Whilst doing a bit of Googling on CLL, I stumbled across the following site. This does not seem to be well publicised, but seems quite comprehensive, with good topics and good posts.
Note: There is also a ukcllforum.org, but this seems quite different and more for medics/scientists.
The UKCLLForum.org was set up by the late Dr Terry Hamblin, one of the very first good communicators about CLL. He was tireless in helping others on any CLL forums as well as doing major research into CLL.
This forum is not presently very active according to their website, listing the last meeting as October 2014. One would guess that the internet now speeds up communications about the latest research news instead of travelling to CLL meetings?
The UKCLLForum web page has a link for patients to the CLLSA.
Dick
Thanks for the reply, Kwenda, but can I just emphasise that I was talking about ukcllsupport.org.uk, which is a stand-alone, accessible forum. The .uk bit is important. I think your comment is about the .org which seems to be a quite different institution.
Hi MR2don
The uk forum has been going for ages, and our administrators sometimes liaise if necessary when sharing information for an external request. However, having joined that site years ago I very rarely visit though I get Robert's emails still, as I personally find this international community and its contributors suits my need for sharing, support, and up to date information suits me best.
Hopefully you will find both sites meet your needs and will continue to contribute to both. For sure we are all on the same side in our CLL journey.
Best wishes
Bubnjay1
I just looked at the site out of curiosity. One can read the last 10 posts. What I saw was a battle about alternative approaches. Is this an alternative site? Some scary unproven stuff posted.
FCR Cycle 4 (For CLL) - Itchy Rash
CLL and vaccinations
Advise on CLL Treatment Options - UK
