Rituximab and bendamustine

Hi all fellow cllers.

Is anyone else on rituximab and bendamustine at the moment? I just started last Thursday- a half dose of each of them on 2 successive days. Feeling totally steamrollered for Christmas now!! I did have fludarabine and rituximab nearly 5 years ago with great results. Has anyone else had this regime and how did they find it and how long did it last? A feel well Christmas and healthy new year to all

14 Replies

oldestnewest
  • Hi Donegal

    Finished BR late August and only seemed to suffer for 3/4days and even then I could carry on as usual, ie cooking, washing up etc.

    I hope by now you are feeling much better and are able to enjoy Christmas.

    I wish you well and a Happy Christmas and a even better New Year.

    Sue

  • Thanks Sue. Was BR your first treatment? 6 sessions? Good to hear you took it so well. Happy and healthy new year to you.

    Deenie

  • My body couldn't handle fcr so the treatment was changed to BR.

    Pleased you are feeling better.

    Sue

  • Each tx for me took longer to bounce back from. Never more than 3-4 days. Drink LOTS and LOTS of water.

    Jeff

  • Hi Jeff. Good advice to drink lots and lots of water. Was on a drip for 4 days after treatment and drank a great deal of water too. I do see the sense of it ,inconvenient as it may be!! Thanks. Is it long since you had treatment and how are you now?

    Deenie

  • Yes my husband is now doing BR. Just got done with second round. This time was a little harder for him. He had a reaction to the rituxan. Which was weird because 7 years ago her did 6 rounds of Fcr with no problem and had great numbers.

  • Hi Chris. Thanks for post. Good to hear of others in the same boat!! Is he also on a cocktail of pills between treatments?

    Regards

    Deenie

  • Hello and yes he takes a anti viral and a antibiotic. He will be taking those during the whole time on treatment.☺

  • I, too, just finished my BR treatment this past August. I experienced more fatigue, though. After the first round I was pretty wiped out for about a week. Like Justasheet1, it seemed like every treatment took longer to recover from than the previous one. After my sixth round I was wiped out for about three weeks or so.

    Four months later, I'm in a very good partial remission and feel terrific. Hang in there!

    Geoff

  • Hi Geoff. Good to hear that you're feeling so well. I'll certainly hang in there for the next 5 treatments. It was beginning to feel like an insurmountable mountain!! Raise a glass to good health in the new year!

    Deenie

  • Thank you. I hope he manages better the next round

  • I have had BR twice. The first time I was treated once a month for six months. Remission lasted just about three years. I just finished another round last October. I think the Neulasta shot I received at the end of each treatment was the hardest part. This shot made me feel like I was coming down with the flu. After three or four days, I was back on my feet. I think this is a very easy chemo to do. I wish you the very best.

  • Many thanks. Beginning to feel better now. Will enquire if I get neulasta after treatment next time. Have you had fludarabine before theBR? The haematologist did say that he hoped I'd get another good 3 years from the BR. A healthy new year to you

  • I was very luck to switch to a doctor before my first chemo treatment began who felt the best treatment for cll was the treatment that did the least damage to your immune system. While I know FCR is considered the gold standard, it can be very hard on your immune system. We are already in trouble with our immune system with this disease. So over ten years ago he started me out with the least damaging treatment as possible. I might be what you call a heavily treated patient, but I still have an immune system that can still fight off infections. Of course I am cautious, I try not to be around sick people and I get my flu shot. But I am still here and I have not missed my life by being sick. I am very thankful my chemo treatments have not been hard. This will be a little bump in the road but stay strong. You have got this!

You may also like...