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CLL Support

22,761 members • 39,053 posts

All posts for July 2019

New to it all

62 yo male here; was diagnosed with CLL in November of 2018. After three sets of bloodwork, a CT and a boner marrow biopsy Im told I continue on watch and...

62 yo male here; was diagnosed with CLL in November of 2018. After three sets of...

Pokerguy

•5 years ago

3 Replies

The micro-environment and more

Hi, I just posted my ASH interview with Dr. Wang on the micro-environment in CLL:...

Hi, I just posted my ASH interview with Dr. Wang on the micro-environment in CLL...

bkoffman

CLL CURE Hero•5 years ago

5 Replies

Diagnosis switched to mzl

Has anyone experienced being diagnosed initially with cll then told they have a subtype if mzl?

Has anyone experienced being diagnosed initially with cll then told they have a ...

Sunfishjoy

•5 years ago

10 Replies

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CLL and Medical Marijuana

Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and anxiety due to watch and wait stage? Injesting anything foreign is a concern...

Has anyone found Medical marijuana CBD/THC tincture to be helpful with sleep and...

Madprofessor22

•5 years ago

27 Replies

Information please! Best CLL doctors in Los Angeles vicinity?

I have been diagnosed with cll since 2004 approx. No treatment yet... WBC starting to move up more . Used homeopathic methods. Question...what is no. 1 reason...

I have been diagnosed with cll since 2004 approx. No treatment yet... WBC starti...

1230

•5 years ago

27 Replies

Imbruvica double dose

Hello, my mum has cll and is taking imbruvica. She suspects she took double dose today (3×140mg) twice. And her dr. Lives in another country, so its not easy...

Hello, my mum has cll and is taking imbruvica. She suspects she took double dose...

N_Sabry

•5 years ago

4 Replies

12 TIPS to get more out of this CLL Support forum - and help others do the same.

We’re posting this again, especially for newcomers but also a reminder to those not-so-new. Adjusting to a new forum can be confusing, so if you’re...

We’re posting this again, especially for newcomers but also a reminder to those ...

PaulaS

Volunteer•5 years ago

23 Replies

3 month follow up

Happy to report my 90 days checkup after final chemo is this week. Feeling better than I have for a few years, except for sore arms and legs? Otherwise great....

Happy to report my 90 days checkup after final chemo is this week. Feeling bette...

Estate1

•5 years ago

21 Replies

CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma

Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL “career” (...

Can’t really answer this as I haven’t had one for my CLL. Am 76 years old. Issue...

leopardo

•5 years ago

4 Replies

Any information on pain re Ibrut

I am on third month of Ibrutinib . And i have had some of those roving muscular skeleton pains. Usually a muscle pain goes away after a few days. This...

I am on third month of Ibrutinib . And i have had some of those roving muscula...

onu1tadi2

•5 years ago

14 Replies

Can vaccinations cause A-Fib?

Hi all. I had an experience on Friday/Saturday and I'd like to get your collective feedback. I'm a 64 yo male. I've been diagnosed with CLL since Jan...

Hi all. I had an experience on Friday/Saturday and I'd like to get your collec...

The-Man-with-a-Plan

•5 years ago

7 Replies

14.07.2019.

Things appear to be going very well. No issues with side effects from the Imbruvica. Feeling a lot more mentally alert whereas previously I felt ' Foggy'....

Things appear to be going very well. No issues with side effects from the Imbruv...

Jacksc06

•5 years ago

43 Replies

CLL Specialist in Tehran, Iran?

I received an email from a patient with 17p del CLL in Iran. Any CLL doctors I could recommend? Thanks

I received an email from a patient with 17p del CLL in Iran. Any CLL doctors I c...

bkoffman

CLL CURE Hero•5 years ago

5 Replies

Clinical Trials and Older Adults—How to decide

This is a NIH publication. Not specific to CLL, but should be of help in looking at the points to consider and in having a knowledge of the general...

This is a NIH publication. Not specific to CLL, but should be of help in looki...

cllady01

Former Volunteer•5 years ago

2 Replies

Taken off Ibruitinib for a week due to mouth sores. Not sure about the next move.

Hi. I was diagnosed in 2011 and first treated BR in 2015 It came back 2017. I am 8 mo into I and V trial. Blood is great and my oncologist says my ship is...

Hi. I was diagnosed in 2011 and first treated BR in 2015 It came back 2017. I...

Catnap7

•5 years ago

41 Replies

My doctor says I have CLL

Twice I had a UTI. First UTI my WBC was 9.6. About a year later my WBC was 11.1. On 6-10-1920 my Leukocytes was 10.8 and my Lymphocytes was 44.5. Doctor says...

Twice I had a UTI. First UTI my WBC was 9.6. About a year later my WBC was 11.1....

Llgarden

•5 years ago

17 Replies

Impressed by all of you.

I just joined recently for a family member. I am impressed by the knowledge, concern, and civility of the members of this site. I think the administrator does...

