Need some input

[lka2251]

Does anyone have any experience with Cancer Treatment Center of America and would you recommend them for 2nd opinion on CLL?

[MsLockYourPosts Passed Volunteer]

Reviews I've seen are mixed, but the negative comments concern me - not just related to CLL. They certainly don't have a known CLL specialist. If you give some idea of where you are perhaps someone here can suggest specialists in your area.

Pat

[lka2251 in reply to MsLockYourPosts]

100 miles north of Kansas City, Missouri

[Rpshe1]

I know of no CLL specialist there. I would not obtain a 2nd opinion of anyone other than a CLL specialist.

[lka2251 in reply to Rpshe1]

I agree. Will be going to KU. They are to be calling me with appointment time hopefully today.

[Cllcanada Top Poster CURE Hero]

If I was in the US, I would be going to a CLL Research Consortium hospital.

There are many other options, certainly...

but the top tier clinical researchers are there... however

I would add to my list... NIH, Weill Cornell NY Presbyterian or Columbia NY Presbyterian in NYC, Sloan Kettering... Mayo in Florida and perhaps Arizona... UPENN and Fred Hutch, Carol CC in Nashville, Duke, US Oncology Network, off the top of my head...

cll.ucsd.edu/sites.html

~chris

[lka2251 in reply to Cllcanada]

Thanks Chris for the info

[SusanJM in reply to Cllcanada]

Dr. Steven Coutre at Stanford is another good

CLL specialist. I saw him for a second opinion and he was spot on with my Hematologist's direction and opinion.

[wmay13241 in reply to Cllcanada]

Try searching for doctors in your area at lymphomation.org/docs.htm

[Fant1924]

Called once and ray were interested in the treatment phase.

[Fant1924 in reply to Fant1924]

Should be ..they...

[lka2251]

I do appreciate all the feedback but I live 100 miles north of Kansas City Missouri and I need something that is close to me. Kinda looking at the Kansas City area or close??

[francc]

No. One reason is that they order lots of unnecessary tests which are costly… according to a nurse friend of mine. They are a money-making machine (with lots of facilities popping up around most of the country) …according to another friend in our local LLS group meeting. It is worth the time and travel to visit a specialist. I flew clear cross the country. You can make it worth while by creating a week's vacation or longer to coincide with it. San Diego is nice this time of year.

[lka2251 in reply to francc]

Sounds good to me but unable to do that. I have found a doctor in KC that is CLL specialist. Thanks for the input.

[francc]

That was said tongue-in-cheek. But I did do that to see dr. Kipps in 2000 who is head of the CLL consortium. Great week and great doctor. Needed a vacation anyway.

Good u found a good doc. Best of everything to you.

[ladyprescott]

francc...What is the name of the facility and CLL doctor in the San Diego area. I live in Arizona, but I have a daughter in Orange County. Would not be far to travel to. Thanks in advance for the info. Carole

[Cllcanada Top Poster CURE Hero in reply to ladyprescott]

Mayo in Scottsdale has a couple of CLL Doctors...

[Chicagogrl]

I see that Mayo is mentioned in Arizona. and Florida. What about in Minnesota? That's closer to Kansas. Don't they have CLL experts?

[lka2251 in reply to Chicagogrl]

I understand that KU in Kansas City talks to Mayo daily. Have appointment march 24.

[SouthFloridaLady]

I have only heard people talk. No.

My advise would be to chose a specialist from Dr. Sharman's List.

[SouthFloridaLady]

Ika, please read my profile.