How do someone manage with SLL and parkinsons - CLL Support

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How do someone manage with SLL and parkinsons

BJHUG profile image
2 Replies

Sll with parkinsons

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BJHUG profile image
BJHUG
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2 Replies
lankisterguy profile image
lankisterguyVolunteer

Hi BJHUG,

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I am sorry to hear about your challenges and wish there was something appropriate I could add. I see you just joined us today.

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We have many members with multiple health challenges and try to support them emotionally by answering general questions from our own experiences.

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I hope you will look for the box on this page labeled "Pinned Posts" to see these:

Pinned Posts

*Newly diagnosed with CLL or just found us? This post is for you!

*30 tips for living well with CLL (an update of "Coping Strategies" and "Things we can do...")

*12 TIPS to get more out of this CLL Support forum - and help others do the same.

*Good article on navigating complementary cancer treatments

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You may also want to read this suggestion to build a team of doctors and support systems that cover both of your conditions: cllsociety.org/toolbox/buil...

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Please let us know how we can help you.

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Len

Jemorgen profile image
Jemorgen

Dang! what a challenge. I imagine each will complicate the other but both are largely manageable. It will be important for your specialists to fully understanding the contraindications of the medications you must take for each. The number one thing that makes both better and more manageable is physical activity. Start where you are at currently and add a little bit in very small increments . If you live in a major centre, there will be Parkinson's support groups and agencies that help you live your best. These activities will mostly be what will help with SLL.

There are a number of us in this community who have SLL so use your search to find and read about similar experiences. Feel free to message me any time and I can tell you about my journey.

All the best. You're not alone.

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