Stopping Ibrutinib : Is there anyone in the... - CLL Support

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Stopping Ibrutinib

809123 profile image
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Is there anyone in the forum who has got to Negative MRD on Ibrutinib and stopped treatment? I mean negative in blood and marrow. I want to exclude people who stopped because of side effects effects.

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809123
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Rt2000 profile image
Rt2000

I have wondered about this too. I think I read somewhere that about 10% of those taking ibrutinib for 4 or 5 years may achieve uMRD. So is that good enough to get tested and maybe stop treatment for a while? I have been on ibrutinib for 4-1/2 years with good and steady results. I do see my doctor next month and will bring this up.

lankisterguy profile image
lankisterguyVolunteer

Hi 809123,

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This recent post may provide some useful information : healthunlocked.com/cllsuppo...

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And here is a list of over 4000 previous postings that mention Ibrutinib and MRDU

healthunlocked.com/cllsuppo...

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Len

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