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CLL Support

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All posts for November 2020

Nosocomial infections

https://committees.parliament.uk/publications/3312/documents/31193/default/ People might want to read Jeremy Hunt’s letter about hospital infections of Covid...

https://committees.parliament.uk/publications/3312/documents/31193/default/ Peo...

Ptcad

•3 years ago

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False Richter Transformation

https://ashpublications.org/bloodadvances/article/4/18/4508/463770/Incidental-Richter-transformation-in-chronic?fbclid=IwAR3W5-EPlFMUGLuvFndph6_0KX1nj_vrP6zaQGf

https://ashpublications.org/bloodadvances/article/4/18/4508/463770/Incidental-Ri...

Sepsur

•3 years ago

5 Replies

Is lockdown doing more harm than good?

I'm not sure myself, but would appreciate your thoughts. The first word goes to Ivor Cummins, an outspoken critic of the lockdown strategy, based on the theory...

I'm not sure myself, but would appreciate your thoughts. The first word goes to ...

bennevisplace

•3 years ago

13 Replies

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CLL Support Newsletter

Lots of useful information here about the UK Lockdowns and how to protect yourselves...

Lots of useful information here about the UK Lockdowns and how to protect yourse...

Jm954

Administrator•3 years ago

5 Replies

Pneumonia jab

What is the follow up time for pneumonia jabs ? I seem to recall being told every 5 years , I had one 5 years ago so now I think I need my booster

What is the follow up time for pneumonia jabs ? I seem to recall being told ever...

cartwheels

•3 years ago

5 Replies

Colonoscopy

Hi there - I’ve recently had a CT colonoscopy following a regular bowel cancer screening. The Ct rather than a camera was because of an enlarged spleen and low...

Hi there - I’ve recently had a CT colonoscopy following a regular bowel cancer s...

Ptcad

•3 years ago

20 Replies

Richter Transformation - Update

Hi everybody how are you? I'd like to put you all in my current state, after full remission. As you know, they treated me with R-CHOP and did not transplant...

Hi everybody how are you? I'd like to put you all in my current state, after ful...

Priss69

•3 years ago

10 Replies

Will you continue wearing a face mask after COVID-19 madness is over?

We're still months away before the vaccine is available; and even when it's available, it will be more months until enough people get the vaccine and...

We're still months away before the vaccine is available; and even when it's avai...

mantana

•3 years ago

12 Replies

Second lockdown : a letter

Overnight I have received an email. I believe it to be genuine as it includes my full name and my NHS number and asks for nothing. The subject of the email...

Overnight I have received an email. I believe it to be genuine as it includes m...

Oleboyredw-uk

•3 years ago

4 Replies

How can you tell how many CLL cells are actually in your blood streams?

My Absolute Lymphocyte Count is at 10214 cells/mm³ is that CLL? I calculated my WBC 16.5 plus LYMPHS% 61.9 %...

My Absolute Lymphocyte Count is at 10214 cells/mm³ is that CLL? I calculated my...

Laura3mini

•3 years ago

3 Replies

Pneumonia booster necessary or not?

I had the pneumonia vaccination in December 2014 - almost 6 years ago, and a couple of weeks ago I asked my haematology consultant if I should have the...

I had the pneumonia vaccination in December 2014 - almost 6 years ago, and a cou...

Ruhi9

•3 years ago

6 Replies

UK to shield again, from tomorrow

https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-

https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-...

zaax

•3 years ago

30 Replies

Ozone disinfector & sanitizer ?

The users of C-PAP machines for sleep apnea are recommended to use ozone disinfectors-sanitizers for their masks and hoses. The mask and hose is put into a...

The users of C-PAP machines for sleep apnea are recommended to use ozone disinfe...

janvog

•3 years ago

8 Replies

Painful lumps under the skin - Ibrutinib treatment

Hi there! I just seen my haematologist and appears that the painful lumps that appeared 4 days after start of Ibrutinib were heamatomas. My numbers didn’t...

Hi there! I just seen my haematologist and appears that the painful lumps that a...

Temida

•3 years ago

3 Replies

Is Gazyva chemo?

Is Gazyva chemo? I have been told yes I have been told no.

flowerchild28

•3 years ago

19 Replies

CLL Aussie voices study - last call to add your voice to the PEEK study

This is a final call for Australians with CLL, their carers and family members to add their voice and register for the CLL PEEK study, conducted by the Centre...

This is a final call for Australians with CLL, their carers and family members ...

AussieNeil

Administrator•3 years ago

1 Reply

Awake worrying about your CLL? Stop It! Apply for a FREE online 2nd Opinion with a top CLL Expert.

