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CLL Support

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All posts for July 2020

atypical lymphocytes (AtyLym) - diagnostic meaning?

Atypical lymphocytes (AtyLym) on blood test - does it have any diagnostic meaning (for non-CLL patients, CLL W&W patients, CLL patients with treatment, if it...

Atypical lymphocytes (AtyLym) on blood test - does it have any diagnostic meanin...

mantana

•4 years ago

8 Replies

New to CLL

Hi I was diagnosed with CLL in mid May and am coming to terms with the situation and all kinds of symptoms.....real or imagined! I have a meeting with my...

Hi I was diagnosed with CLL in mid May and am coming to terms with the situation...

Happygarden

•4 years ago

16 Replies

Help to define why I’m having bad bruising

Help to diagnose my severe bruising: Diagnosed CLL since April 2015. Been on 420mg OD (once daily) Imbrivica since late 2015. Im fairly active, good shape ,...

Help to diagnose my severe bruising: Diagnosed CLL since April 2015. Been on 420...

halldp

•4 years ago

19 Replies

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Venclexta I’m new here

I’m on 400mg venclexta already 19 months and doing well. Went can I stop talking the venclexta?

I’m on 400mg venclexta already 19 months and doing well. Went can I stop talking...

Bomma

•4 years ago

8 Replies

W&W CLL Patient in Need of Advice

CLL patient for 4 years with 22 wbc and on w&w I visited my Oncologist last Tuesday and explained that I am experiencing a continuous high level of body pain...

CLL patient for 4 years with 22 wbc and on w&w I visited my Oncologist last Tues...

Hidden

•4 years ago

8 Replies

Ibrutinib side effects

I should be starting Ibrutinib (3x140g/dy) ASAP and I am afraid of the side effects.. After how much time the side effects appears after starting the...

I should be starting Ibrutinib (3x140g/dy) ASAP and I am afraid of the side effe...

AshGS

•4 years ago

18 Replies

Bendamustine with rituximab

my husband was diagnosed with CLL and will be starting on the above agents over the next 6 months. Anyone has experienced the same treatment before?

my husband was diagnosed with CLL and will be starting on the above agents over ...

gohmei

•4 years ago

34 Replies

Triplet Regimen Shows Promise in CLL -Zanubrutinib, obinutuzumab, & venetoclax combo achieves rapid undetectable MRD -MedPageToday -07/07/20

Treatment triple-header news from the MedPage Today. From the article: At the American Society of Clinical Oncology virtual meeting, initial findings from...

Treatment triple-header news from the MedPage Today. From the article: At the A...

cujoe

•4 years ago

17 Replies

Hypertension and cardiovascular events following ibrutinib initiation

I thought it worth reiterating the high level of hypertension (HT) reported in patients treated with Ibruitnib and the potential for serious complications....

I thought it worth reiterating the high level of hypertension (HT) reported in p...

Jm954

Administrator•4 years ago

18 Replies

Update on enlarged armpit nodes

Attended RM in the UK today as nodes on my neck had grown and particularly large ones (size of half a tennis ball) under armpits. Consultant just needed one...

Attended RM in the UK today as nodes on my neck had grown and particularly large...

aloneifly

•4 years ago

5 Replies

High lymphocytes and low neutrophils

Hi, I have high lymphocytes and low neutrophils. With some strange stuff going on with my RBC and a slightly high ESR. I went to see a rheumatologist because I...

Hi, I have high lymphocytes and low neutrophils. With some strange stuff going o...

Kzdee

•4 years ago

4 Replies

CLL Support webinar with Peter Hillmen from 10 June 2020

Some members were asking if this was going to be available and here it is. CLL Support’s inaugural webinar began with an update by Chairman Marc Auckland. The...

Some members were asking if this was going to be available and here it is. CLL S...

Jm954

Administrator•4 years ago

2 Replies

Update to shortness if breath

I saw my cardiologist yesterday, he ordered another Echo, & a stress test, plus put me on a diuretic for my ankle swelling. I will keep you posted. I was also...

I saw my cardiologist yesterday, he ordered another Echo, & a stress test, plus ...

Winsey

•4 years ago

1 Reply

More progress. One day day I think we will get there

https://www.medpagetoday.com/meetingcoverage/ascovideopearls/87435

Research123

•4 years ago

19 Replies

can your igvh change from unmutated to mutated?

mutaion status ivgh

tom3659

•4 years ago

8 Replies

Cannabis and CLL: symptom management?

Anyone have any experience with cannabis improving their symptoms?

spanglem123

•4 years ago

3 Replies

Watch and Wait - Covid19

I was diagnosed 3 years ago and am on watch and wait, last week my GP's receptionist said that I am not at high risk from Covid19 and should read PHE guidance...

I was diagnosed 3 years ago and am on watch and wait, last week my GP's receptio...

diddiC

•4 years ago

9 Replies

Can Ibrutinib give false Richter?

