Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for July 2022

My covid so far

Hi all Well got a few bone aches on Monday nothing new to us I know 🤣 but worse then usual ,then by Tuesday night started to get a sore throat come Wednesday...

Hi all Well got a few bone aches on Monday nothing new to us I know 🤣 but wors...

•2 years ago

Idelalisib

Has anybody got experience with idelalisib. Many thanks ☺️

Has anybody got experience with idelalisib. Many thanks ☺️

•2 years ago

New to CLL so confused

Hi! My husband is currently being diagnosed with CLL 55 years old Very healthy Had a routine blood test with WBC at 17,000 And doctor said Probably CLL...

Hi! My husband is currently being diagnosed with CLL 55 years old Very healthy ...

•2 years ago

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Upcoming CLL Webinar

Wanted to share this upcoming webinar with Dr. Kittai of OSU this Wednesday, July 13 at 1pm ET....

Wanted to share this upcoming webinar with Dr. Kittai of OSU this Wednesday, Jul...

•2 years ago

Evusheld and risk

Hi. I read that there is little evidence of the effectiveness of Evusheld and there is a degree of risk for side effects such as cardiac incidents. I have...

Hi. I read that there is little evidence of the effectiveness of Evusheld and th...

•2 years ago

Reduced Dose of Acalabrutinib

I am on a 50% reduction of Acalabrutinib (once a day). Does anyone know if this will also reduce the irreversible binding of the drug and therefore...

I am on a 50% reduction of Acalabrutinib (once a day). Does anyone know if thi...

•2 years ago

Managing the cardiovascular risk of Bruton's Tyrosine Kinase Inhibitors in chronic lymphocytic leukemia

The American Society of Hematology journal Blood Advances published an important "International Consensus Statement on the Management of...

The American Society of Hematology journal Blood Advances published an important...

Administrator•2 years ago

Moderna Spikevax

Afterron all you wonderful people. I am looking for info about my 5th jab. I had my 5th jab yesterday lunchtime. All went well. The other 4 jabs have been...

Afterron all you wonderful people. I am looking for info about my 5th jab. I ha...

•2 years ago

Help with results

Hi all, My Dad is on w&w and his last two appointments (every 3 months) have been via the telephone. Dad has visible bumps (as we prefer to call) one under...

Hi all, My Dad is on w&w and his last two appointments (every 3 months) have bee...

•2 years ago

No Emails ?

Hi all, I’m not getting any emails for this group ? Any one help I used to get them every day .

Hi all, I’m not getting any emails for this group ? Any one help I used to get t...

•2 years ago

High Alkaline Phosphatase

I had bloodwork recently, for a physician other than my CLL Specialist, who told me today that one of the abnormal readings was Alkaline Phosphatase. He...

I had bloodwork recently, for a physician other than my CLL Specialist, who told...

•2 years ago

Going to Florida and getting evusheld

Scheduled to travel to Amelia Island Florida for a family vacation in two weeks. I am on Watch and Wait. I had three Pfzer shots between 2020 and 2021. I...

Scheduled to travel to Amelia Island Florida for a family vacation in two weeks...

•2 years ago

Update on my Covid status

After seeking out a different testing pack I’ve finally tested positive. Most probably too late now to have the treatment. But hopefully I’ll feel better...

After seeking out a different testing pack I’ve finally tested positive. Most ...

•2 years ago

FDA recommends Evusheld booster at 6 months

On June 29 2022 FDA finally came up with the recommandation that Evusheld repeat dosing should be given every six months with a dose of 300 mg of tixagevimab...

On June 29 2022 FDA finally came up with the recommandation that Evusheld repeat...

•2 years ago

Is it possible to have covid yet testing negative?

My husband tested positive on Friday. We had both been feeling unwell and fatigued. We had been on a flight together on Tuesday. My test showed negative...

My husband tested positive on Friday. We had both been feeling unwell and fatig...

•2 years ago

Covid anti-body study

I was contacted by Imperial College to participate in the Melody trial to determine what levels of anti-body might exist following various medication regimes...

I was contacted by Imperial College to participate in the Melody trial to determ...

•2 years ago

Bone pain

Hello all, I have been in wait and watch for 12 years and so far am stable but I have always had unexplained pain in feet and legs and sometimes in my mid...

Hello all, I have been in wait and watch for 12 years and so far am stable but ...

•2 years ago

Life without Ibrutinib

Well after 18 months on Ibrutinib, and having a recent SVT my consultant has taken me off of Ibrutinib. Unfortunately they have low tolerance for heart issues...

Well after 18 months on Ibrutinib, and having a recent SVT my consultant has tak...

MovingForward4423

•2 years ago

Calquence related skin problems

Last week I saw a post about Calquence decimating a person’s skin. I can’t find the post now but I had never made the connection to Calquence and my...

Last week I saw a post about Calquence decimating a person’s skin. I can’t fin...

•2 years ago

Total IgA, IgG, and IgM before and after Evusheld and COVID infection

I've seen people speculate here and elsewhere how Evusheld or COVID infection might affect total immunoglobulin values. I just got my latest blood tests back...

I've seen people speculate here and elsewhere how Evusheld or COVID infection mi...

•2 years ago

Acalabrutinib - single dose regime

Hello, I have been on 1 cycle of alacabrutinib (28 days). Total WBC count initially rose from 140 to 300 (x 10^9/L), now down to 200. Have had problems with...

Hello, I have been on 1 cycle of alacabrutinib (28 days). Total WBC count initia...

•2 years ago

All new to me

Good afternoon all, I’ve been diagnosed with CLL in may I’m on the watch and wait a letter from consultant say it’s B stage, thankfully I’m not feeling un well...

Good afternoon all, I’ve been diagnosed with CLL in may I’m on the watch and wai...

•2 years ago

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