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CLL Support

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All posts for September 2018

Juices, Fluid Options

What juices can you drink on Ibrutinib? My husband has a problem with 1% milk especially at night. He can drink water and tolerates ginger ale. Thank you so...

What juices can you drink on Ibrutinib? My husband has a problem with 1% milk es...

Zappymom12

•6 years ago

15 Replies

Ibrutinib for all

I’d say this was good news to come home from. Well done to all who wrote to their MP in the summer about this.

I’d say this was good news to come home from. Well done to all who wrote to thei...

MattGGibson

•6 years ago

4 Replies

Flu jab which one?

Hi all just a quick question, Any body have any ideas which will be the best flu vaccine to take this year in the UK, the 2 on offer is the new quadrivalent...

Hi all just a quick question, Any body have any ideas which will be the best fl...

stewie

•6 years ago

9 Replies

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CLL Blood Tests: Immunoglobulin, Complete Blood Counts, Platelets and More- Patient Power Video- June 29, 2012

Patient Power- Includes a video from 2012, that has lots of useful information about our immune system and the blood tests that are used to assess its...

Patient Power- Includes a video from 2012, that has lots of useful information ...

lankisterguy

Volunteer•6 years ago

1 Reply

Nail and finger tip protection on Ibrutinib

Omg I have tried it all for my paper thin nails that snag and break to the quick- but this little thing has made a huge difference! This are super comfy...

Omg I have tried it all for my paper thin nails that snag and break to the quick...

SunnyCA

•6 years ago

1 Reply

FDA Approves Duvelisib for CLL and Follicular Lymphoma - Sep 24, 2018

FDA Approves Duvelisib for CLL and Follicular Lymphoma Published: Monday, Sep 24, 2018 The FDA has approved duvelisib (Copiktra) for the treatment of patients...

FDA Approves Duvelisib for CLL and Follicular Lymphoma Published: Monday, Sep 24...

lankisterguy

Volunteer•6 years ago

6 Replies

Heart problems

Have any patients out there on Imbruvica gone off the meds because it has caused heart problems and if you did how is your heath?

Have any patients out there on Imbruvica gone off the meds because it has caused...

tlcladygiraffe

•6 years ago

8 Replies

So Relieved to have Found this Site!!

Hi All! Excited to be on board! I was diagnosed with CLL in mid June, of this yr. Happened to go in for random labs, and ended up diagnosed week later. My...

Hi All! Excited to be on board! I was diagnosed with CLL in mid June, of this yr...

OkanaganCLL

•6 years ago

9 Replies

Ct scan..yes or no?

Is a ct scan necessary for cll? I was diagnosed 2 weeks ago... wait and watch...next visit Jan 2019 but a ct scan ordered. Should I have it?

Is a ct scan necessary for cll? I was diagnosed 2 weeks ago... wait and watch.....

Pat351v

•6 years ago

23 Replies

Sleep, pain med.

I’ve been taking norco for shoulder, back pain and most recently enlarged lymph nodes. I also take tenezapam for sleep. Does anyone have similar issues and if...

I’ve been taking norco for shoulder, back pain and most recently enlarged lymph ...

gesch83ag

•6 years ago

9 Replies

Bone marrow biopsy or aspiration?

Hi All, We went today to do the bone marrow biopsy, but they didnt have the needed needle and did only the aspiration. Is this fatal and which markers we will...

Hi All, We went today to do the bone marrow biopsy, but they didnt have the nee...

paula_dae

•6 years ago

7 Replies

Septrin

Found a Brian deer investion into Septrin from the times newspaper in the U.K. Don’t know what year it was Unbelievable reading is it still prescribed to our...

Found a Brian deer investion into Septrin from the times newspaper in the U.K. D...

Jsk1950

•6 years ago

11 Replies

Green tea as drink or capsules and recommended dose, product

I have read that green tea is helpful with CLL. I was wondering if you would take this as a capsule or drink it (tea). If so, what is the recommended dosage?...

I have read that green tea is helpful with CLL. I was wondering if you would tak...

Xalos

•6 years ago

27 Replies

imbruvica and nail problems

Hi everyone. I think I may have found a solution to the poor condition of our nails and hang nail problems caused by taking Imbruvica. My husbands suffers...

Hi everyone. I think I may have found a solution to the poor condition of our...

Corkyrissa

•6 years ago

25 Replies

Fcr round 4 icthing

Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it

Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes i...

Jsk1950

•6 years ago

3 Replies

Dr. Lamanna is the BEST of the best!

I am writing to let everyone know what an excellent experience I have had with my CLL specialist, Dr. Nicole Lamanna and her staff at New York-Presbyterian,...

