About to have infusion of Riutximab 5 this week. saw doctor yesterday. I have been suffering increasing joint and muscle pain over the last 2 months. Sometimes vey bad, and very debilitating. Maximum advised painkillers combining paracetemol and codeine do not really affect the pain at all. As mentioned before I can usually trace the pain to a very minor stress factor, and so far they have always occurred in different places. Anyway I could not cope with it any longer, so the Dr has advised stopping Ibrutinib for a week and then building up again. I was on the max quantity of 3 pills (420mg) a day.
It is a depressing setback. My bloods are responding OK and I have no other significant symptoms- rashes, bruising, indigestion but nothing compared to the pains. I am told that it might be just a matter of finding the appropriate level of Ibrutinib for me. I hope so.