Clinical Trials and Older Adults—How to decide

[cllady01]

This is a NIH publication.

Not specific to CLL, but should be of help in looking at the points to consider and in having a knowledge of the general nomenclature as well as your rights as a participant.

It is a free downloadable PDF.

order.nia.nih.gov/sites/def...

[scarletnoir]

That's a pretty good summary in easy to understand language, for anyone considering being involved... it's a USA document, so I hope those available in other countries (such as my own - the UK) are as clear.

I got annoyed last week by someone commenting on-line in a discussion about trials - she/he was critical of the 'loss of privacy' which might be involved. I wrote back that those of us staring down the barrel didn't care two hoots about privacy, if our lives were at stake. (That's my opinion, anyway.) It was clear the person who wrote the comment was NOT suffering from a life-threatening condition.)

I shall certainly offer to take part in any trials which may be of use in future... I recently offered to be followed in a long-term dementia study, which initially was based on an on-line assessment - which didn't work. Ah, well...

[scarletnoir]

Oh, I forgot to say that when I saw the title, I wondered what an 'older adult' might be... just one of the three examples was older than myself, so now I know!

I don't feel old, mind...