Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results show I'm MRD negative which is such a relief. I'm continuing on 400mgs a day, am back at work full time in Melbourne, have a completely normal life with my kids,no fatigue and no side effects. Feeling very very lucky!
I'm almost exactly 5 years post diagnosis - I was only 38 and was one week from Christmas with 7, 5 and 2. Had FCR in 2013 and relapsed fairly quickly and started this trial in Oct 2015. I blogged, which I must update - it's abtandme.com.
Best wishes to all