So Relieved to have Found this Site!!

[OkanaganCLL]

Hi All!

Excited to be on board! I was diagnosed with CLL in mid June, of this yr. Happened to go in for random labs, and ended up diagnosed week later. My Oncologist tracked it back to the of 2011! I also have Fibromyalgia, for many yrs.

Anyone out there with auto immune and CLL?? My Fibro has been extreme since the Dx. I've just restarted Cymbals, so really hoping the Fibro settles down! There was someone that wrote in about Day Sweats. OMG.... Have had the day sweats about 2 months before the Dx. Told the doc, he said only when severe night sweats start, should I begin any kind of treatment. I am on the Wait n Watch. Today is so far, my best morn! 🤗

No severe headaches, sore but no biggy! I Got This!! For Today, anyway! 😎

Enjoy your Day, Everyone! 👍

[Jm954 Administrator]

Hi and welcome to our on line community where we share experiences, information and support each other through good and bad times!

Your positivity shines through every line of your post and that will be a great asset to dealing with your CLL. To the right of your post there are a number of pinned posts which are particularly useful for the newly diagnosed about staying well and being proactive in looking after yourself.

If you have any questions please ask as you have done, someone else will almost certainly have had a similar experience. I just wanted to say hello!

Best wishes

Jackie

[OkanaganCLL in reply to Jm954]

Thank you Jackie, for your kind reply!! 🤗💛🌞

[Stairbuilder]

Welcome to the community! I, too, am on watch and wait, and very early stage. So glad for your positive attitude, that will go a long way. Others will have to speak to your issues with fibromyalgia, and its relationship to CLL. I also have severe arthritis, which is an autoimmune problem, but otherwise very blessed. I simply wanted to say hello and welcome! You will find understanding and helpful people, and I’m certain you will be hearing from them.

May God bless,

David

[OkanaganCLL in reply to Stairbuilder]

Thank you for for your kind words? David!@ 💛

[OkanaganCLL in reply to Stairbuilder]

Thank you so much for your warm welcome, David! I have already learned so much about CLL!

Everyone is so helpful, informative and mist of all, Kind! 💛

Cindy

[Stairbuilder in reply to OkanaganCLL]

You are very welcome! I wish you all the best!

[marcyh]

Hi Okanagan,

A warm welcome to you. You have come to a great place for information and support. Autoimmune problems and CLL/lymphoma can be companion diseases - both related to a dysfunctional immune system. The AI condition usually comes first. I don't have fibro but I do have a variety of AI symptoms which are akin to Sjogren's Syndrome.

The article below is mostly about Sjogren's but you may find it helpful. "...A number of autoimmune diseases raise the risk of NHL..." although in my case, CLL came first. (NHL stands for non-Hodgkin Lymphoma, an umbrella term for blood cancers/CLL.)

arthritis.org/about-arthrit...

I hope you can get a good team to coordinate your care.

marcyh

[OkanaganCLL in reply to marcyh]

Hi Marcyh, thank you for the warm welcome to this amazing site! I read the article on Sjogrens. Very interesting! I was diagnosed in '06 with Fibro. Probably had since in my 20's! I just re started taking Cymbalta. It's only been 6 days, and I already feel so much Better!! I was just about to call my oncologist and have him start me on Anything to help relieve the pain! Cymbalta has been a God send for my Fibro, over the yrs. All my painful joints, bones, muscles and skin have all settled rt down! 🤗

[marcyh]

Interesting. I've been on Cymbalta in the past but for a different reason. I'll keep that in mind for my joint pain. I'm so glad you've found some relief.