CLL Society Expert Access™ Program: Awake worrying about your CLL? Apply for a FREE online 2nd Opinion with a top CLL Expert! Here at the CLL Society, we...

CLL Society Expert Access™ Program: Awake worrying about your CLL? Apply for a F...

bkoffman

CLL CURE Hero•3 years ago

4 Replies

Does Venetoclax Cross the Blood/Brain Barrier?

Just curious. ... Look, I can Google as well as the next person, but I don’t always know how to interpret what I find. As is the case with my question here....

Just curious. ... Look, I can Google as well as the next person, but I don’t alw...

DRM18

•3 years ago

3 Replies

Small Red Dots

Hi all. I'm currently on month two of maximum dosage of Venclexta (400mg) as well as prednisone and a couple anti-viral meds. I recently started to see small...

Hi all. I'm currently on month two of maximum dosage of Venclexta (400mg) as wel...

msccsm11

•3 years ago

1 Reply

CLL with Necrobiotic Xanthogranuloma condition

Is anyone also struggling with the related condition Necrobiotic Xanthogranuloma (NXG) along with their CLL?

Is anyone also struggling with the related condition Necrobiotic Xanthogranulom...

Oriental-Lily

•3 years ago

1 Reply

Results of Phase II Study of Combination Obinutuzumab, Ibrutinib, and Venetoclax in Treatment-Naïve and Relapsed or Refractory CLL

I think the most surprising thing in this report is that not everyone responds - "The overall response rate at that time was 84% in treatment-naïve patients...

I think the most surprising thing in this report is that not everyone responds -...

Jm954

Administrator•3 years ago

20 Replies

A guide to face masks, respirators and other things to keep you Covid safe - recommended

This is the most comprehensive guide to masks and respirators I've seen https://fastlifehacks.com/n95-vs-ffp/ N95 (US standard) and FFP2 (European standard)...

This is the most comprehensive guide to masks and respirators I've seen https://...

bennevisplace

•3 years ago

4 Replies

"The Future of CAR-T Therapy: Can CAR-T Cure CLL?” Don’t miss the excitement Nov 17 with Dr. Fraietta, a true pioneer in CAR-T therapy!

CLL Society Webinar: Prepare to be amazed! Nov. 17th CAR-T Webinar "The Future of CAR-T Therapy: Can CAR-T Cure CLL?” CAR-T therapy is not yet approved in CLL....

CLL Society Webinar: Prepare to be amazed! Nov. 17th CAR-T Webinar "The Future o...

bkoffman

CLL CURE Hero•3 years ago

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Calquence in the UK

I am new here, living in TX , USA at the moment, and due to start on Calquence in a few weeks time. I have US Health Insurance. I may be moving back to the...

I am new here, living in TX , USA at the moment, and due to start on Calquence ...

Challain

•3 years ago

8 Replies

"Covid is on the way out. Pass it on"

Of course the epidemic is not on the way out. Right now it's very much on the way back. Faced with a worse-than-worst-case scenario, gov.uk has reversed policy...

Of course the epidemic is not on the way out. Right now it's very much on the wa...

bennevisplace

•3 years ago

5 Replies

Biopsy results

Hi, my boyfriend has CLL and is struggling with his hemoglobin and neutropenia. His numbers are not getting better. Doctors had to give him multiple blood...

Hi, my boyfriend has CLL and is struggling with his hemoglobin and neutropenia. ...

Gile

•3 years ago

17 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for November 2020

Nosocomial infections

False Richter Transformation

Is lockdown doing more harm than good?

CLL Support Newsletter

Pneumonia jab

Colonoscopy

Richter Transformation - Update

Will you continue wearing a face mask after COVID-19 madness is over?

Second lockdown : a letter

How can you tell how many CLL cells are actually in your blood streams?

Pneumonia booster necessary or not?

UK to shield again, from tomorrow

Ozone disinfector & sanitizer ?

Painful lumps under the skin - Ibrutinib treatment

Is Gazyva chemo?

CLL Aussie voices study - last call to add your voice to the PEEK study

Awake worrying about your CLL? Stop It! Apply for a FREE online 2nd Opinion with a top CLL Expert.

Does Venetoclax Cross the Blood/Brain Barrier?

Small Red Dots

CLL with Necrobiotic Xanthogranuloma condition

Results of Phase II Study of Combination Obinutuzumab, Ibrutinib, and Venetoclax in Treatment-Naïve and Relapsed or Refractory CLL

A guide to face masks, respirators and other things to keep you Covid safe - recommended

"The Future of CAR-T Therapy: Can CAR-T Cure CLL?” Don’t miss the excitement Nov 17 with Dr. Fraietta, a true pioneer in CAR-T therapy!

Calquence in the UK

"Covid is on the way out. Pass it on"

Biopsy results

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