacterial infection. But it was normal. I'm waiting for a call back.
I'm Trisomy 12, mutated, watch and wait, with hypogammaglobulinemia of IgA, IgG, and IgM.
best of luck,
=seymour=
Wow that's very interesting thanks for replying . And yes I have heard of covid in the eye and going back further into the head. My covid was very mild and would say the eye infection is the worst side effect from my covid infection so you may be right in saying that might have been the source of the original infection
Hi Cartwheels, I'm sorry to read that you have had Covid but pleased that it was only mild. Uveitis is indeed a condition that can be related to auto-immune disorders as can Iritis.
Either of these conditions require URGENT treatment as they can very quickly escalate to a state where you would require a rather unpleasant steroid injection to stave off a total loss of sight in the affected eye. This condition can occur and then lie dormant for many years then flare up again for no apparent reason other than the immune system has nothing else to do and starts to attack again. I am unsure if it is directly related to CLL or if you have any other condition that may bring it on such as arthritis.
Over a period of 45 years, pre CLL diagnosis, I have had probably 10-15 instances of either uveitis or iritis. One (the first one) involved the steroid injection direct to the eye but after that, knowing what the symptoms were and how the eye felt, I attended the Eye Clinic immediately I felt any symptoms so was able to be treated with steroid drops alone. The important thing is not to wait. If this ever occurs again I would suggest you ring the eye clinic and tell them you have had uveitis before. Each time I have had an appointment within the hour. Hopefully they will have told you to do this already!
My best wishes to you for a full recovery from both.
Thanks for posting ,and yes after 3 days I did feel the need to go to AE where they DX Uveitis and gave me two types of eye drops one a steroid .no impact yet other then redness has gone down but right eye still blurry they did say it might take a few days and I'm to go back in 3 weeks
Yes I've had uveitis a couple of times, before CLL diagnosis. I do other autoimmune, e.g. Hashimoto's. Echoing the advice that prompt treatment is essential. Misdiagnosed as conjunctivitis by my GP (my main symptom was that the whites of my eyes went pink), fortunately my optician was more savvy and sent me straight to the eye hospital.
Hiya, I’m still watch n wait, but had covid recently. Having a rough time of it, but slowly recovering. I had sore painful eyes while I had covid, and have still got changes in vision. I only got new glasses 8 months ago, but I feel that I cannot see as well as pre covid. I don’t know if this is a recognised symptom/side effect of covid. I still have painful eyes. I have an appointment on 26 th July with an ophthalmologist.
Indie
Well with cll progression our eyes detoriat so could be just that . My eyesight suffered in WW but improved once in remission
I had uveitis on both eyes during treatment this can be CLL related but according to an ASH study Ibrutinib is used in CLL related uveitis but Corvid can attack all kinds of cells the problem with continuous treatment is that it impairs immune cell function and this could have contributed to getting Uveitis in your case
Thanks very informative
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