So what is important to know ,,,blood test markers and other

[michaelmac]

So, even though I am on my second round of treatment I find lots of references in the posts here that I don't understand. So I'm hoping that someone can point me towards a list of these markers and references that I'm guessing come from blood testing and other tests ,,,,... or if someone would be nice enough to take the time to post list of the things that they think are important and what they indicate.

What I'm referring to are things like the following

deletions unmutated and mutated

T...53

13q14.3

IGHV mutated

13q, unmutated

confirmed 17P

thanks in advance for any help, and I hope everyone is doing as well as they can

Michael

[cllady01 Former Volunteer]

Michael, the following Pinned Post may be helpful for an overall view and there is another Pinned Post or two that give some definitions.

healthunlocked.com/cllsuppo....

[AussieNeil Partner Administrator]

Cllady has provided you with an excellent pinned post that will answer your questions, but as you'll discover, being on Ibrutinib, those markers really aren't a concern for you.

Neil

[Justasheet1]

Scott,

That was an impressive response. So you’re not just a pretty face. 🍻

Jeff

[Shepherd777]

A pretty face. Are you referring to Scott or his cat. :>)

[Shepherd777]

PS: where have you been Scott...I miss you on this sight.

[Hidden]

Scott-it was impressive post.

[JigFettler Volunteer]

Hey Scott! Your on the money! Translating medical speak into palatable bites is a great skill. Nice post! Jig

[virdieblue in reply to JigFettler]

Well- he is an egghead!

[Smakwater]

How about it! That was some coffee this morning eh?

Nice work Scott

[JigFettler Volunteer]

Yerr Good Thanks, After FCR my mojo and fitness back, biking again - the hills are always a test, and at my age of 63! ... and how are you doing?

Jig

[Smakwater]

I'm with you on that.

[virdieblue]

You got it OCB!

[Random78]

can I ask when a CLL patient typically gets tested for these mutations ?

[Random78]

UK health system (i.e. NHS), but health is devolved in each of the 4 countries. I live in Northern Ireland and where possible we follow NICE guidelines however there are severe financial and political constraints here currently! Perhaps I should check NICE for management of CLL.

[Random78]

Oh and thanks for the information bu the way.