Hope I put this in the right spot
Vitamin C is it dangerous to take a once ... - CLL Support
Vitamin C is it dangerous to take a once a day drink of Vitamin C...called "emergen-c" 1000mg ???I have SLL and am on W/W
Written by
Stelladoro
To view profiles and participate in discussions please or .
Read more about...
25 Replies
•
Stella, there are so few real studies on these type supplements, I do not think anyone knows the full answer to your question. I think the probable answer is that it’s not all that dangerous, but likely not all that helpful either.
Larger than normal doses of vitamin c can cause your stomach to be upset. And since supplements like this have little regulation, you are never quite sure what you are taking or if it’s consistent from one batch to the next.
You should ask your doctor before adding any supplements. Some supplements might interfere with meds we are taking. I think most doctors would tell you that you can get all the vitamin c you need from vegetables like broccoli, peppers and spinach or from most fruits. When we get our vitamins from vegetables and fruits we can know for sure we are getting vitamins in proper doses and we get the added benefits and cancer fighting qualities certain fibers add to our diets.
That’s just my take. By way of full disclosure, I tend to be biased against supplements in general where scientific trials run by recognized medical academic centers proving their efficacy have not been done. Supplement advertising tends to be more in the nature of testimonials by doctors who, upon research, tend to be doctors who have controversial views and accreditations.
Here is an article on it:
Hey Stella - there has been a fair amount of discussion on vitamin c in the past. try a search here and see what you get. There are some concerns.
I have been told that when you overload on vitamin C you tend to pee most of it out.
Yes that's true......
That is true with most vitamins per my dr.
MsLockYourPostsPassed Volunteer
My urologist wants me to take 1000mg of vitamin C daily to help prevent UTIs. My hematologist is fine with that, and his other suggestions which I have posted on here. I am watch and wait and do not currently have a raised ALC or active lymph nodes.
for UTIs research aor's UTI Cleanse, vitamin C is not even in the same league!
I also take 1000mg of D Mannose (the ingredient in aor's UTI Cleanse) per my doctor's advice. Aor's has some cranberry also. I prefer to drink mine.
I don’t know the science of it at all and I’m sure there’s not much known about it. My concern was that CLL is a disease of the immune system and vitamin C boosts the immune system. Does that mean it boosts the cancer? I don’t know. It may be fine.
Dr Susan Leclair has warned about vitamin C doing just that - boosting lymphocyte growth.
Could you any information on what Dr Susan Leclair said about vitamin C ?
Chris/CLLCanada quoted Dr Leclair thus two years ago: "Then we return to Dr. Susan Leclair's statement 10 years ago, that Vitamin C in high doses stimulates B cell growth... not really what we want in CLL.
Thanks to Nick for posting this to Macmillan, in 2012
quote
SUSAN LECLAIR
"Vitamin C does seem to stimulate lymphocyte activity - which was one of the reasons that Linus Pauling thought that it was so good in the prevention of malignancy. The flip to that, of course, is when the malignancy is in the lymphocytes and then it is not a good idea to stimulate them any further than already are.
One of the issues then is the fact that we all need vitamin C to live. So - what to do. I would stick with the printed recommended daily allowance and not go too high above that. Does that mean I don't gorge on fresh oranges when we get them? No - but I don't do it on a daily basis either."
SUSAN LECLAIR
"In essence, you do have that correct. vitamin C does stimulate the immune system and several researchers claim that too much of it can be harmful to CLL patients. If you google vitamin C and leukemia, you will get several hits about this. One very good overview is: cancer.gov/newscenter/press...
Much of the work on anti-oxidants show that they have several different pathways of action. Is it possible that one of them MIGHT be better for patients with CLL than others? Possibly but that is unknown at this time.
I think that most researchers would still rely on the "balanced nutrition" rather than the skewed nutrition used by Pauling and others. (Remember, Pauling did die of cancer.) end quote”
💉💉💉
More from Dr. Leclair on blood: patientpower.info/bio/susan...
Previously on HU... VitC et al: healthunlocked.com/cllsuppo...
~chris"
See Chris's reply here: healthunlocked.com/cllsuppo...
Thanks for finding that reference. I searched but couldn’t find it.
Thank you so much for this information.
Is that for SLL too?
CLL and SLL are the same disease, so vitamin C could stimulate lymphocytes in the bone marrow and nodes in SLL. Keep in mind that CLL/SLL cells in the blood are in their dormant phase and active elsewhere.
Neil
Thanks Neil......I only intend on taking 1 when I feel a cold coming.It seems to scare the infection away lol
Thanks for all your help!☺
That amount of vit C is certainly not dangerous!
I use that stuff but only once in a while when I have a cold or the flu. I think every day is too much.
Yes I take 1 packet if I feel a cold coming on and it stops it...
Stelladoro,
I have been taking 1500mg of vitamin C daily for over 40 years. I started it back in the 70's when the medical research community promoted it for immune support and preventing fatigue under exertion.
I honestly cannot prove that it makes any difference one way or the other. It has become a habit, and I enjoy the orange gummies twice a day. For me it could be the equivalent of quitting cigarettes for a smoker.
I agree with cajunjeff on the statement about where doctors would tell you to get all the vitamin C you need.
I believe that credible science shows that a balanced diet better provides vitamins and nutrients, and in most instances supplements provide very little benefit.
JM
Emergen-C is an excellent product and is a benefit to those of us with CLL. It also helps with UTIs and if you should get sepis Vit C helps a lot.
I've been advised to take a small amount of vitamin c when I take my iron supplement because it helps with iron absorption.
Carol 🇨🇦
I was told at MDA it was ok, as I had taken one daily for years. I did stop when I started Ibrutinib.
Ingesting large quantities of vitamin C can cause all sorts of intestinal issues. Most vitamin C on the market is water soluble, and our bodies retain only about 2000mg a day, so the rest becomes an expensive contribution to the sewer system.
There is one type of vitamin C that does get absorbed well in 1000mg doses, made by LivOn Labs. I've been taking their Lypo Spheric vitamin C daily for 30 years, with no problem. It is a gooey substance that comes in daily individual packets that can be squeezed into juice. I just squeeze it into my mouth and follow up with water. I rarely get a cold, and consider it an important immune builder for me.
On their web site, you can read about the scientific description of their "liposomal" process. It's all gobbledegook to me. All I care about is that it seems to work for me, I know it is made by a reputable company, and I haven't had a cold in years.
