Severe upper back pain

[Momdds]

My wife has CLL & is in severe upper back pain & was wondering what it could be. We are at the hospital & they are checking her for kidney stones. There is some blood in her urine. Anyone resemble these remarks?

[MsLockYourPosts Passed Volunteer]

Kidney stones or a kidney infection are possibilities. Back pain could also be related to muscles, nerves, and orthopedic issues. I'm sure that there are other possibilities. You are in the right place to have this addressed. Sending positive thoughts for an easy to treat answer. Please let us know how she is doing.

[Momdds]

We got her CT scan report & the pain is from “ lytic lesions in the vertebral bodies of L1 & L2 with superior endplate compression fractures. Also a mild superior end plate compression fracture of L4.”

[fapumpkin in reply to Momdds]

hi Momdds, when I was 52. I had 5 months of severe back pain, and after numerous Doctor's phone calls, 5 paramedic visits, I finally had an x-ray that showed 5 compressed fracture vertebrae, I had had no accidents, just pulling on a handbrake, turning over in bed or picking a cat up. Tests showed that I was low in vitamin D. I had been living with a CLL diagnosis for 9 years, I had had no previous treatments for CLL. I have gone to have ballon kypholasty procedures in 3 vertebrae. I now take calcium/d vitamin every day, a daily injection of teriparitide, (previous bone density meds have not been effective, so now have 11 affected vertebrae) and I take gabapentin for pain, as I am on Ibrutinib so anti-inflammatories are not possible. I am not categorised as a high risk for osteoporosis.

I have posted previously, links to research that seems to show an increased risk of compression fracture vertebrae in patients with Cll.

bloodjournal.org/content/12...

ncbi.nlm.nih.gov/pmc/articl...

I truly hope that your wife can be referred to a place of excellence in regard to her fractures, I am under the care of the Royal National Orthopaedic Hospital in London, who are excellent, care is very much their motto.

[DaleFL]

I have osteoporosis, which was discovered about a year after my diagnosis at 42. I had multiple MRIs and other tests. Osteoporosis, mild degenerative disk disease, and arthritis ware found on the MRIs. I am still in pain, although it is not as bad as it was initially. I am in physical therapy and will need to start taking medication to prevent more bone loss.

I am convinced that CLL contributes to osteoporosis in some of us.