I am writing to let everyone know what an excellent experience I have had with m...

edelweiss

•6 years ago

26 Replies

Gumby or bloodroot

Has anybody ever used Gumby Gumby and/or bloodroot for CLL?

jpsdog

•6 years ago

3 Replies

Treatment....or not ???

Hello My wife is 48 years old and has been diagnosed with cll 5 years ago . 13q mutated 65k wbc and within range paletets and hemoglobin. The nodes in her neck...

Hello My wife is 48 years old and has been diagnosed with cll 5 years ago . 13q ...

Sergi

•6 years ago

33 Replies

Article on ecstasy for leukaemia

Just read a post on msn about giving ecstasy to octopuses ,it says some research says it could help blood cancers , anyone know anything about this ?

Just read a post on msn about giving ecstasy to octopuses ,it says some research...

therev55

•6 years ago

6 Replies

A strong immune system helps ward off colds and flus, but it’s not the only factor

Your skin and saliva are key barriers to infection and form part of your immune system, along with cells in every tissue of your body, including your blood...

Your skin and saliva are key barriers to infection and form part of your immune ...

AussieNeil

Administrator•6 years ago

9 Replies

Test Results FCR- Remission!

Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my...

Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR...

GMa27

•6 years ago

20 Replies

CLL Specialist

In my opinion your best choice in Ontario is Dr Fraser in Hamilton at Juravinski hospital. I hear very good things about him and he is also the organizer for...

In my opinion your best choice in Ontario is Dr Fraser in Hamilton at Juravinski...

ikahan

•6 years ago

2 Replies

Kappa & Lambda

Hi Can anyone explain the kappa & lambda designation? I am predominately Kappa but really don't know what that means.

Hi Can anyone explain the kappa & lambda designation? I am predominately Kappa b...

PSP52

•6 years ago

10 Replies

Bone Marrow Transplant telephone conference call TODAY September 19, 2018

September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow Transplantation...

September Lunch & Learn With The Link: Blood Cancers and the Role of Bone Marrow...

lankisterguy

Volunteer•6 years ago

3 Replies

Fcr and flu jab

Should I have a flu jab while on fcr ?

dandelup

•6 years ago

11 Replies

bone marrow biopsy

I.m new here 73 men on the 9th year with cll . and started to see some limp nodes in my body doctor wants me to have bone marrow biopsy is anybody knows if...

I.m new here 73 men on the 9th year with cll . and started to see some limp no...

wonderfull

•6 years ago

7 Replies

My platlet count is 149000 doctor said may be u have symptoms of dangue I m suffering from high fever 101-102 and dry cough pls let me know

Rehantausif

•6 years ago

1 Reply

NEW Central New Jersey CLL Support Group

MikeHoff

•6 years ago

Be the first to reply

UPDATE: Mom's CLL transformed to PLL

Hi All, So the "No worries", "She can go 10 years without treatment" are in the past just 10 months after the CLL diagnosis. We are doing the bone marrow next...

Hi All, So the "No worries", "She can go 10 years without treatment" are in the...

paula_dae

•6 years ago

16 Replies

Stress Exacerbates CLL And Speeds Up Its Progression

https://raypeatforum.com/community/threads/stress-exacerbates-cancer-and-speeds-up-its-progression.25582/ "...Patients with chronic lymphocytic leukemia...

https://raypeatforum.com/community/threads/stress-exacerbates-cancer-and-speeds-...

DirkTengg

•6 years ago

18 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2018

Juices, Fluid Options

Ibrutinib for all

Flu jab which one?

CLL Blood Tests: Immunoglobulin, Complete Blood Counts, Platelets and More- Patient Power Video- June 29, 2012

Nail and finger tip protection on Ibrutinib

FDA Approves Duvelisib for CLL and Follicular Lymphoma - Sep 24, 2018

Heart problems

So Relieved to have Found this Site!!

Ct scan..yes or no?

Sleep, pain med.

Bone marrow biopsy or aspiration?

Septrin

Green tea as drink or capsules and recommended dose, product

imbruvica and nail problems

Fcr round 4 icthing

Dr. Lamanna is the BEST of the best!

Gumby or bloodroot

Treatment....or not ???

Article on ecstasy for leukaemia

A strong immune system helps ward off colds and flus, but it’s not the only factor

Test Results FCR- Remission!

CLL Specialist

Kappa & Lambda

Bone Marrow Transplant telephone conference call TODAY September 19, 2018

Fcr and flu jab

bone marrow biopsy

My platlet count is 149000 doctor said may be u have symptoms of dangue I m suffering from high fever 101-102 and dry cough pls let me know

NEW Central New Jersey CLL Support Group

UPDATE: Mom's CLL transformed to PLL

Stress Exacerbates CLL And Speeds Up Its Progression

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