Posts - CLL Support | HealthUnlocked

CLL Support

22,987 members • 39,473 posts

All posts for October 2019

So what is important to know ,,,blood test markers and other

So, even though I am on my second round of treatment I find lots of references in the posts here that I don't understand. So I'm hoping that someone can point...

So, even though I am on my second round of treatment I find lots of references i...

michaelmac

•5 years ago

15 Replies

How New Immunotherapy Drugs are Developed and Tested (video)

Excellent video on how new immunotherapy drugs are built and tested:...

wmay13241

•5 years ago

2 Replies

Tender lymph node groin

Hi all iam just wondering if anyone as had a sore lymph node in there groin tender to touch ive been to the doctors and he said it looks like ive had a skin...

Hi all iam just wondering if anyone as had a sore lymph node in there groin tend...

Caz123456

•5 years ago

4 Replies

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Looking for advice on travel insurance

Anyone have advice on travel insurance. I’m looking to visit my Daughter in South Africa. I’m 6 years post FCR

Anyone have advice on travel insurance. I’m looking to visit my Daughter in Sout...

Billys60

•5 years ago

3 Replies

Mother suddenly got fever

My mother diagnosed with cll last year. We had a family function and everything was normal till yesterday. We had a drive if 4-5 hours back home. She was...

My mother diagnosed with cll last year. We had a family function and everything ...

ABHINAVGARG

•5 years ago

8 Replies

Travel insurance

Hi folks. I know this will have been asked a thousand times however. I am 6 years since FCR treatment and to date still doing well not near further...

Hi folks. I know this will have been asked a thousand times however. I am 6 y...

Billys60

•5 years ago

1 Reply

The Long Island CLL Society Support Group Monthly Meeting

Hi folks - It's that time of the month again where we extend a warm and welcoming invitation to anyone in the New York, Long Island area to attend our monthly...

Hi folks - It's that time of the month again where we extend a warm and welcomin...

SusanBo

•5 years ago

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Flu shot and Acalabrutinib

I'm in the USA on Acalabrutinib since June 21 2019. I had the flu shot meant for 65+ last Friday and started feeling woozy after about 1 1/2 hours later, with...

I'm in the USA on Acalabrutinib since June 21 2019. I had the flu shot meant fo...

Fulart

•5 years ago

8 Replies

Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL

I met someone in the waiting room at MDA and he told me about this medication . He has CLL was Watch a wait a couple of years ago 2011 on this since 2013. He...

I met someone in the waiting room at MDA and he told me about this medication . ...

LovecuresCLL

•5 years ago

5 Replies

Sequential And Combination Treatments With Novel Agents (Oct. 2019)

Superb overview/comparisons from Germany, published October 4, 2019. "Chemoimmunotherapy has been standard of care in patients with chronic lymphocytic...

Superb overview/comparisons from Germany, published October 4, 2019. "Chemoimm...

avzuclav

•5 years ago

13 Replies

What to avoid on ibrutinib ?

Hi everyone, hope you all are doing well. I was just wondering all the things that you have been told to avoid while on ibrutinib? We were told Seville...

Hi everyone, hope you all are doing well. I was just wondering all the things th...

aj33

•5 years ago

40 Replies

New York City -- CLL Patient Support Group Sunday October 13, 2019 from 3pm – 5pm

New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please...

New York City -- CLL Patient Support Group The CLL Society invites you to our su...

lankisterguy

Volunteer•5 years ago

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Newbie

Diagnosed in March 17 but told that bloods showed an issue in 2013! Appear to have Vit D deficiency and wonder if others on W&W have encountered this? Taking...

Diagnosed in March 17 but told that bloods showed an issue in 2013! Appear to ha...

MarmiteCLL

•5 years ago

19 Replies

Vitamin C is it dangerous to take a once a day drink of Vitamin C...called "emergen-c" 1000mg ???I have SLL and am on W/W

Hope I put this in the right spot

Stelladoro

•5 years ago

25 Replies

CLL Ireland is coming to Galway on November 16th for an afternoon of support and learning.

CLL Ireland is coming to Galway on November 16th for an afternoon of support and learning. It's a opportunity for patients to meet others with CLL and also to...

CLL Ireland is coming to Galway on November 16th for an afternoon of support and...

Irishcll

•5 years ago

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So much to share returning from Scotland for CLLAN Horizon and iwCLL

Hi, I am just back from 2 amazing CLL conferences in Scotland, CLLAN Horizon for CLL advocacy groups around the globe and iwCLL for hematologists across the...

Hi, I am just back from 2 amazing CLL conferences in Scotland, CLLAN Horizon for...

bkoffman

CLL CURE Hero•5 years ago

19 Replies

Thank you!

Hello everyone! I just want to say thank you to everyone for keeping this community active. I’m a 26 year old female and was just diagnosed with CLL but don’t...

Hello everyone! I just want to say thank you to everyone for keeping this commun...

tinylobito

•5 years ago

23 Replies

Started imbruvica

I was diagnosed with CLL in 2000... Did the usual watchful waiting till 2009, then had FCR for 6 months. Went into total remission till 2016... Had AIHA in...

