Newly diagnosed : I recently was diagnosed with... - CLL Support

CLL Support

22,985 members39,471 posts

Newly diagnosed

tammi71 profile image
5 Replies

I recently was diagnosed with stage 2 cll. I have had a cold and ran a fever off and on for about 6 weeks now. Is this something that I need to be concerned with? Should I call my oncologist or my GP? When should I notify my oncologist about problems that I am having?

Written by
tammi71 profile image
tammi71
To view profiles and participate in discussions please or .
5 Replies
Cllcanada profile image
CllcanadaTop Poster CURE Hero

GP ... quicker to see....fevers are an important indicator in CLL...you need to see a doctor as soon as possible... usually within a day or two... of a fever, cold etc...

Oncologists are focused on your CLL and there are what are called 'B symptoms' that include fatigue, weight loss, anemia, dropping blood counts, rising absolute lymphocyte count (ALC), enlarging nodes, unusual pains, and drenching night sweats...

~chris

ygtgo profile image
ygtgo

Chris is right ... get an appointment to see your GP.

I've been on Watch & Wait since 2006.

My Consultant does the Watching and Waiting ... whilst my GP and I deal with the symptoms of my CLL.

Our immune system has been compromised, so if there is anything that your are unsure of in the way of any symptoms that you are experiencing, contact your GP.

I am lucky enough to only see my Consultant once every year at the moment, but I do see my GP more often.

As you are newly diagnosed, would I be right in saying that you are seeing your oncologist within a three month period?

It would be worth discussing with him/her the possibilities of how/when you should contact the hospital for any health worries that you may have.

ygtgo

Carnyorth profile image
Carnyorth in reply to ygtgo

Dear ygtgo

I like your reply because it has clarified something for me. I'm recently diagnosed with Stage one CLL which should have been diagnosed 18 months earlier. I have been pondering the W&W approach and what it means really. I've already found that I have become greatly acquainted with my GP and she and the practice nurse and I are NOT watching and waiting! We are actively managing my condition. As you say, it is only the consultant who is W&Wing.

Thank you for illuminating this for me. Your turn of phrase about the consultant made me chuckle.

Justasheet1 profile image
Justasheet1

Do I really have to say it? Go to the doctor. I don't care what kind. Let them sort it out.

Jeff

splashsplash3 profile image
splashsplash3

Yes always get on to antibiotics as soon as possible, the it might go away thinking doesn't work for us CLLers, don't be brave or worry about being thought a pest, we are different to others and our immune systems need all the help there is.

Not what you're looking for?

You may also like...

Newly diagnosed

Hi, my name is Sheryl and I am 49 and been diagnosed with Cll for less than 1 year. I am in watch...

Newly diagnosed with questions

Hello, and thank you for letting me join and sharing all your amazing personal stories. I had Covid...

Newly diagnosed

Found this site today when looking up some health concerns. Reading with tears in my eyes as I see...

Newly Diagnosed CLL plus CTCL

I celebrated my 60th birthday last May by being diagnosed with CTCL (cutaneous T-cell lymphoma) and...

Newly diagnosed husband

Hello all, My partner was diagnosed with CLL in July at age 56 after a standard blood panel showed...