Another Forum for UK CLL: Whilst doing a bit of... - CLL Support

CLL Support

22,366 members38,469 posts

Another Forum for UK CLL

MR2Don profile image
4 Replies

Whilst doing a bit of Googling on CLL, I stumbled across the following site. This does not seem to be well publicised, but seems quite comprehensive, with good topics and good posts.

ukcllforum.org.uk.

Note: There is also a ukcllforum.org, but this seems quite different and more for medics/scientists.

Written by
MR2Don profile image
MR2Don
To view profiles and participate in discussions please or .
4 Replies
Kwenda profile image
Kwenda

The UKCLLForum.org was set up by the late Dr Terry Hamblin, one of the very first good communicators about CLL. He was tireless in helping others on any CLL forums as well as doing major research into CLL.

This forum is not presently very active according to their website, listing the last meeting as October 2014. One would guess that the internet now speeds up communications about the latest research news instead of travelling to CLL meetings?

The UKCLLForum web page has a link for patients to the CLLSA.

Dick

MR2Don profile image
MR2Don in reply to Kwenda

Thanks for the reply, Kwenda, but can I just emphasise that I was talking about ukcllsupport.org.uk, which is a stand-alone, accessible forum. The .uk bit is important. I think your comment is about the .org which seems to be a quite different institution.

Bubnojay profile image
Bubnojay

Hi MR2don

The uk forum has been going for ages, and our administrators sometimes liaise if necessary when sharing information for an external request. However, having joined that site years ago I very rarely visit though I get Robert's emails still, as I personally find this international community and its contributors suits my need for sharing, support, and up to date information suits me best.

Hopefully you will find both sites meet your needs and will continue to contribute to both. For sure we are all on the same side in our CLL journey.

Best wishes

Bubnjay1

MsLockYourPosts profile image
MsLockYourPostsPassed Volunteer

I just looked at the site out of curiosity. One can read the last 10 posts. What I saw was a battle about alternative approaches. Is this an alternative site? Some scary unproven stuff posted.

You may also like...

UK CLL Forum - updated post lockdown guidance for the management of CLL

of the COVID19 pandemic the UK CLL Forum issued guidance on managing CLL patients. This guidance...

Travel insurance for UK residents with CLL

Their risk assessment seems way off to me as the medication keeps the CLL under control. I’d be

Great CLL Holiday Insurance (possibly UK only)

questions really seemed to understand the CLL condition, asking only relevant and seemingly...

CLL Disclosure? (UK).

accepted. As part of the application, there is a medical questionnaire, asking about condition's...

CLL and the NHS in the UK

I'm hoping the UK members of the CLL family can share their experiences with me, and I apologize in...