I just joined recently for a family member. I am impressed by the knowledge, con...

Odale

•5 years ago

14 Replies

Mode of Progression After Frontline Treatment Predicts Clinical Outcomes in Patients With CLL

Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group...

Not only is CLL heterogeneous in watch and wait, that's also the case after trea...

AussieNeil

Administrator•5 years ago

22 Replies

Joint pain CLL

Hi folks, Am progressing to treatment end of 2019 /20 on watch and wait. Recently I have been experiencing joint pain knees, hips, feet, toes and my back at...

Hi folks, Am progressing to treatment end of 2019 /20 on watch and wait. Recent...

Roseneath69

•5 years ago

6 Replies

Robbob71

Does anyone with CLL have these symptoms . Watering eyes and dry skin on the arms and around the neck ?.

Does anyone with CLL have these symptoms . Watering eyes and dry skin on the arm...

Robbob71

•5 years ago

7 Replies

High WBC Count

I had steroid injections in both hips last year (July 2018). My WBC Count is 60,000. I am on antibiotics. Could the injections be the reason the WBC Count...

I had steroid injections in both hips last year (July 2018). My WBC Count is 60...

Hidden

•5 years ago

4 Replies

High WBC Count

Question. Can the steroid injections I received in June of 2018 be the reason my WBC count is high? My WBC is 60,000. I got an injection in each hip. ...

Question. Can the steroid injections I received in June of 2018 be the reason ...

Hidden

•5 years ago

2 Replies

cll/sll or MZL? & Rituxan

I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis now in doubt at two leading cancer centers because I am cd20 bright. So MZL or...

I'm month three of trying to get properly diagnosed. Initial cll/sll diagnosis n...

Sunfishjoy

•5 years ago

13 Replies

Discontinuation of ibrutinib

Hi everyone! It´s been a while since my last post. My mother continues taking ibrutinib, almost 3 years now and doing fine. But right now she has to prepare...

Hi everyone! It´s been a while since my last post. My mother continues taking ib...

nicolas_12

•5 years ago

2 Replies

Growth dynamics in naturally progressing chronic lymphocytic leukaemia

Abstract from Nature, 29/5/19 - Unfortunately the whole article is behind a paywall. "We used the indolent growth dynamics of chronic lymphocytic leukaemia...

Abstract from Nature, 29/5/19 - Unfortunately the whole article is behind a payw...

Jm954

Administrator•5 years ago

7 Replies

Any Cll specialist in India?

Hi I am from Sri Lanka. my 49 year old husband was diagnosed with MBL in April 2018 by an Indian Hemoto oncologist. His WBC was 14 and ALC was 6.8 at that...

Hi I am from Sri Lanka. my 49 year old husband was diagnosed with MBL in April ...

Rifka

•5 years ago

5 Replies

Cholesterol

Following blood tests my GP has advised that I start statins. However, I have reviewed my diet and reduced the consumption of a number of fatty foods (50%)....

Following blood tests my GP has advised that I start statins. However, I have r...

RobertCLL

•5 years ago

11 Replies

Thai massage

I recently took a series of Thai massages and part of the massage resulted in pressure being applied to areas on and or close to my lymph glands. I’m wondering...

I recently took a series of Thai massages and part of the massage resulted in pr...

Trev1

•5 years ago

6 Replies

With a CLL diagnosis, knowing more about your immune system could save your life!

When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the...

When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate t...

AussieNeil

Administrator•5 years ago

26 Replies

For the Nails

I tried to post this in Junibird’s question about nails, but could not copy the picture into a response. ( I can be tech challenged at times). Anyway, this...

I tried to post this in Junibird’s question about nails, but could not copy the ...

BeckyLUSA

•5 years ago

6 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for July 2019

New to it all

The micro-environment and more

Diagnosis switched to mzl

CLL and Medical Marijuana

Information please! Best CLL doctors in Los Angeles vicinity?

Imbruvica double dose

12 TIPS to get more out of this CLL Support forum - and help others do the same.

3 month follow up

CLL, Bone Marrow Transplant and Hodgkin’s Lymphoma

Any information on pain re Ibrut

Can vaccinations cause A-Fib?

14.07.2019.

CLL Specialist in Tehran, Iran?

Clinical Trials and Older Adults—How to decide

Taken off Ibruitinib for a week due to mouth sores. Not sure about the next move.

My doctor says I have CLL

Impressed by all of you.

Mode of Progression After Frontline Treatment Predicts Clinical Outcomes in Patients With CLL

Joint pain CLL

Robbob71

High WBC Count

High WBC Count

cll/sll or MZL? & Rituxan

Discontinuation of ibrutinib

Growth dynamics in naturally progressing chronic lymphocytic leukaemia

Any Cll specialist in India?

Cholesterol

Thai massage

With a CLL diagnosis, knowing more about your immune system could save your life!

For the Nails

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