I was diagnosed with CLL in 2000... Did the usual watchful waiting till 2009, th...

habsrule

•5 years ago

17 Replies

How do someone manage with SLL and parkinsons

Sll with parkinsons

BJHUG

•5 years ago

2 Replies

Cancer Treatment is expensive, there is help available

This video was posted today and may help some of you with CLL and the costs of meds in their search for financial health....

This video was posted today and may help some of you with CLL and the costs of m...

jdolinger

•5 years ago

2 Replies

Help with Sore Throat for CLL Patient

I am taking Ibriutinib 420mg for cll and allopurinol and acyclovir to protect my body. I am on cycle 3. I am experiencing a sore throat and don’t know what to...

I am taking Ibriutinib 420mg for cll and allopurinol and acyclovir to protect my...

120940

•5 years ago

7 Replies

Flu vaccination

I know this is a topic constantly mentioned, but yesterday I had my flu jab at the gp surgery. I questioned the fact that it was different to last year when I...

I know this is a topic constantly mentioned, but yesterday I had my flu jab at t...

Hazel33

•5 years ago

17 Replies

My Port keeps clogging.

My port has been clogging... they used that Activace (for TIAs) to unclog it... but read that can be risky. Should be saline or is heparin better?

My port has been clogging... they used that Activace (for TIAs) to unclog it... ...

Butitisme

•5 years ago

3 Replies

Just arrived!

I was diagnosed with CLL in 2008, at the age of 57. After 2 years of watch-and-wait I was referred to King’s College Hospital in London and had FCminiR chemo...

I was diagnosed with CLL in 2008, at the age of 57. After 2 years of watch-and-w...

Salvoboy

•5 years ago

2 Replies

Flu & Pneumonia vaccines

Sorry for a repeat topic but wasn’t sure if anybody would see my questions in my reply to another flu related post. I am 54 and I am booked in at my local...

Sorry for a repeat topic but wasn’t sure if anybody would see my questions in my...

dmtm2005

•5 years ago

8 Replies

Ibrutinib and Weight Gain

For those of you on Ibrutinib for 6 months to a couple of years how has your weight fluctuates. I am up 11 pounds in 6 months with no change in intake or...

For those of you on Ibrutinib for 6 months to a couple of years how has your wei...

KevinCLLITP

•5 years ago

10 Replies

New to Imbruvica

I’ve been taking Imbruvica for only 35 days and I’ve had no side affects. Turbinator

I’ve been taking Imbruvica for only 35 days and I’ve had no side affects. Turbi...

Turbinator

•5 years ago

4 Replies

Problems with Neulasta after IVIG and in Ibrutinib

Neutrophils dropped over the last couple of months while on IBN so my doctors gave me a shot of Neulasta. I have ended up with weeks or achy bones, problems...

Neutrophils dropped over the last couple of months while on IBN so my doctors ga...

KevinCLLITP

•5 years ago

10 Replies

Flowers and FCR

Well, it's the evening before I start FCR and a friend has sent me cut flowers. There is conflicting info on line, some sights say no flowers or plants in the...

Well, it's the evening before I start FCR and a friend has sent me cut flowers. ...

Root65

•5 years ago

35 Replies

Advice about flu vaccination please.

Hello everyone. I just need to ask if Paul ( my lovely husband who has the CLL) should have any particular flu vaccine. Our GP ( we are in the U.K.) says we...

Hello everyone. I just need to ask if Paul ( my lovely husband who has the CLL) ...

Fran57

•5 years ago

32 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2019

So what is important to know ,,,blood test markers and other

How New Immunotherapy Drugs are Developed and Tested (video)

Tender lymph node groin

Looking for advice on travel insurance

Mother suddenly got fever

Travel insurance

The Long Island CLL Society Support Group Monthly Meeting

Flu shot and Acalabrutinib

Jakavi a Janus kinase inhibitor ; does anyone know about this Med for the treatment of CLL

Sequential And Combination Treatments With Novel Agents (Oct. 2019)

What to avoid on ibrutinib ?

New York City -- CLL Patient Support Group Sunday October 13, 2019 from 3pm – 5pm

Newbie

Vitamin C is it dangerous to take a once a day drink of Vitamin C...called "emergen-c" 1000mg ???I have SLL and am on W/W

CLL Ireland is coming to Galway on November 16th for an afternoon of support and learning.

So much to share returning from Scotland for CLLAN Horizon and iwCLL

Thank you!

Started imbruvica

How do someone manage with SLL and parkinsons

Cancer Treatment is expensive, there is help available

Help with Sore Throat for CLL Patient

Flu vaccination

My Port keeps clogging.

Just arrived!

Flu & Pneumonia vaccines

Ibrutinib and Weight Gain

New to Imbruvica

Problems with Neulasta after IVIG and in Ibrutinib

Flowers and FCR

Advice about flu vaccination please.

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