14.07.2019.

[Jacksc06]

Things appear to be going very well. No issues with side effects from the Imbruvica. Feeling a lot more mentally alert whereas previously I felt ' Foggy'. Physically doing ok, I have started using weights to rebuild strength in my arms and walk or cycle daily for stamina. Imbruvica my best friend & I seem to be very compatible. Went into work to speak with my manager regarding returning to work at the start of August & discussed a plan for a phased return. Probably 3 hours a day for the first 2 weeks then build up slowly provided all goes well. After 8 months off I'm sure it will be a shock to the system, but looking forward to returning to 'Normality'. Love and strength to all.

[mrsjsmith]

Jack,

Great and positive news.

Colettex

[Jacksc06 in reply to mrsjsmith]

Thanks Colette. Yes so far so good. Hope you are well x

[mrsjsmith in reply to Jacksc06]

Thank you. Feeling great and also down to Ibrutinib !

Colette ☀️

[Jacksc06 in reply to mrsjsmith]

Wonderful.

[Peggy4]

Sounding good Jack!

Peggy 😀

[Jacksc06 in reply to Peggy4]

Thank you Peggy. Things appear to be improving, hope you are well.

[Garcar]

That’s great!

[Jacksc06]

Many thanks. Best wishes.

[Kokobean]

Great news Jack. My husband too is feeling better than he has in a long time.

[Jacksc06 in reply to Kokobean]

Thankyou. Happy hubby is doing ok.

[ap64]

Glad to hear your positive news.

[Jacksc06 in reply to ap64]

Thanks. Hope you are well.

[ap64 in reply to Jacksc06]

Very lucky to be doing well CLLwise. Go for my annual with the oncologist tomorrow. Back and neck are not as good but 50 years post car accident what can u expect. Awaiting call from chronic pain clinic which could be another six months. Canadian medicine has its downsides.

[Jacksc06 in reply to ap64]

Best wishes for your annual. Hope the call comes soon.

[Name-1]

Hi Jack,I am very glad for your great news!😍🍀🍀

[Jacksc06 in reply to Name-1]

Thank you Olga. Hope your ok.

[DaveGH]

Glad you are feeling better so much so that you are now talking about work and exercising. Glad to hear you and your drugs are compatible!

Dave

[Jacksc06 in reply to DaveGH]

Thanks Dave. Wishing you well.

[CLLCalifornia-USA]

Jack, you sure are a fighter. Glad Ibrutinib is working for you also. Enjoy life. Sally

[Jacksc06 in reply to CLLCalifornia-USA]

Thanks Sally. Hope you are doing well.

[DisneyMom]

That's great news! Glad to hear another Ib success story!

Carol 🇨🇦

[Jacksc06 in reply to DisneyMom]

Thank you Carol. Hope you are well.

[Jm954 Administrator]

Wonderful

[Jacksc06 in reply to Jm954]

Thank you. Best wishes.

[Elizabetha]

Brilliant Jack, hope your boss agrees! 👍

[Jacksc06 in reply to Elizabetha]

Thanks Elizabetha. Sending you best wishes.

[PlanetaryKim]

Wonderful to hear your good news, jack!

kim

[Jacksc06 in reply to PlanetaryKim]

Thanks Kim. Hope you are well.

[PlanetaryKim in reply to Jacksc06]

Thanks, Jack. I'm doing pretty well. Will have my biannual check-up with CLL specialist in one week. But basically the ibrutinib is goign well for me. My neutrophils are a little low (1.5), and I feel I should have more energy than I do. But otherwise healthy. Thankful to be alive and not ill!

kim

[PaulaS Volunteer]

Thanks for the update, Jacks. I'm so glad Ibrutinib is suiting you. It was time something went well after all you've been through.

I hope all goes well with your phased return to work next month. If you find it hard at first, maybe they could be flexible about making it a more gradual return to start with.

Not wanting to be pessimistic but when my hubby went back to work on a phased return, after a broken leg with major complications, it was too much too soon. He had to go off sick again. (He's back at work now though and is OK.). He didn't have CLL but it's the same principle that sometimes it takes longer to fully recover, than we expect.

Wishing you all the best,

Paula

[Jacksc06 in reply to PaulaS]

Thanks Paula. My employers have been given the reasonable adjustments that I require under the equality act. e:g If I need to take a break to rest. Access to drinks in hot weather etc. I went back too quickly last time - Lesson learned!. Hope you are well.

[edelweiss]

That’s more good news Jack! Let us know how the weights and muscle-building go. I think I should be trying the same. Be well.

[Jacksc06 in reply to edelweiss]

Thank you. Hope all's well with you.

[prosecco1]

That's great news, Good Luck on going back to work

Elle xx

[Jacksc06 in reply to prosecco1]

Thanks Elle. Hope you are doing ok.

[Michaeljohn50]

Great news Jack,looking forward to more posts like this.

Michael

[Jacksc06 in reply to Michaeljohn50]

Thank you Michael. Hope you are well.

[eric72]

The very best of luck for a return to normality Jack. So glad to hear you are feeling so well.

[Jacksc06 in reply to eric72]

Thanks Eric. Best wishes.

[terryI_uk]

Great news jacks, hope your return to work goes smoothly, I'm sure you're exercising will help with preparation for that too, good luck and God bless, Terry

[Jacksc06 in reply to terryI_uk]

Many thanks Terry. Best wishes.

[Hidden]

Well done Jack, you are making it look easy!

All the best,

Owen

[Jacksc06 in reply to Hidden]

Thank you Owen. The improvement since starting Imbruvica is so far quite remarkable. Always the doubt that something will throw a spanner in the works, but trying to stay positive. Hope you are well. Best wishes.