Does anyone have any experience with Cancer Treatment Center of America and would you recommend them for 2nd opinion on CLL?
Need some input: Does anyone have any experience... - CLL Support
Need some input
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Reviews I've seen are mixed, but the negative comments concern me - not just related to CLL. They certainly don't have a known CLL specialist. If you give some idea of where you are perhaps someone here can suggest specialists in your area.
Pat
I know of no CLL specialist there. I would not obtain a 2nd opinion of anyone other than a CLL specialist.
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If I was in the US, I would be going to a CLL Research Consortium hospital.
There are many other options, certainly...
but the top tier clinical researchers are there... however
I would add to my list... NIH, Weill Cornell NY Presbyterian or Columbia NY Presbyterian in NYC, Sloan Kettering... Mayo in Florida and perhaps Arizona... UPENN and Fred Hutch, Carol CC in Nashville, Duke, US Oncology Network, off the top of my head...
~chris
Dr. Steven Coutre at Stanford is another good
CLL specialist. I saw him for a second opinion and he was spot on with my Hematologist's direction and opinion.
Try searching for doctors in your area at lymphomation.org/docs.htm
Called once and ray were interested in the treatment phase.
I do appreciate all the feedback but I live 100 miles north of Kansas City Missouri and I need something that is close to me. Kinda looking at the Kansas City area or close??
No. One reason is that they order lots of unnecessary tests which are costly… according to a nurse friend of mine. They are a money-making machine (with lots of facilities popping up around most of the country) …according to another friend in our local LLS group meeting. It is worth the time and travel to visit a specialist. I flew clear cross the country. You can make it worth while by creating a week's vacation or longer to coincide with it. San Diego is nice this time of year.
That was said tongue-in-cheek. But I did do that to see dr. Kipps in 2000 who is head of the CLL consortium. Great week and great doctor. Needed a vacation anyway.
Good u found a good doc. Best of everything to you.
francc...What is the name of the facility and CLL doctor in the San Diego area. I live in Arizona, but I have a daughter in Orange County. Would not be far to travel to. Thanks in advance for the info. Carole
I see that Mayo is mentioned in Arizona. and Florida. What about in Minnesota? That's closer to Kansas. Don't they have CLL experts?
I have only heard people talk. No.
My advise would be to chose a specialist from Dr. Sharman's List.
Ika, please read my profile.