Hi all. I hope that you are well. As you know I made a Facebook group to bring all the Richter cases together. We are a few and these last weeks people with...

Hi all. I hope that you are well. As you know I made a Facebook group to bring a...

Priss69

•4 years ago

19 Replies

UK Webinar - Get all the latest updates and news on CLL/SLL

CLL Support invite you to join us for our next webinar on: Thursday 16th July 2020 at 1.00 pm. This promises to be a fascinating webinar, with interesting...

CLL Support invite you to join us for our next webinar on: Thursday 16th July 2...

Jm954

Administrator•4 years ago

2 Replies

L-lysine Supplements

I have been on w&w for the past 2 years with frequent bouts of mouth sores. My GP put me on lysine supplements and within 10 days sores have cleared but wbc...

I have been on w&w for the past 2 years with frequent bouts of mouth sores. My G...

Iceman82

•4 years ago

10 Replies

CLL and hepatitis B?

In addition to CLL (still W&W for me), I have another chronic disease - hepatitis B (HBV). I think I remember my parents talking about HBV when I was young -...

In addition to CLL (still W&W for me), I have another chronic disease - hepatiti...

mantana

•4 years ago

7 Replies

Has anyone had issues with Hemolytic Anemia?

I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and...

I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had som...

KevinCLLITP

•4 years ago

10 Replies

Normal CBC abnormal flow test

I had two months of abnormal CB results, and the flow study also abnormal. I was diagnosed with possible CLL. I then had a CBC done yesterday after three...

I had two months of abnormal CB results, and the flow study also abnormal. I was...

gustave

•4 years ago

11 Replies

Acalabrutinib (ibrutinib) interaction with Covid

A little bit optimistic news for people who prescribed to acalabrutinib (ibrutinib). There are two recent publications: 1. described that this medication...

A little bit optimistic news for people who prescribed to acalabrutinib (ibrutin...

Mik_

•4 years ago

2 Replies

CLL Society FREE consultation with a CLL Expert! Expert Access™. Apply now! You must live in the US, have CLL, and not be in expert care.

https://cllsociety.org/cll-society-expert-access/

bkoffman

CLL CURE Hero•4 years ago

4 Replies

Lumps under armpits

I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to...

I have large swellings under both armpits. My GP says they are swollen lymph nod...

aloneifly

•4 years ago

4 Replies

🇺🇸 HAPPY 4TH TO ALL MY CLL PALS!!!🇺🇸

Wishing you and your family a fabulous 4th🌟🇺🇸🌟!!! Be safe and Happy😊.

debdetermine58

•4 years ago

6 Replies

Fatigue with CLL

Hello I was diagnosed cll on January 2019 cll stage 0, my wbc was 30, on June 2020 is 49 no symptoms except my gamma globulin is slightly lower than normal. I...

Hello I was diagnosed cll on January 2019 cll stage 0, my wbc was 30, on June 2...

Hicham

•4 years ago

7 Replies

Report from CLL Webinar: Prof Hillmen, 10th June 2020

I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most...

I attended a webinar hosted by the CLL Support Association and Leukaemia Care. ...

Davdow

•4 years ago

7 Replies

Ibrutinib V Venetoclax + Rituximab

I had FCR treatment for CLL about 6 years ago but a number of lymph nodes now getting lumpy. I am being offered either Ibrutinib or Venetoclax +Rituximab. My...

I had FCR treatment for CLL about 6 years ago but a number of lymph nodes now ge...

pool8

•4 years ago

15 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2020

atypical lymphocytes (AtyLym) - diagnostic meaning?

New to CLL

Help to define why I’m having bad bruising

Venclexta I’m new here

W&W CLL Patient in Need of Advice

Ibrutinib side effects

Bendamustine with rituximab

Triplet Regimen Shows Promise in CLL -Zanubrutinib, obinutuzumab, & venetoclax combo achieves rapid undetectable MRD -MedPageToday -07/07/20

Hypertension and cardiovascular events following ibrutinib initiation

Update on enlarged armpit nodes

High lymphocytes and low neutrophils

CLL Support webinar with Peter Hillmen from 10 June 2020

Update to shortness if breath

More progress. One day day I think we will get there

can your igvh change from unmutated to mutated?

Cannabis and CLL: symptom management?

Watch and Wait - Covid19

Can Ibrutinib give false Richter?

UK Webinar - Get all the latest updates and news on CLL/SLL

L-lysine Supplements

CLL and hepatitis B?

Has anyone had issues with Hemolytic Anemia?

Normal CBC abnormal flow test

Acalabrutinib (ibrutinib) interaction with Covid

CLL Society FREE consultation with a CLL Expert! Expert Access™. Apply now! You must live in the US, have CLL, and not be in expert care.

Lumps under armpits

🇺🇸 HAPPY 4TH TO ALL MY CLL PALS!!!🇺🇸

Fatigue with CLL

Report from CLL Webinar: Prof Hillmen, 10th June 2020

Ibrutinib V Venetoclax + Rituximab

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